10++ years and counting ...

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O Stoma Mia
Posts: 1721
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation.

10++ years and counting ...

Postby O Stoma Mia » Tue Sep 27, 2022 12:22 pm

Just checking in today to let you all know that this week will mark ten years since DX. I have now done my time and have received an "Honourable Discharge" from my oncologist in a document that includes the phrase, "complete remission". So ... this has meant no more visits with the oncologist, no more 3-month check-ups, and no more 6-month check-ups. Only periodic check-ups with my family doctor from time to time.

I would like to take this opportunity to thank all my friends here who supported me during the time when I was active on this Forum. This was a place where I could go whenever there was no other place to go.

Keep healthy, and best wishes for the onward journey!
Last edited by O Stoma Mia on Sat Sep 28, 2024 3:15 am, edited 1 time in total.

MadMed
Posts: 216
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: 10 years and counting ...

Postby MadMed » Tue Sep 27, 2022 2:25 pm

OMG, congrats! What a relief it must be. Thank you for all your contributions to this site, by sharing you've help many.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

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CRguy
Posts: 10500
Joined: Sun Feb 10, 2008 6:00 pm

Re: 10 years and counting ...

Postby CRguy » Tue Sep 27, 2022 3:34 pm

Mega cheers and congrats OSM
You have always been a supportive and helpful friend to all us ColonTalkers !!!!

Stay safe, be well and don't be a stranger

In Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Dennyp
Posts: 86
Joined: Thu Oct 29, 2020 9:28 pm

Re: 10 years and counting ...

Postby Dennyp » Wed Sep 28, 2022 8:25 am

Congratulations, fantastic!
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node
4/21 CT NED
8/21 CT NED
11/21 CT NED
2/22 CT NED
5/22 CT NED
8/22 PET NED
11/22 CT NED
3/23 PET lesion on liver
3/23 MRI confirmed lesion
4/23 liver surgery aborted lesion found on diaphragm
5/23 chemo started
7/23 CT shows shrinkage of lesion, consult scheduled with surgeon

kiwiinoz
Posts: 1172
Joined: Thu Jan 03, 2013 11:44 pm

Re: 10 years and counting ...

Postby kiwiinoz » Wed Sep 28, 2022 6:46 pm

Hi OSM

Amazing to hear that and I still sometimes lurk around here, but I thought after seeing this that I had to actually log in and comment. My sincere congratulations on this result and I wanted to thank you for the cool, calm, logical and reassuring presence you have always been on this board. So many time I read your comments and felt calmed down, and I have never actually articulated that so not only do you have my congratulations, but you have my heartfelt appreciation.

May your life continue to flow in the way you want it to.

Cheers and best wishes,

Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015

rp1954
Posts: 1872
Joined: Mon Jun 13, 2011 1:13 am

Re: 10 years and counting ...

Postby rp1954 » Thu Sep 29, 2022 10:42 pm

GGrreeaaaaattt! Congratulations to you OSM.

Thank you for all your contributions and special support on the forum.
I really do miss your posts.
Best wishes forever.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements

DarknessEmbraced
Posts: 3823
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 10 years and counting ...

Postby DarknessEmbraced » Sat Oct 01, 2022 6:18 am

That's wonderful! Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Kick'nAssCancer'sAss
Posts: 248
Joined: Tue Feb 25, 2014 4:38 pm

Re: 10 years and counting ...

Postby Kick'nAssCancer'sAss » Wed Oct 12, 2022 5:12 am

Congrats

It's great to see names that I recognize reach cancerversary milestones.
Hell, it's great to see any names reach cancerversary milestones.

Mike
53M Dx RC Halloween 2013
CT & BONE scan
MRI/T3N0M0 1 suspicious LN
5 wks chemo/rad
LAR open TME Feb 26/14
temp bag
0/24 nodes pCR/pathological
Folfox (8) Mar 28-Jul 4 /14
Aug/14 clear CT scan
Aug 27/14 reversal
Feb/15 clear scope
July/15 Feb/16 Feb/17 Feb/18 clear CT scans
Feb/18 clear scope
Sept 19 clear CT scan & DISCHARGED :P
Mar/23 clear scope
CEA 1.6 @ dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal
https://kickingasscancersass.blogspot.com/

testing765
Posts: 324
Joined: Tue Aug 19, 2014 9:41 am

Re: 10 years and counting ...

Postby testing765 » Wed Oct 19, 2022 5:29 pm

This is great news. You helped me during my journey too.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

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horizon
Posts: 1677
Joined: Tue Apr 12, 2011 10:10 pm

Re: 10 years and counting ...

Postby horizon » Sun Oct 30, 2022 5:40 pm

Huge congrats to you!!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?

User avatar
O Stoma Mia
Posts: 1721
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation.

11++ years and counting ...

Postby O Stoma Mia » Thu Sep 28, 2023 3:07 am

BUMP

Just checking in again to let my friends here know that I'm still around -- now it's 11 years since DX! It's hard to believe that so many years have gone by, but it's true...

See y'all again next year, same time, same station.

Take care ...

OSM

In 2022, O Stoma Mia wrote:Just checking in today to let you all know that this week will mark ten years since DX. I have now done my time and have received an "Honourable Discharge" from my oncologist in a document that includes the phrase, "complete remission". So ... this has meant no more visits with the oncologist, no more 3-month check-ups, and no more 6-month check-ups. Only periodic check-ups with my family doctor from time to time.

I would like to take this opportunity to thank all my friends here who supported me during the time when I was active on this Forum. This was a place where I could go whenever there was no other place to go.

Keep healthy, and best wishes for the onward journey!
Last edited by O Stoma Mia on Fri Sep 27, 2024 3:33 am, edited 1 time in total.

User avatar
CRguy
Posts: 10500
Joined: Sun Feb 10, 2008 6:00 pm

Re: 10 years and counting ...

Postby CRguy » Thu Sep 28, 2023 4:33 pm

Thanks for chekkin in OSM
always welcome here !

Cheers and best wishes on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: 10 years and counting ...

Postby Buxton » Fri Sep 29, 2023 3:55 am

Congratulations! We’ve been together for a long time. In a bit over a month I’ll reach my 10 year mark too. Thanks for all your support. X

Rock_Robster
Posts: 1038
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: 10 years and counting ...

Postby Rock_Robster » Fri Sep 29, 2023 4:49 am

Mazel!
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial

DarknessEmbraced
Posts: 3823
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 10 years and counting ...

Postby DarknessEmbraced » Sat Sep 30, 2023 10:45 am

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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