prayingforccr wrote:I’m blessed in that Ive had the financial resources, time, researching skills, decent scientific backround, tenacity and access to unbelievable doctors and treatments to get to this current state....
Dr D indicated, “ The good news for you is that your TIL infusion bag was HIGHLY heterogeneous with a large diversity of T-cell clones. This allows for a multi-pronged approach where the cancer will still be defeated even if it is able to evade one of those clones/targets.“
Not 100% sure on what this means, and if it is such a benefit, then why not prepare them that way for everyone?
prayingforccr wrote:2000 mg fenbendazole dissolved in scant dmso and topped with grapefruit juice
3000 mg liposomal vitamin c
2000 mg liposomal curcumin
25 grams full spectrum cbd oil
1/2 teaspoon black seed oil (yuck)
200mg cimetidine taken twice a day hours AWAY from other supplements
2 teaspoons mushroom extract powder (Lion's Mane, Reishi, Cordyceps, Maitake, Shiitake, Turkey Tail, Chaga) added to morning coffee
5 clicks ivermectin dissolved in vodka topped with grapefruit juice every three days.
I am intentionally NOT doing the artemisinin protocol because the sodium butyrate really reduced my wbc count and I DO NOT want to wipe out any of the tils.
I had stopped ALL supplements/protocols 8 weeks prior to, during and 8 weeks after my TIL therapy at nih.
8 week scans were very promising (lung lesions reduced 40% linearly/80% volume) so I am resuming the protocol to kill these things once and for all.
prayingforccr wrote:rp1954 wrote:prayingforccr wrote:I’m blessed in that Ive had the financial resources, time, researching skills, decent scientific backround, tenacity and access to unbelievable doctors and treatments to get to this current state....
Dr D indicated, “ The good news for you is that your TIL infusion bag was HIGHLY heterogeneous with a large diversity of T-cell clones. This allows for a multi-pronged approach where the cancer will still be defeated even if it is able to evade one of those clones/targets.“
Not 100% sure on what this means, and if it is such a benefit, then why not prepare them that way for everyone?
Have you ever asked them for all your blood tests, especially the immune assays? I would.
You can probably learn to decode them with a little professional help, reading, and practice.
Do you have the past and future schedule of blood draws?prayingforccr wrote:2000 mg fenbendazole dissolved in scant dmso and topped with grapefruit juice
3000 mg liposomal vitamin c
2000 mg liposomal curcumin
25 grams full spectrum cbd oil
1/2 teaspoon black seed oil (yuck)
200mg cimetidine taken twice a day hours AWAY from other supplements
2 teaspoons mushroom extract powder (Lion's Mane, Reishi, Cordyceps, Maitake, Shiitake, Turkey Tail, Chaga) added to morning coffee
5 clicks ivermectin dissolved in vodka topped with grapefruit juice every three days.
I am intentionally NOT doing the artemisinin protocol because the sodium butyrate really reduced my wbc count and I DO NOT want to wipe out any of the tils.
I had stopped ALL supplements/protocols 8 weeks prior to, during and 8 weeks after my TIL therapy at nih.
8 week scans were very promising (lung lesions reduced 40% linearly/80% volume) so I am resuming the protocol to kill these things once and for all.
In your position, if they are doing "big assays" every 3 or 6 months, it might create some opportunities to tune your stack, especially if you can squeeze in some of your own lab tests on whatever budget.
I’m headed up to nih aug 25-28
If you know my history, you know I am very much anti SOC unless its a last resort (and even not then) and am not afraid to explore alternatives.
That being said, I am not doing anything that might deplete/interfere with the tils.
I trust that they will continue to work, but my mind says it’s too good to be true.
The artemisinin protocol wiped out my wbc count because of the sodium butyrate, so while I consider that to be very effective, I am not screwing with this.
I’m living as if I’m cancer free, but the back of my mind is always afraid that the shoe is going to drop.
I see myself in bonus time and am very grateful.
I’m regretfully proud of how Ive conducted myself.
Ive had no choice.
I’ve made the best decisions for me and have been extraordinarily blessed in the care given to me.
I remember openly bawling/crying when Dr Stephanie Goff and Dr Aaron Dinerman accepted me into the til trial.
It was literally my only chance.
I will ask them for the immune assays if it might benefit the board.
prayingforccr wrote:... I’m going to be asking some questions aug 25-27 when I head on back up to maryland for scans.
Death receptor 5 is a member of the tumor necrosis factor receptor superfamily (TNFrSF) and is often expressed on the surface of cancer cells. Strong activation of the DR5 pathway requires multiple receptors to be cross-linked simultaneously by an antibody or other binding agent to create an apoptotic death signal to the cell. Unlike traditional IgG antibodies, IGM-8444 has 10 binding units, giving it an advantage to cross-link multiple DR5 receptors at once, sending a stronger signal to cause cancer cell death.
Reference : https://igmbio.com/pipeline/igm-8444/
prayingforCCR wrote:... I will ask them for the immune assays if it might benefit the board...
In clinical trials, the therapy seems to work more than 80 percent of the time.
prayingforccr wrote:There is also discussion of repeating the entire treatment.
prayingforccr wrote:Markdale wrote:Hey preyingforccr, sorry it hasn’t worked how we all hoped. You still have options, it’s great they’re still willing to operate. Hope you’re feeling well
The fact that they are willing to repeat the entire procedure is astounding.
omg was that a difficult, terrible experience and not one I am at anxious to repeat.
But I would give it one, last shot.
prayingforccr wrote:CEA has increased every three months from 1.2 to 1.6 to 2.0 to now 4.2
Not good.
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