High Dose IVC

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beach sunrise
Posts: 694
Joined: Thu Mar 05, 2020 7:14 pm

High Dose IVC

Postby beach sunrise » Mon Aug 15, 2022 7:24 pm

I have had 225 IVC infusions (75g) over 2 1/2 yrs. I really credit no side effects from folfox and current xeloda to IVC and also NED on scans even though CEA is still high but the rest of bloodwork is fine. IVC is helping to beat down where ever it has been trying to set up camp so far.
Scan with contrast on Wed along with expanded blood panels. Fingers crossed.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

rp1954
Posts: 1605
Joined: Mon Jun 13, 2011 1:13 am

Re: High Dose IVC

Postby rp1954 » Fri Aug 19, 2022 2:46 pm

wow two years of IV vitamin C. Time sure goes by fast.
At two IV vitamin C per week, the total count adds up.
Glad it prevented the xeloda hand foot syndrome so well plus all its other benefits.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

prayingforccr
Posts: 402
Joined: Sun Jun 28, 2020 4:44 pm

Re: High Dose IVC

Postby prayingforccr » Fri Aug 19, 2022 2:53 pm

beach sunrise wrote:I have had 225 IVC infusions (75g) over 2 1/2 yrs. I really credit no side effects from folfox and current xeloda to IVC and also NED on scans even though CEA is still high but the rest of bloodwork is fine. IVC is helping to beat down where ever it has been trying to set up camp so far.
Scan with contrast on Wed along with expanded blood panels. Fingers crossed.


That’s a ton of money.

But you can’t take it with you when you’re dead.

Maybe Ill start three a weeks once I begin my sbrt/immuno in a couple of weeks
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

User avatar
beach sunrise
Posts: 694
Joined: Thu Mar 05, 2020 7:14 pm

Re: High Dose IVC

Postby beach sunrise » Fri Aug 19, 2022 5:56 pm

Thanks guys!
Yes, it is expensive especially now with everything else so expensive. Here it is $150 per infusion including the nurse coming to my house. So, really it's so worth it to go about my day and have no real appts to plan for. My whole protocol is home based.
Pccr, IVC can only help especially if kRAS, not harmful one bit only beneficial. If you do it let us know please.
Time sure does fly. Sometimes I just sit back and go "WOW." Thank you Rp.
Great point, Claudine! I will def ask the difference between lymphnode vs met!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 402
Joined: Sun Jun 28, 2020 4:44 pm

Re: High Dose IVC

Postby prayingforccr » Fri Aug 19, 2022 6:18 pm

beach sunrise wrote:Thanks guys!
Yes, it is expensive especially now with everything else so expensive. Here it is $150 per infusion including the nurse coming to my house. So, really it's so worth it to go about my day and have no real appts to plan for. My whole protocol is home based.
Pccr, IVC can only help especially if kRAS, not harmful one bit only beneficial. If you do it let us know please.
Time sure does fly. Sometimes I just sit back and go "WOW." Thank you Rp.
Great point, Claudine! I will def ask the difference between lymphnode vs met!



Get the met cryoablated once and for all
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy


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