16th Cancer Birthday today

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16th Cancer Birthday today

Postby helen098 » Mon Jun 06, 2022 12:06 pm

16 years ago today I had my surgery
Sometimes it seems like a million years ago but at the same
time I can remember exactly moments from that day and the
Next horrible 6 months with chemo

Can’t ever forget entirely because of the nerve damage
but sometimes I can forget for a while

The best thing I did was to find the club
Just knowing others were going through the same things
helped more than I can say

Hope everyone is doing as good as they can

Take care and keep fighting

stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

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Re: 16th Cancer Birthday today

Postby MadMed » Mon Jun 06, 2022 1:49 pm

This is awesome, thank you Helen. We hope to be in your shoes someday :D
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

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Re: 16th Cancer Birthday today

Postby waw4 » Tue Jun 07, 2022 8:57 am

Nice to hear Helen—thank you for posting!
Bill's Colonoscopy 6/29/10; Dx Stage I or II
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
Grateful for 2nd Chance NED time!

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Re: 16th Cancer Birthday today

Postby CRguy » Thu Jun 09, 2022 3:58 pm

Congrats Helen !!!

Continued success and good health

Cheers and Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Joined: Tue Feb 25, 2014 4:38 pm

Re: 16th Cancer Birthday today

Postby Kick'nAssCancer'sAss » Sat Jun 11, 2022 10:18 pm

Congrats Helen

I too would have to agree that finding this forum was by far one of the the best things I did on my journey.

Colon Talk gave me hope and got me through some pretty dark times.

I will always be grateful.

53M Dx RC Halloween 2013
easily the scariest day of my life
My Journey Journal
over 12,000 reads globally

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Re: 16th Cancer Birthday today

Postby DarknessEmbraced » Sat Jun 18, 2022 8:05 am

That's amazing! Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Re: 16th Cancer Birthday today

Postby cptmac » Sun Jul 31, 2022 10:16 pm


And thanks for posting, it gives so many soo much hope!!!
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

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Joined: Mon Apr 30, 2018 2:36 pm

Re: 16th Cancer Birthday today

Postby Koreysue » Mon Aug 01, 2022 3:04 pm

Thanks so much for sharing,
Love to hear it!
Dx: 6/2017 stage 3 colon cancer
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/2021 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8

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