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Re: Beginning TIL Therapy at NIH Next Week
Posted: Sat Mar 04, 2023 11:15 am
by claudine
Where’s the dancing emoji?? So happy for you PFCCR!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Thu Mar 09, 2023 8:29 pm
by Thedruid
Hello, PCCR
I am very very happy for the outcome of your treatment. I hope those TILs continue the fight for a loooooong time and that you start getting some NEDs in the near future ! Your news made my day !
TheDruid
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sat Mar 11, 2023 4:05 pm
by Irishmum
WOW!! Congratulations @prayingforccr!
You have given me and I'm sure many others a reason for hope and optimism. Thank you for your willingness to share your story. I am enrolled in a clinical trial in Pittsburg. I am due to receive my TIL infusion in May. (fingers and toes are crossed) How intense was the time during the admitted hospital stay? Any tips you can share?
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sun Mar 12, 2023 9:30 am
by Irishmum
@prayingforccr-
Thank you! You are right-I have so many questions! I can't direct message you as it says I have not posted enough. I wonder if you can direct message me and I would then be able to respond? The trial I am enrolled in is at Allegheny which is also in Pittsburgh. I will have the IL-2 as well and Keytruda infusions following the Til infusion.
https://clinicaltrials.gov/ct2/show/NCT05576077
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sun Mar 12, 2023 9:35 am
by Irishmum
I had the Apheresis procedure last week. Is that different than Leukapherisis? The NCI trial you are in sounds almost exactly like the one I am in. Do you know if there are differences?
Re: Beginning TIL Therapy at NIH Next Week
Posted: Wed May 10, 2023 12:23 pm
by Jacques
Good luck on your scans this week. When you get a chance, please let us know what you find out.
Re: Beginning TIL Therapy at NIH Next Week
Posted: Thu May 11, 2023 12:38 pm
by IDF108
Congratulations!! Prayed for you last night
Very happy!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Thu May 11, 2023 1:38 pm
by claudine
Re: Beginning TIL Therapy at NIH Next Week
Posted: Thu May 11, 2023 6:17 pm
by Markdale
Well done, very impressive results. You didn’t give up and found a treatment that gave results. I’m all for following the standard of care at the start but for stage 4 after that we need something more. Good work
Re: Beginning TIL Therapy at NIH Next Week
Posted: Fri May 12, 2023 10:16 am
by MadMed
This is so awesome pccr, I am truly happy for you!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Wed May 17, 2023 10:38 pm
by nmorgen
Congratulations! I am so happy for you!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Fri May 19, 2023 8:47 am
by rnb828
This is such wonderful news! Thank you for sharing your experience with us. This gives so many tremendous hope & encouragement.
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sun Jun 04, 2023 2:28 pm
by beach sunrise
Even though it was a hard therapy. You did it and I believe it will continue to work.
Re: Beginning TIL Therapy at NIH Next Week
Posted: Mon Jun 05, 2023 1:31 am
by Mtnrspctwfe
So glad you’re getting great results!!! Happy for you!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Tue Jun 06, 2023 12:30 pm
by beach sunrise
Thank you, pccr! It feels good to have so much support.
