Enema’s stopped working?

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MaryannW
Posts: 76
Joined: Thu Jun 04, 2015 7:32 am

Enema’s stopped working?

Postby MaryannW » Tue Sep 06, 2022 5:14 am

Hello again. I’m 7 years NED low rectal cancer, Chemo, radiation, UlAR, ileostomy and reversal. Tried for 3 years to manage Low Anterior Resection Syndrome before starting irrigation daily. Now, after more than 3 years, I’m ending up with bloating and gas, and breakthrough toilet trips late afternoon/early evening. I’ve had all the tests and all are clear thank goodness. My question:

Have warm water tap enemas ever stopped working for long term users?
Dx Feb 2015 RC Stage 2a
5.5 weeks Xelolda + Radiation
ULAR 25.6.2015
6 Rounds mop up Xeloda
Reversal 7 April 2016
NED & living with LARS

Claudine
Posts: 727
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Enema’s stopped working?

Postby Claudine » Tue Sep 06, 2022 2:04 pm

Good thing the tests came back clear! I can't help you with your question, but am very interested since my husband is likely to suffer from LARS very soon and daily enemas have been presented as a way to alleviate some of the symptoms.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 vertebrae 04/18; left adrenal gland & small lung nodules 03/19;
rectum 02/22 (pT3 pN0 stage 2A); L3 vertebrae 09/22

Surgeries: intestinal resection 05/18 (no cancer - Crohn's); adrenalectomy 02/20;
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; reversal 09/22;
L2-L3-L4-L5 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri + Avastin 03/19 - 01/20;
adjuvant chemoradiation (Xeloda) 06/22

MaryannW
Posts: 76
Joined: Thu Jun 04, 2015 7:32 am

Re: Enema’s stopped working?

Postby MaryannW » Tue Sep 06, 2022 3:49 pm

Thank you, yes it is a relief the tests were normal. I also have to follow up with a colonoscopy in the next few months, that might give them more information as the CT won’t pick up cancer in the mucosal colon. I used to sing the praises of daily warm water enemas…now I’m wondering if they’ve stopped working. Your husband will need to wait for a while before doing them, and get his surgeon’s ok to make sure they’re safe for him to do. It’s not a cure all but it did mean I wasn’t sitting on the toilet all day. Now, well I am getting back to multiple bowel movements despite the enema and horrible and painful bloating and gas in the evening. So I’m not sure if the enemas have stopped working. No one seems to be able to help answer that question.
Dx Feb 2015 RC Stage 2a
5.5 weeks Xelolda + Radiation
ULAR 25.6.2015
6 Rounds mop up Xeloda
Reversal 7 April 2016
NED & living with LARS


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