Back to NED!

Please feel free to read, share your thoughts, your stories and connect with others!
saltygirl
Posts: 59
Joined: Sun Feb 07, 2021 4:46 pm
Facebook Username: Salty.girl

Re: Back to NED!

Postby saltygirl » Fri Apr 08, 2022 4:39 pm

Congratulations. So happy for you. You are an inspiration.

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Kick'nAssCancer'sAss
Posts: 239
Joined: Tue Feb 25, 2014 4:38 pm

Re: Back to NED!

Postby Kick'nAssCancer'sAss » Sat Apr 09, 2022 1:40 pm

Gotta love that NED
Congrats

Mike
53M Dx RC Halloween 2013
easily the scariest day of my life
My Journey Journal
over 10,000 reads globally
https://kickingasscancersass.blogspot.com/

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beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: Back to NED!

Postby beach sunrise » Thu Apr 28, 2022 5:26 pm

Just seeing this and smiled big!
Congrats to you. I know you must be over the moon!!!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

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CRguy
Posts: 10377
Joined: Sun Feb 10, 2008 6:00 pm

Re: Back to NED!

Postby CRguy » Thu Apr 28, 2022 10:18 pm

Sending best wishes and congrats to you !
Keep on kickin' colorectal BUTT

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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ginabeewell
Posts: 532
Joined: Wed Oct 24, 2018 10:30 am

Re: Back to NED!

Postby ginabeewell » Sat Apr 30, 2022 1:17 pm

Thanks to everybody for joining in the celebration - so many of you gave me hope when it seemed like the oncologists had given up on me before they even started!

All of this has inspired me to take my personal Facebook group and convert it to a blog. I’m working with someone who is helping me migrate the content - and it should be ready by tomorrow. So exciting!!
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?


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