It seems to me that you might benefit from having contact with a Patient Navigator, or a Nurse Navigator.
Does your hospital have such a program? If not, you could try applying for a colorectal cancer "buddy" from one of the organizations that offer buddy programs:
- Colorectal Cancer Alliance, Patient Navigator Program
- "Call our free Helpline at (877) 422-2030 to speak with a Certified Patient & Family Support Navigator. We’re here to support and guide you through your screening and colorectal cancer journey.
Our certified Patient & Family Support Navigators are here to connect you with a vetted Buddy who has been through a similar diagnosis to offer meaningful and useful advice that helped them get through colorectal cancer."
CCA Buddy Program application
- "... I actively participate in a buddy program with the Colon Cancer Alliance. The program allows me to share my story with newly-diagnosed patients and offer them hope. This is one of the most rewarding things I do..." Marty Andrews (Colon Club) - Reference: https://www.colonclub.com/our-stories/colon-cancer/marty-andrews
- The Colon Club's buddy program: The Colon Connection
Link to apply for a Colon Connection "buTTy":