Re: Update after 2nd opinion discussion
Posted: Tue Sep 20, 2022 9:02 am
Hello,
Everyone, where too start. So after my first immunotherapy session the next day (Saturday) I needed to get a blood transfusion because I was low. Then later that night I was bleeding from my bottom again alot and honestly it most likely was mixture of blood and mucus and drainage stuff....So I went to the ER spent Saturday to Monday there for them to monitor my blood levels. They also did a CT Scan and the tumor in pelvic is causing issues with bladder and fistulas. They didn't do much other then at least identify that I have fistula from tumor to anal region that's the two bumps I keep feeling, nothing can be done surgically right now.
Spoke with my new doctor at UM and he says immunotherapy takes are 4th treatment to see results and determine if it is making any improvements so will be trying my best to survive until then. It's been hard, I can't control my peeing anymore, it just comes out when it wants to. I have a little urinal I pee in if needed or when I am just tired and sleepy I just pee in my depends diaper which has worked, but it get's soaked at night and I have to get up and change it all dry up and back to the same routine.
I am at my wits end with the peeing myself, but glad its coming out either way. I Prefer to control and pee, but the pelvic tumor is a destructive force right now in my pelvic and affecting everything. I am so skinny, 121LBs, I am having a hard time gaining weight. Even though I am not eating exactly the way I use to, I still eat enough to gain some weigh. I don't know what to do here about gaining weight.
By the way I am always COLD. Anyone else have this problem? I am always always cold, my finger are freezing my hands shoulders, I am always covering. I feel like I am just wasting away guys. I just took a boost this morning, but I sent a message to my doctor about if there are any multivitamins I can take that won't interfere with treatment, I need to start gaining some weigh to get strength.
Well that is my update for now.
Riki
Everyone, where too start. So after my first immunotherapy session the next day (Saturday) I needed to get a blood transfusion because I was low. Then later that night I was bleeding from my bottom again alot and honestly it most likely was mixture of blood and mucus and drainage stuff....So I went to the ER spent Saturday to Monday there for them to monitor my blood levels. They also did a CT Scan and the tumor in pelvic is causing issues with bladder and fistulas. They didn't do much other then at least identify that I have fistula from tumor to anal region that's the two bumps I keep feeling, nothing can be done surgically right now.
Spoke with my new doctor at UM and he says immunotherapy takes are 4th treatment to see results and determine if it is making any improvements so will be trying my best to survive until then. It's been hard, I can't control my peeing anymore, it just comes out when it wants to. I have a little urinal I pee in if needed or when I am just tired and sleepy I just pee in my depends diaper which has worked, but it get's soaked at night and I have to get up and change it all dry up and back to the same routine.
I am at my wits end with the peeing myself, but glad its coming out either way. I Prefer to control and pee, but the pelvic tumor is a destructive force right now in my pelvic and affecting everything. I am so skinny, 121LBs, I am having a hard time gaining weight. Even though I am not eating exactly the way I use to, I still eat enough to gain some weigh. I don't know what to do here about gaining weight.
By the way I am always COLD. Anyone else have this problem? I am always always cold, my finger are freezing my hands shoulders, I am always covering. I feel like I am just wasting away guys. I just took a boost this morning, but I sent a message to my doctor about if there are any multivitamins I can take that won't interfere with treatment, I need to start gaining some weigh to get strength.
Well that is my update for now.
Riki
