Distant lymph nodes braf

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saltygirl
Posts: 164
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Distant lymph nodes braf

Postby saltygirl » Fri Apr 08, 2022 4:37 pm

Hi,
I wanted to give hope to other braf patients. I am officially 1 year out of treatment and clean CT scan. I had folfoxiri and surgery on my distant lymph nodes and radiation. I am planning the best summer full of travel with my now adult kids. Wishing all of you best health. My onco is moving CT to 6 months.
Stage 4, distant lymph nodes May 2020, braf/kras mutations
11 folfoxiri
Intense radiation 1 week on distant lymph nodes
Surgery, hysterectomy, colon resection, distant lymph nodes resection
Complete pathological response to chemo.
NED 2021
NED 2022
NED 2023

MadMed
Posts: 216
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: Distant lymph nodes braf

Postby MadMed » Fri Apr 08, 2022 6:09 pm

Outstanding salty, have a blast :D
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

Nor Cal
Posts: 89
Joined: Sun Dec 06, 2020 8:18 pm

Re: Distant lymph nodes braf

Postby Nor Cal » Sat Apr 09, 2022 7:01 pm

Awesome. Have fun!
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. CEA 120.
BRAF+ TMB 5% MSS TDL1-1%
July 2020 - Present: 55 cycles chemo (All the various 5-FU regimens)
December 2020 - February 2021 Y90 Radioembolization, Chemoembolization x2

saltygirl
Posts: 164
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Re: Distant lymph nodes braf

Postby saltygirl » Sun Apr 10, 2022 4:12 pm

Thank you both. My understanding is that my treatment was not standard. I had the lymph nodes surgically removed and received radiation in this area before my surgery.
Stage 4, distant lymph nodes May 2020, braf/kras mutations
11 folfoxiri
Intense radiation 1 week on distant lymph nodes
Surgery, hysterectomy, colon resection, distant lymph nodes resection
Complete pathological response to chemo.
NED 2021
NED 2022
NED 2023


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