Surgey update

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Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Surgey update

Postby Claudine » Tue Apr 19, 2022 8:49 am

Looks like DH will finally come home today. Phew! It was a challenging few days - his ostomy is working fine, but he threw up several times, had difficulty keeping any food down; was bloated and uncomfortable after eating even tiny amounts of solid food. This is slowly resolving. Surgeon thinks all the treatments he’s had these past 4 years probably contributed to making his intestines very sensitive. They will continue to monitor closely, and he could always receive outpatient IV.

He’s very gassy (ostomy bag noisy!) but I assume this will improve with time. Losing weight but he’d gained a lot this past year, so he’s actually happy about that.

We’re meeting with oncologist on Thursday but given pathology report I’d be surprised if he’d recommend adjuvant treatment (he’s pretty “hands off” to start with). I read the 2022 ASCO guidelines for stage 2A and there’s no factor that would make DH a candidate for additional chemo (no perineural or perilymphatic invasion, high grade tumor, 16 clear lymph nodes, etc).

I suppose the next step will be discussing reversal with surgeon. He already told DH that the tumor was quite low, so DH knows it will be challenging, but, one day at a time!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Surgey update

Postby Claudine » Thu Apr 21, 2022 4:42 pm

Ugh we'd been warned about the possibility of dehydration post-surgery, but we didn't expect it would come so soon and be so bad! DH went in for labs this morning; he was feeling very faint. Turns out his blood pressure was 79/44 and his creatinine was 5!!!!! His kidneys were borderline failing. So he's been admitted back in for a few days, back on IV. He's already feeling a lot better and sent me to the taco place to get him a soft shell taco (without beans of course), that's the most appetite he's had since surgery :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

roadrunner
Posts: 240
Joined: Sun Jan 12, 2020 8:46 pm

Re: Surgey update

Postby roadrunner » Thu Apr 21, 2022 5:24 pm

Sorry to hear about that. These “speed bumps” do come with the territory, don’t they? Great that you guys got on top of it and he’s getting back to where he needs to be. Get him a GOOD taco!
7/19: Rectal cancer: Staged as IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (side effects/reduced size est. 70-75%)
neoadjuvant chemorad 11/19
4 rounds of FOLFOX July-August 2020
ncCR found 10/20; biopsies negative
TAE 11/20, tumor cells removed, lung nodules orig id’d 6/20 stable Nov 2020
Chest CT 3/30/21 small growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT for remaining nodule 1/22
CT 3/22: Clear

DarknessEmbraced
Posts: 3686
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Surgey update

Postby DarknessEmbraced » Sat Apr 23, 2022 8:39 am

I'm sorry he ended back in the hospital but I'm glad he's already starting to feel better. Hopefully, he won't be in the hospital for long.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Surgey update

Postby Claudine » Tue Apr 26, 2022 1:59 pm

Thanks DarknessEmbraced, he seems to be "over the bump"; they figured out that the ileus is caused by scar tissue form his previous ileum resection (4 years ago) that's a bit too close to the ileostomy, things get "stuck" there. So it could happen again, but so far so good, the stoma is producing again, and DH can eat a bit more. Hopefully he'll get to come home soon!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

stu
Posts: 1561
Joined: Sat Aug 17, 2013 5:46 pm

Re: Surgey update

Postby stu » Wed Apr 27, 2022 3:50 am

Hi ,
He has had a bit of a rough time there .
Hope he is moving in a better direction . You have so much knowledge now you seem as prepared as you can be for these big bumps along the road .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3686
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Surgey update

Postby DarknessEmbraced » Sat Apr 30, 2022 9:52 am

I'm glad he's over the bump. :) It's good that they figured out the cause of the illleus. I hope he feels better soon and can go home. *hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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