Distant lymph nodes braf

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saltygirl
Posts: 59
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Distant lymph nodes braf

Postby saltygirl » Fri Apr 08, 2022 4:37 pm

Hi,
I wanted to give hope to other braf patients. I am officially 1 year out of treatment and clean CT scan. I had folfoxiri and surgery on my distant lymph nodes and radiation. I am planning the best summer full of travel with my now adult kids. Wishing all of you best health. My onco is moving CT to 6 months.

MadMed
Posts: 123
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: Distant lymph nodes braf

Postby MadMed » Fri Apr 08, 2022 6:09 pm

Outstanding salty, have a blast :D
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

Nor Cal
Posts: 53
Joined: Sun Dec 06, 2020 8:18 pm

Re: Distant lymph nodes braf

Postby Nor Cal » Sat Apr 09, 2022 7:01 pm

Awesome. Have fun!
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. BRAF mutation. CEA 120
July 2020 - Present: 30 cycles chemo (All the various 5-FU regimens)
December 2020 - February 2021 Y90 Radioembolization, Chemoembolization x2

saltygirl
Posts: 59
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Re: Distant lymph nodes braf

Postby saltygirl » Sun Apr 10, 2022 4:12 pm

Thank you both. My understanding is that my treatment was not standard. I had the lymph nodes surgically removed and received radiation in this area before my surgery.

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: Distant lymph nodes braf

Postby prayingforccr » Mon Apr 11, 2022 4:29 pm

saltygirl wrote:Thank you both. My understanding is that my treatment was not standard. I had the lymph nodes surgically removed and received radiation in this area before my surgery.


Fantastic

Nothing, NOTHING, Ive done is currently SOC.

Have a great summer!
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.


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