The Colon Club

Hello Guys,


I got some good news and I want to just ball out in tears while typing this. I have been approved for
Pembrolizumab Ipiliumab Nivolumab, my tumor mutation burden has increased significantly since May and I don't know why Cleveland Clinic never checked, i just feel like they checked out on me. They never did a Liquid Biopsy on me and the new University of Miami did.

My TMB increased to 11.85 so I qualify for Keytruda etc...

OMG OMG..I pray this cures me. Just the other day I was talking about hospice care.

Please pray for me to be successful with this like our other friends on here.

Best Regards,
Riki

Great to hear this! I hope you are rewarded for your courage and perseverance. Good luck!

This is awesome Riki, Great news! Immunotherapy should be effective and easier to tolerate than chemo. I’m so happy for this.

This is SO EXCITING!!!! Very happy for you Riki, and your family

congrats.

... never checked, i just feel like they checked out on me.

From at least 2 out 3 for us, to that one doctor in the world that worked something important out.
Never give up. You have to look out for, and advocate for, yourself.

very happy for you RIki. Each one of us have place in this earth and you deserve one !!!! Best prayers & wishes
Thanks

That's great!!

Riki,

This is wonderful news. I am so happy for you and your family. I am glad that you pursued other options and didn't take no for an answer. IMO, it seems that some doctors have a tendency to "check out" on patients that have metastasis. It's like they are ready to move on to the next patient. SMH!

I wish you all the best with your clinical trial. Please continue to let us know how you are doing.

Don't give up, my friend! Keep fighting! All of your friends here on this forum are with you on your journey to NED!


Paige

Rikimaroo wrote:Please pray for me to be successful with this like our other friends on here.

DONE !

Cheers and best wishes moving forward on the Journey
CRguy

Thank you everyone kindly for all the lovely comments. PCCR it’s a good question to ask after I do my first PET scan with UM. We can review then any plans.

That would be great for any lung Mets I presume.

Thanks
Riki

Best news ever, Riki!!!
I am so so so happy you found a working plan. Way to go researching and advocating for yourself.
Keep us in the loop with progress.

Oh, Riki, so happy for you! Sending prayers and positive thoughts your way from NJ. Xoxo.

Everyone just wanted to give an update I got my first immunotherapy yesterday and all went well no issues whatsoever

Only issue I have right now is the fact that I’m bleeding through my bottom because of a tumor which most likely made a fistula will wait for the doctor to let me know we have to do a scan.
I have an MRI scheduled soon

Has anyone done a blood transfusion before I’m a little scared never done it before is it pretty easy did you use your port

That's wonderful news! I hope all goes well for you.

Great news!