Children Monitoring

Please feel free to read, share your thoughts, your stories and connect with others!
saltygirl
Posts: 69
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Children Monitoring

Postby saltygirl » Sun Jun 19, 2022 2:38 pm

My daughter is heading for 1st colonoscopy and endoscopy at the Stanford hospital. Hope they will do a good job. She is a college student. My genetic testing didn’t show any known genes. But I think that doesn’t mean anything. I know both my kids should have regular colonoscopy / 5 years schedule.

aquarian_asian
Posts: 28
Joined: Wed Jul 07, 2021 7:07 am

Re: Children Monitoring

Postby aquarian_asian » Mon Jun 20, 2022 4:47 am

Best wishes for the tests. It is good to have them tested.
Cheers
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

Claudine
Posts: 694
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Children Monitoring

Postby Claudine » Mon Jun 20, 2022 9:36 am

That's a really good thing to do; my daughter has digestion issues and given her dad's history (Crohn's disease and now rectal cancer) I think she should get a colonoscopy/meet with a GE doc sooner than later. I hope your daughter's tests come back clear!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

aquarian_asian
Posts: 28
Joined: Wed Jul 07, 2021 7:07 am

Re: Children Monitoring

Postby aquarian_asian » Tue Jun 21, 2022 6:24 am

i haven't done any tests for my children (daughter & son); my pathology says no defect in MMR, also i am on a queue for gentic test in August 2022.

Thanks
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

saltygirl
Posts: 69
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Re: Children Monitoring

Postby saltygirl » Wed Jun 22, 2022 12:19 pm

Thank you. Both my kids will start with regular colonoscopy early 20s

Sunnycd
Posts: 77
Joined: Fri Feb 26, 2021 10:36 am

Re: Children Monitoring

Postby Sunnycd » Sat Jun 25, 2022 8:40 pm

I have been wondering about when my kids, who are 18 and 20 y.o., should start having colonoscopies. There was no history of colon cancer in my family, and testing showed it wasn’t genetic. I read in this forum that it would be a good idea for them to get a life insurance prior to getting colonoscopies, since depending on diagnosis, they could be uninsurable down the road…
DX Feb. ‘21 CC IIB @ 51
Jan. ‘21 ER surgery, temp. colostomy
Sigmoid, adernocarcinoma
T4aN0MX, G2
0/24 lymph nodes
LVI: indefinite
PNI: not identified
Margins: clear
March ‘21 started 4 rounds of CAPOX
06/17/21 last day of CAPOX
06/25/21 CT scan clear
CEA: @ dx 4, post surgery 1.9, post chemo: 2.9; 09/21: 1.5
07/14/21 colostomy reversal
09/24/21 CT clear
10/12/21 colonoscopy; 1 polyp
MSS, RAS/RAF wild, PIK3CA mutant

Rock_Robster
Posts: 689
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Children Monitoring

Postby Rock_Robster » Sun Jun 26, 2022 1:23 am

Sunnycd wrote:I have been wondering about when my kids, who are 18 and 20 y.o., should start having colonoscopies. There was no history of colon cancer in my family, and testing showed it wasn’t genetic. I read in this forum that it would be a good idea for them to get a life insurance prior to getting colonoscopies, since depending on diagnosis, they could be uninsurable down the road…

Both great questions. My view would be ‘as early as possible’, ie as early as you can find a good GI that’s willing to do them. The main thing then will be to make sure they keep them up regularly - if there’s no polyps found (and no know genetic link with your CRC) then you should discuss this with a good GI, but I would have thought 3 yearly is probably reasonable (they may prefer 5 however, though this feels a little long for me). The risks of a scope in an otherwise healthy person are very low (all complications rate is less than 0.3%), compared to the downside of missing something early. You may also have a battle with health insurance, depending on where you’re based.

I totally agree re life insurance. I’m so grateful I already had life and income protection insurance before I was diagnosed stage IV at 36 years old. I would like to get more now but of course that isn’t really an option, except through our pension programs (Australia) where they can’t exclude pre-existing conditions (but can enforce a waiting period). Life/IP insurance is generally cheaper the earlier you get it, so in my mind it makes sense to get it as soon as they start working (or if affordability is an issue, then perhaps as soon as they have a family or mortgage).
40M Australia
2018 Dx RC, 12cm high
G2, EMVI, LVI. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14; then <2. Jun-22: 5
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic IMRT radiation
7/19 ULAR & ileo (reversed)
8/19 Liver lesion
8/19 FOLFOX, FOLFOXIRI, FOLFIRI x7
12/19 Liver resection
NED
11/21 Liver met & celiac node; 2-3 tiny lung things
12/21 PVE
3/22 Nodal spread & 3 liver mets. Lymphadenectomy
4/22 Liver SBRT
6/22 Liver looks good. Still some small lung things

roadrunner
Posts: 255
Joined: Sun Jan 12, 2020 8:46 pm

Re: Children Monitoring

Postby roadrunner » Sun Jun 26, 2022 5:04 pm

This kinda stopped me in my tracks. I have 18- and 16-year-old kids, and I hadn’t considered this. My father died of colon cancer at 64, and of course there’s me. As with Sunnycd, there’s no other evidence of any genetic component )I was told there’s about “a 10% chance”). I hadn’t wanted to start them on colonoscopies (my eldest gets to make that call anyway) so soon simply because it seems too dark for their phase of life. Is there evidence of anything other than a very remote risk in this stage of life without evidence of a heritable component (e.g., Lynch Syndrome)? Are there recommendations to start this early?
7/19: Rectal cancer: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (side effects/reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 small growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
CT 3/22: Clear
Thoracic CT 5/19/22 Clear
6/20/22 TAE rectal polyp benign


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: markbunga and 4 guests