PET/CT tomorrow

[beach sunrise]

Yes, they look at me like WTF you doing IVC for and the other things. Drives me crazy. I know they know, they have to know but play they don't. Idk.
Now I keep my mouth shut about things I do because they just don't want to understand how potent some things are against cancer and kRAS.
My xeloda is high dose, which I believe has kept cancer at the gate for this long. I have no hand/foot stuff going on with dose I am at. When I upped the dose I started to see hand/foot so went back down a few 100mgs. The guy that took 5000mg, wow I'm impressed for sure!
I take melatonin along with celebrex based on study papers I found. Can't seem to go higher than 30mg T.I.D. though. It makes me slow going for sure.
I hope Germany is a GO! I will let you know.
Thanks for all the advice and yrs of research knowledge you bring forward.

[rp1954]

Yes, they look at me like WTF you doing IVC for and the other things. Drives me crazy. I know they know, they have to know but play they don't. Idk.

In my experience, at least as of ten years ago, most "conventional" doctors really didn't understand megavitamin C because they have been raised on the usual lies and ignorance, misinterpreted minimalist data, and avoidance of basic scientific concepts like blood concentration, duration or applicable markers. It's a dismissive formative and commercial bias that's hard been to overcome for several generations. When someone opens their mouth about Pauling's sideshow, it usually means they know nothing about the medical history and actual performance aspects of (mega)vitamin C.

The guy that took 5000mg, wow I'm impressed for sure!

Large guy vs you, 2 weeks on, one week off, his European style dose aimed at a maximum of 2500 mg/m2 on the normal 2 on/1 off schedule. That is roughly equal to 1667 mg/m2 daily at 2.0 m2 BSA but he probably had even more BSA for weight. You've smoked his "(American) forum record" by a long shot.

[beach sunrise]

I left the study papers with the surgeon.
My hospital was banking on me staying with them for SBRT. They gave me a hard time with releasing PET/CT scan but it should be in the portal by tomorrow morning. I will check after midnight before I go to bed. SMH

[DarknessEmbraced]

I hope that you're doing well and that you received your scan results. *hugs*I hope you received good news.

[beach sunrise]

Thank you, DE! I hope things with IBS are settled down for you.

[beach sunrise]

Update: CT scan Wed. with crc surgeon follow up after to go over CT.
Lung surgeon appt the 12th to go over CT.
Got the run around about getting copies of scans to send to Germany, smh. They will have them ready on the 12th.
I hope I am a canidate for Rolles. Fingers crossed on that one.
My hospital wants to start SBRT asap but it will just have to wait until I hear from Germany. They won't be happy about it but who cares, my cancer, my life.
Does anyone know if you have to show a vax card to cross the border into England then Germany?

[Jacques]

... Does anyone know if you have to show a vax card to cross the border into England then Germany?

Here is where you can get up-to-date COVID information on travel from England to Germany:

https://www.kayak.com/travel-restrictions/germany?origin=GB

However, be sure to note the following disclaimer in the above link:

"Currently, no countries are considered as a virus variant area in the German list, but may certainly be subject to change at any time.".

Thus, before you make final plans to travel to Germany via England you need to check the link below to see if anything has changed lately:
https://www.rki.de/EN/Content/infections/epidemiology/outbreaks/COVID-19/COVID19.html

Good luck!

[beach sunrise]

Thank you Jacques!
I really appreciate it.
It amazes me sometimes how yall find things and fast.

[beach sunrise]

Update: CT scan got pushed back 1 1/2 weeks due to contrast issues so scan is tomorrow. We will find out if hammering lung node with vitamin D3, vitamin C, NAC, Bromalain, ect helps the SUV go down. SUV was 1.3.
Lung surgeon wasn't to happy to hear I contacted Germany about Rolles. Whatever!
I will pick up CD of PET/CT scan tomorrow to send to Germany. I really hope I will be a candidate considering USA options not as good % wise and risk/benefit.
Signatera still showing neg. Will redo on the 15th to make sure. I asked about the test not being good at detecting cancer with lung mets maybe. Answer was they will get back with me. Haven't got a response yet.

[Jacques]

... Sognatera still showing neg. Will redo on the 15th to make sure. I asked about the test not being good at detecting cancer with lung mets maybe. Answer was they will get back with me. Haven't got a response yet.

Did you mean Signatera™ ?

[beach sunrise]

Yes, Signatera. Goodness
I wonder if it picks up on CRC lung mets? I am showing SUV of 1.3 on a 5mm lung node, CEA has risen but Signatera shows neg.

[MadMed]

According to my Onc, it is not good for lung Mets. Another crc patient of theirs was negative on Signatera but showed lung Mets on CT. She stopped sending mine after that.

[beach sunrise]

Thank you, Madmed!
Do you have the study papers or can you get them from your onc?

[MadMed]

I'll ask her for more details or papers. In this particular case, it was another patient of hers that had a lung recurrence while still negative on Signatera.
There seems to be indication out there:
https://ascopubs.org/doi/abs/10.1200/PO ... nalCode=po

CONCLUSION
Patients with lung-only and peritoneum-only metastatic disease have significantly lower levels of ctDNA, suggesting decreased clinical sensitivity for subclonal variants.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9390824/

From a clinical standpoint, ctDNA detection can vary by stage, metastatic burden, and the site of metastases.2-5 Kagawa et al6 observed that CRC patients with liver metastases were associated with increased ctDNA detection rates compared with the patients with lung and peritoneal metastases.

[beach sunrise]

Thank you so much, Madmed!
PET/CT scan is off the Germany.
Now we wait to see if I am a candidate!