Postby Rikimaroo » Thu May 19, 2022 1:45 pm
Hi Claudine,
Your husband and I beat the odds. 5 years survivor here but still fighting, always thinking will this be my last year. It's tough, but I live for the present not the future. I am going on a 3 night cruise tomorrow and we have a 2 week jersey trip planned. I am going to enjoy my life as much as I can even though I have some pain. I am also going to start doing FolFiri again but skip Avastin for now. I need to shrink any activity and Folfiri has worked for me, albeit hard to tolerate.
Keep enjoying your husband and life. I have not been intimate with my wife for almost 7 months now and it really sucks, she is a beautiful loving wife and I hate that I can't because of all my issues. Things can get better though. She rather have me around then me dead, vs intimacy/sex.
All the best
Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.