PET/CT tomorrow

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beach sunrise
Posts: 724
Joined: Thu Mar 05, 2020 7:14 pm

Re: PET/CT tomorrow

Postby beach sunrise » Sun Nov 20, 2022 1:11 am

Yes, they look at me like WTF you doing IVC for and the other things. Drives me crazy. I know they know, they have to know but play they don't. Idk.
Now I keep my mouth shut about things I do because they just don't want to understand how potent some things are against cancer and kRAS.
My xeloda is high dose, which I believe has kept cancer at the gate for this long. I have no hand/foot stuff going on with dose I am at. When I upped the dose I started to see hand/foot so went back down a few 100mgs. The guy that took 5000mg, wow I'm impressed for sure!
I take melatonin along with celebrex based on study papers I found. Can't seem to go higher than 30mg T.I.D. though. It makes me slow going for sure.
I hope Germany is a GO! I will let you know.
Thanks for all the advice and yrs of research knowledge you bring forward.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

rp1954
Posts: 1621
Joined: Mon Jun 13, 2011 1:13 am

Re: PET/CT tomorrow

Postby rp1954 » Sun Nov 20, 2022 2:08 am

beach sunrise wrote:Yes, they look at me like WTF you doing IVC for and the other things. Drives me crazy. I know they know, they have to know but play they don't. Idk.

In my experience, at least as of ten years ago, most "conventional" doctors really didn't understand megavitamin C because they have been raised on the usual lies and ignorance, misinterpreted minimalist data, and avoidance of basic scientific concepts like blood concentration, duration or applicable markers. It's a dismissive formative and commercial bias that's hard been to overcome for several generations. When someone opens their mouth about Pauling's sideshow, it usually means they know nothing about the medical history and actual performance aspects of (mega)vitamin C.

The guy that took 5000mg, wow I'm impressed for sure!

Large guy vs you, 2 weeks on, one week off, his European style dose aimed at a maximum of 2500 mg/m2 on the normal 2 on/1 off schedule. That is roughly equal to 1667 mg/m2 daily at 2.0 m2 BSA but he probably had even more BSA for weight. You've smoked his "(American) forum record" by a long shot.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

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beach sunrise
Posts: 724
Joined: Thu Mar 05, 2020 7:14 pm

Re: PET/CT tomorrow

Postby beach sunrise » Sun Nov 20, 2022 10:19 pm

I left the study papers with the surgeon.
My hospital was banking on me staying with them for SBRT. They gave me a hard time with releasing PET/CT scan but it should be in the portal by tomorrow morning. I will check after midnight before I go to bed. SMH
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

DarknessEmbraced
Posts: 3727
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: PET/CT tomorrow

Postby DarknessEmbraced » Sat Nov 26, 2022 12:03 pm

I hope that you're doing well and that you received your scan results. *hugs*I hope you received good news.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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beach sunrise
Posts: 724
Joined: Thu Mar 05, 2020 7:14 pm

Re: PET/CT tomorrow

Postby beach sunrise » Sat Nov 26, 2022 8:32 pm

Thank you, DE! I hope things with IBS are settled down for you.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


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