Scan news

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
beach sunrise
Posts: 694
Joined: Thu Mar 05, 2020 7:14 pm

Scan news

Postby beach sunrise » Wed Aug 17, 2022 6:00 pm

All clear in abdomen and pelvis.
The lymphnode in right lung that has been there for 3yrs (at dx) has grown from 3x4mm to 4x6mm since last scan in April. So ya, worrisome. PET/CT scan in 2 months to keep an eye on it.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 402
Joined: Sun Jun 28, 2020 4:44 pm

Re: Scan news

Postby prayingforccr » Thu Aug 18, 2022 3:24 pm

Keep on, keepin on beachsunrise.

I’m rooting for you.

I know you’ll map out all options and pursue the best ones.

Would you consider cryoablation?
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

User avatar
beach sunrise
Posts: 694
Joined: Thu Mar 05, 2020 7:14 pm

Re: Scan news

Postby beach sunrise » Thu Aug 18, 2022 4:21 pm

I asked for surgery again and determine under microscope testing if a met or not. He just shook his head. He said most often a biopsy is needed. I said NO WAY as it can seed cancer.
Waiting on more info about whole biopsy vs needle biopsy.
The thoracic surgeon is looking at scan and will give me his opinion. I got to be ready to state my concerns and wishes to get the thing out of there. And of course I will be getting 2nd and 3rd opinions to compare.
I don't know anything about cryoblation?
Like you, I'm in new territory!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 402
Joined: Sun Jun 28, 2020 4:44 pm

Re: Scan news

Postby prayingforccr » Thu Aug 18, 2022 5:08 pm

beach sunrise wrote:I asked for surgery again and determine under microscope testing if a met or not. He just shook his head. He said most often a biopsy is needed. I said NO WAY as it can seed cancer.
Waiting on more info about whole biopsy vs needle biopsy.
The thoracic surgeon is looking at scan and will give me his opinion. I got to be ready to state my concerns and wishes to get the thing out of there. And of course I will be getting 2nd and 3rd opinions to compare.
I don't know anything about cryoblation?
Like you, I'm in new territory!


If it is a solitary met (granted it’s the microscopic leftovers that we cant see that tend to keep us up at night), please research cryoablation. I will dm you an excellent, young surgeon I spoke with about mopping up/whacking my nodules as they progress.

This is the route I would choose, but these decisions are deeply personal.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

Thedruid
Posts: 7
Joined: Tue Aug 21, 2018 1:49 pm
Facebook Username: theDruid

Re: Scan news

Postby Thedruid » Thu Aug 18, 2022 8:03 pm

Hello, Beachsunrise

Some kind of ablation could be a ggod idea. Of course this is a personal decision, but no matter if it is a met or not, it will get completely killed by the ablation - with possible little impact, depending of the location.

I had one ablation on the liver for a much bigger mass 2 years ago and I am clean until now.

I wish. the best for you on treating this lymphnode

theDruid
_____________________________________
Diagnosed 07/16/18, age 43
Colon Resection 03/08/18,
Stage 3B colon cancer, T3N2aMO
Lymph-vascular invasion confirmed
6/16 lymph nodes
Port installed in 08/25/18
FOLFOX started in 08/29/18 - finished 2/5/2019
Stage 4
Liver met found in 01/2020. RadioAblation in 02/2020

User avatar
beach sunrise
Posts: 694
Joined: Thu Mar 05, 2020 7:14 pm

Re: Scan news

Postby beach sunrise » Fri Aug 19, 2022 12:52 am

Thank you both!
I am taking notes and researching more to get ready for consult coming up.
Anything else I need to know please chime in.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Claudine
Posts: 727
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Scan news

Postby Claudine » Fri Aug 19, 2022 8:47 am

How does treating a lymph node in the lung differ from treating a lung metastasis? Is it the same approach? If it is, I would say that you should indeed look into cryoablation, which seems to be working well for solitary lung mets. Keep us posted on what you find out!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 vertebrae 04/18; left adrenal gland & small lung nodules 03/19;
rectum 02/22 (pT3 pN0 stage 2A); L3 vertebrae 09/22

Surgeries: intestinal resection 05/18 (no cancer - Crohn's); adrenalectomy 02/20;
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; reversal 09/22;
L2-L3-L4-L5 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri + Avastin 03/19 - 01/20;
adjuvant chemoradiation (Xeloda) 06/22

DarknessEmbraced
Posts: 3713
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scan news

Postby DarknessEmbraced » Sat Aug 20, 2022 7:15 am

I'm sorry that lymph node is growing. I hope it will stop growing. *hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
beach sunrise
Posts: 694
Joined: Thu Mar 05, 2020 7:14 pm

Re: Scan news

Postby beach sunrise » Mon Aug 22, 2022 8:07 pm

Thank you, DE,
I've been telling them for 2 yrs that node has got to be a met becuase CEA has always been high.
Onto 2nd-3rd opinions to find someone to get this thing out to look at it under the microscope!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

DarknessEmbraced
Posts: 3713
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scan news

Postby DarknessEmbraced » Sat Aug 27, 2022 11:38 am

I hope you can find someone who will biopsy so you can find out for certain.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

rp1954
Posts: 1605
Joined: Mon Jun 13, 2011 1:13 am

Re: Scan news

Postby rp1954 » Sun Aug 28, 2022 7:56 am

Without being up to date on various options with hi-tech VATS flavors now, I would favor surgical biopsy - whole removal.
Both for the extra cancer and cellular information, some certainties, with potentially curative surgery.
At least locally, since beach sunrise uses a potent daily treatment beyond ADAPT+++, that has potential advantages against new seeds circulating.
Since my wife had a large conglomerated LN mass to deal with, over 14x above minimum for our sample half, the post doc lab owner commented that it was pretty beat up chemowise (daily UFT+++) but enough survivor cells to do kill tests.

10-12 years ago liver/lung ablations here were really pallitive care, good for 1-4 tries and then usually SOL, lung ablation being more dicey.
I don't know their current batting averages.
What little information I saw from others showed that ablation drove the inflammation and cancer markers wild and frequently recurred.

Many experienced hands here recognize the problem to find, and get, the true best techniques. Like Rolle's laser lung surgery in Germany 12 yrs ago, over VATS in US for numerous mets that would be inoperable in the US. The other problem is that surgeons often dismiss conditions as inoperable because they don't recognize advanced treatment efforts beyond their training e.g. we took pains to stop new LN mets via daily tx with extra aggressive chemistry and so we worried less about other met sites frustrating the benefit of a locally curative surgery. So when our 2nd surgery surgeon panicked over the metastatic nature of the conglomerated LN removed, we were less concerned because of the demonstrated daily chemo, hell or high water.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

User avatar
beach sunrise
Posts: 694
Joined: Thu Mar 05, 2020 7:14 pm

Re: Scan news

Postby beach sunrise » Tue Sep 06, 2022 4:47 pm

Thank you everyone!
Yes. Thank goodness I am on a very potent regiment of ADAPT+++ (Rx's and naturals)! It has gotten me 2 1/2 yrs free and clear with no side effects at all.
PET/CT scheduled in 10 days to get a better understanding of what I am dealing with as far as lung node goes. I let them know I am interested in whole biopsy and need more info from thoracic surgeon on his knowledge and experience with performing it.
Oncologist appt next week then powwow again after PET/CT scan for a plan. Then appt with ND for a plan also.
Rp, your wife still amazes me how determined she was to beat stage IV and did with mild chemo/naturals and 2 surgeries. What a testiment to defeating cancer!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

DarknessEmbraced
Posts: 3713
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scan news

Postby DarknessEmbraced » Sat Sep 10, 2022 7:38 am

I hope everything turns out benign for you. *hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 4 guests