Yes, I have a few thoughts on this matter.
First, let me preface this by saying that I in fact had 5 weeks of pelvic post-surgery chemo/radiation about 10 years ago, and I have never had a recurrence in all this time. In these 10 years I would say that the dominant concern in my life has been the management of persistent LARS along along with the long-term peripheral neuropathy arising from my oxaliplatin experience. All of this has significantly changed the way I run my life and the way I decide what I can do successfully, and what I must not try doing anymore. In other words, over the past 10 years I have developed a "new normal" that is considerably different from my previous life-style.
This is not to say that a drastically different new life-style will be unsatisfactory. It just means that you may have to be a bit flexible and a bit versatile. In the 10 years since my reversal I have traveled to more than 30 different countries, but each trip has presented its own problems. Last month we traveled to a country where the only toilets available were the squat-type Turkish toilets -- a definite challenge when you have LARS. But now we have a photo archive of over a thousand different photos from all these different places, with a lot of good memories.
When we show our travel photos to our friends we never mention anything about LARS. None of our friends know that I once had CRC. We never bring up the topic.
So, what I'm saying is that if DH decides to go in the direction of post-surgery radiation, it's definitely challenging, but it's not the end of the world. Post-reversal LARS is manageable, but only with a lot of planning and determination.
If you need some suggestions for pointed questions to ask the radiation oncologist next week, just let us know.
Take care ...