Stage3B - first year review

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aquarian_asian
Posts: 15
Joined: Wed Jul 07, 2021 7:07 am

Stage3B - first year review

Postby aquarian_asian » Wed May 04, 2022 8:52 am

Hi All

need some guidance from all our cancer fellas!!!

I need to include my signature, will do soon; here is my history:

Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins day)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal
In between there are little challenges , and my recent MRI Liver scan looks fine. I have a yearly CT scan next week

Now I have a review meeting with my surgeon this Friday, any specific questions I need to ask.. Please let me know

Thanks
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

aquarian_asian
Posts: 15
Joined: Wed Jul 07, 2021 7:07 am

Re: Stage3B - first year review

Postby aquarian_asian » Thu May 05, 2022 1:59 pm

Can anyone please suggest here

TIA
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Stage3B - first year review

Postby Claudine » Thu May 05, 2022 2:10 pm

I'm sorry I can't think of anything off the top of my head - it looks like you already have a timeframe for checkups? That's the main thing that comes to mind.
I do have a question though, if you don't mind; how low was your tumor, and how has your reversal been so far? My husband will be looking into that in the near future... His was a very low tumor (he's only got about an inch of rectum left post-resection) so we're anticipating some challenges...
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

aquarian_asian
Posts: 15
Joined: Wed Jul 07, 2021 7:07 am

Re: Stage3B - first year review

Postby aquarian_asian » Thu May 05, 2022 3:02 pm

No problems, Claudine. Right now, i will have yearly CT scans with periodical check ups as when needed. So far it is looking fine.
regarding distance - the report says 12.5 cm from Anal verge (AV) - not sure if I answer you right.

Regrading Reversal experience - I had around 15 BMs in a day. frequency & urgency was so terrific. I had accidents (hope you understands) 2 times when I went out in 2 weeks time. But after 4 weeks of time, things started getting better and now with 2+ months, I am almost back to track with little inconsistency - but all is manageble.
ask your doctors for right food for your husband and ask him to be prepared mentally. Our willpower helps during this reversal recovery as I felt. Shoot any questions if you have. Happy to answer

Thanks
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Stage3B - first year review

Postby Claudine » Thu May 05, 2022 4:41 pm

Thank you! Your tumor was quite a bit higher that my husband's, which is probably why things are already looking quite good for you after 2 months.

We actually just met with the surgeon and had a long conversation about reversal and expected challenges. I really like this surgeon; he puts his patients' quality of life at the forefront. He was very upfront with challenges and told DH that adjuvant radiation would likely make things even more difficult, but he won't schedule the reversal until DH meets with the radiation oncologist (tomorrow) to discuss things. He said that he would be in very close contact with DH in the months after the reversal to try and test anything that may help alleviate LARS; mentioned diet, bulking agents, Kegel exercises, daily morning enemas, and something I forget the name of but has to do with electrical nerve stimulation and is showing real promises. So I feel that DH will have a sympathetic ear and lots of support from his surgeon, which is great.

Good luck with your CT scan, I hope it comes back all clear :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

aquarian_asian
Posts: 15
Joined: Wed Jul 07, 2021 7:07 am

Re: Stage3B - first year review

Postby aquarian_asian » Fri May 06, 2022 12:40 pm

Today's appointment went well. a positive day indeed. Thanks everyone.
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Stage3B - first year review

Postby Claudine » Fri May 06, 2022 2:15 pm

Fantastic! Do continue to drop by now and then, it's really nice to read about positive outcomes on the forum :)
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

aquarian_asian
Posts: 15
Joined: Wed Jul 07, 2021 7:07 am

Re: Stage3B - first year review

Postby aquarian_asian » Sat May 07, 2022 6:20 am

Yes i will do. Absolutely, I am just member only to this forum for good knowledge and sharing positive news to help each other. Sharing is caring :-)
Love to all
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

DarknessEmbraced
Posts: 3686
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Stage3B - first year review

Postby DarknessEmbraced » Sat May 07, 2022 7:52 am

I'm glad everything went well! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

aquarian_asian
Posts: 15
Joined: Wed Jul 07, 2021 7:07 am

Re: Stage3B - first year review

Postby aquarian_asian » Sat May 07, 2022 12:58 pm

Thanks Darknessembraced.
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

I_will_fight
Posts: 94
Joined: Mon Jun 29, 2020 3:38 pm

Re: Stage3B - first year review

Postby I_will_fight » Sun May 08, 2022 3:16 pm

Is CEA a good marker for you?
How often are you getting it measured?
Have you considered any ctDNA test?
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

aquarian_asian
Posts: 15
Joined: Wed Jul 07, 2021 7:07 am

Re: Stage3B - first year review

Postby aquarian_asian » Mon May 09, 2022 3:31 am

Yes my CEA is good (around 2-2.5), it is being tested around 3 months once whenever I visit my hospital. Even during this review meeting, I asked about my baseline CEA - they said it is a good number, not to worry much about it :-)
ctDNA test - didnt heard that so far. Should I press to get it done?

Thanks
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal


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