PET/CT Results

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

PET/CT Results

Postby beach sunrise » Sat Apr 30, 2022 4:06 pm

All clear!
I am not happy with the 5 minute read of scan. All it says is no oncological findings compared to previous scan.
No updates or mentions of:
thyroid nodules
left lung node
previous uptake at posterior pelvic resection sight
renal cyst
ECT
Ya, I will be requesting a second read to entail every detail of comparison to PET/CT from Dec. This is cancer for God's sake. Do the job and do it right the first time. The info could be important now or in the future along with expanded bloodwork panels. SMH
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: PET/CT Results

Postby prayingforccr » Sun May 01, 2022 6:18 am

beach sunrise wrote:All clear!
I am not happy with the 5 minute read of scan. All it says is no oncological findings compared to previous scan.
No updates or mentions of:
thyroid nodules
left lung node
previous uptake at posterior pelvic resection sight
renal cyst
ECT
Ya, I will be requesting a second read to entail every detail of comparison to PET/CT from Dec. This is cancer for God's sake. Do the job and do it right the first time. The info could be important now or in the future along with expanded bloodwork panels. SMH



FANTASTIC!!!

I know how hard you’ve worked.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: PET/CT Results

Postby beach sunrise » Sun May 01, 2022 3:25 pm

Thank you!
I held my breath for sure on this one. August will be 3 years battling the beast.
Like you and many others have done, main goal was to find low toxicity protocol that works. So far so good.
I truly believe if I had stayed with NCCN SOC I would not be typing this today.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Rikimaroo
Posts: 394
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: PET/CT Results

Postby Rikimaroo » Mon May 02, 2022 10:36 am

HAPPY DAYS!!!! LOVE THIS NEWS!!!
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: PET/CT Results

Postby Claudine » Mon May 02, 2022 5:41 pm

Wonderful :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: PET/CT Results

Postby beach sunrise » Fri May 06, 2022 9:26 am

Thank you, Claudine!
Had appt with surgeon with second read of scan. There is nothing there at all.
I am the most healthy patient they have. Thanks to this site and all the experience and especially all of Rp's homework/research shared.
No explanation for CEA so keep close watch with bloodwork every two weeks and three month scans to not miss the surgery boat if/when.
If CEA goes up again we will immediately have a PET/CT to try to catch it.
Had expanded labs done Wednesday but not posted yet.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

jsbsf
Posts: 92
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: PET/CT Results

Postby jsbsf » Fri May 06, 2022 8:30 pm

Wow! Great news!!
DH 61
2019 4A t3 n2 m1a
8/23 C-scopy, 5+cm mass. CEA:4.1
8/26 CT ~1cm lvr met?
9/6 PET: lvr spot
9/16 MSS. MRI: 2 live mets: 2.7 & 7mm
9/23 Port
9/30 Start FOLFOX 1-6
10/4 Lg lvr met ~3.7cm (raised concern), pri tmr stable.
CEA: 10/13,12.5;10/27-12/8 btw 4.7 & 3.1
11/5 both lvr mets ~ 2/3 smaller.
12/17 PET: sm lvr met gone, remaining tmrs @10% of orig sz & actvty
Chemo break
2020
MWA 2/5, Lap resection 2/11
CEA: 3/1-5/31 btw 2.1&2.9
3/2 start FOLFOX 7-12
7/23-29 rad
10/2/2020 NED/W&W


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Cat9 and 3 guests