10 years and counting ...

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O Stoma Mia
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10 years and counting ...

Postby O Stoma Mia » Tue Sep 27, 2022 12:22 pm

Just checking in today to let you all know that this week will mark ten years since DX. I have now done my time and have received an "Honourable Discharge" from my oncologist in a document that includes the phrase, "complete remission". So ... this has meant no more visits with the oncologist, no more 3-month check-ups, and no more 6-month check-ups. Only periodic check-ups with my family doctor from time to time.

I would like to take this opportunity to thank all my friends here who supported me during the time when I was active on this Forum. This was a place where I could go whenever there was no other place to go.

Keep healthy, and best wishes for the onward journey!

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Location: Massachusetts

Re: 10 years and counting ...

Postby MadMed » Tue Sep 27, 2022 2:25 pm

OMG, congrats! What a relief it must be. Thank you for all your contributions to this site, by sharing you've help many.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

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Re: 10 years and counting ...

Postby CRguy » Tue Sep 27, 2022 3:34 pm

Mega cheers and congrats OSM
You have always been a supportive and helpful friend to all us ColonTalkers !!!!

Stay safe, be well and don't be a stranger

In Harmony on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Joined: Thu Oct 29, 2020 9:28 pm

Re: 10 years and counting ...

Postby Dennyp » Wed Sep 28, 2022 8:25 am

Congratulations, fantastic!
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node
4/21 CT NED
8/21 CT NED
11/21 CT NED
2/22 CT NED
5/22 CT NED
8/22 PET NED

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Joined: Thu Jan 03, 2013 11:44 pm

Re: 10 years and counting ...

Postby kiwiinoz » Wed Sep 28, 2022 6:46 pm


Amazing to hear that and I still sometimes lurk around here, but I thought after seeing this that I had to actually log in and comment. My sincere congratulations on this result and I wanted to thank you for the cool, calm, logical and reassuring presence you have always been on this board. So many time I read your comments and felt calmed down, and I have never actually articulated that so not only do you have my congratulations, but you have my heartfelt appreciation.

May your life continue to flow in the way you want it to.

Cheers and best wishes,

Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015

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Joined: Mon Jun 13, 2011 1:13 am

Re: 10 years and counting ...

Postby rp1954 » Thu Sep 29, 2022 10:42 pm

GGrreeaaaaattt! Congratulations to you OSM.

Thank you for all your contributions and special support on the forum.
I really do miss your posts.
Best wishes forever.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 10 years and counting ...

Postby DarknessEmbraced » Sat Oct 01, 2022 6:18 am

That's wonderful! Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Re: 10 years and counting ...

Postby Kick'nAssCancer'sAss » Wed Oct 12, 2022 5:12 am


It's great to see names that I recognize reach cancerversary milestones.
Hell, it's great to see any names reach cancerversary milestones.

53M Dx RC Halloween 2013
CT & BONE scan
MRI/T3N0M0 1 suspicious LN
5 wks chemo/rad
LAR open TME 2/26/14
temp bag
0/24 nodes pCR/pathological
Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 Feb/16 Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 Sept 19 clear CT scan
CEA 1.6 @ dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal

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Joined: Tue Aug 19, 2014 9:41 am

Re: 10 years and counting ...

Postby testing765 » Wed Oct 19, 2022 5:29 pm

This is great news. You helped me during my journey too.
male-age 44 at diagnosis
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

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Re: 10 years and counting ...

Postby horizon » Sun Oct 30, 2022 5:40 pm

Huge congrats to you!!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 11 years NED). Is this real life?

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