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Re: Beginning TIL Therapy at NIH Next Week
Posted: Sat Jul 30, 2022 7:10 pm
by MadMed
Outstanding pccr, good luck, this is a good plan. I hope for you and all of us this works. Please let us know how it goes, we’re all rooting for you.
Re: Beginning TIL Therapy at NIH Next Week
Posted: Tue Aug 02, 2022 6:29 pm
by Markdale
Hope you’re recovering well from the surgery. Treatment sounds very interesting, really hope it works
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sat Aug 06, 2022 7:59 am
by DarknessEmbraced
I hope all goes well for you. *hugs*
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sat Aug 06, 2022 4:56 pm
by MadMed
Good to see things progressing pccr. This is a good plan.
Re: Beginning TIL Therapy at NIH Next Week
Posted: Mon Aug 08, 2022 8:35 pm
by Thedruid
I am really interested on knowing more about this treatment, PrayingforCCR. As it uses keytruda during the treatment, should I understand this treatment is valid only for MSI people ?
Thanks,
theDruid
Re: Beginning TIL Therapy at NIH Next Week
Posted: Mon Aug 08, 2022 9:08 pm
by beach sunrise
Been thinking about you pccr!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Fri Aug 12, 2022 5:19 pm
by ginabeewell
I hadn’t realized immunotherapy was available for patients who weren’t MSI, unless they had a high tumor mutation rate.
Really interested to follow this and hoping for all the best for you!!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sat Aug 13, 2022 11:04 am
by Luna18
prayingforccr wrote:ginabeewell wrote:I hadn’t realized immunotherapy was available for patients who weren’t MSI, unless they had a high tumor mutation rate.
Really interested to follow this and hoping for all the best for you!!
Mass Gen is doing a clinical trial using sbrt/opdivo/yervoy for mss
https://clinicaltrials.gov/ct2/show/NCT ... w=2&rank=1Will it work? Who knows?
I think between the two treatments (first one at nyu/weill beginning in two weeks, and the other at nih later in the fall) that I have a real shot at remission.
I also think you have a real shot at remission! Please, keep sharing with us. Sending you love ,
Best wishes,
Re: Beginning TIL Therapy at NIH Next Week
Posted: Mon Aug 15, 2022 5:25 pm
by beach sunrise
Proud of you for staying ahead, being proactive!
Keep your strong body and mind.
Re: Beginning TIL Therapy at NIH Next Week
Posted: Fri Aug 26, 2022 7:30 pm
by MadMed
Good luck ccr, I’ll be praying and hoping. This should work!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Sat Aug 27, 2022 10:03 am
by claudine
Rooting for you, it’s the future of cancer treatment! You worked hard to make this yours instead of SOC!
Re: Beginning TIL Therapy at NIH Next Week
Posted: Wed Aug 31, 2022 5:17 pm
by Rikimaroo
Glad to hear this. SOC sucks. I hope this works for you
Re: Beginning TIL Therapy at NIH Next Week
Posted: Tue Sep 06, 2022 5:20 pm
by beach sunrise
Great attitude going forward!
I am always cheering for you.
Re: Beginning TIL Therapy at NIH Next Week
Posted: Wed Sep 07, 2022 8:21 pm
by beach sunrise
I will wave as you fly over my house, ha
Re: Beginning TIL Therapy at NIH Next Week
Posted: Wed Sep 21, 2022 2:45 pm
by MadMed
Ugh sorry this got complicated. I think you want to root for TIL regardless of opdivo/yervoy.
If opdivo/yervoy give you good results/disease control great, that may get you to a point of getting to YAG or VATS and remove the cancer through other means.
If opdivo/yervoy can't control the disease, TIL has to work.
In my mind, the key is time with QoL. Ideally getting rid of the cancer would be optimal, short of that, getting a tolerable control is a good thing.