Just checking in..Hi yall!

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AmyG
Posts: 369
Joined: Tue Dec 25, 2018 8:08 pm

Just checking in..Hi yall!

Postby AmyG » Mon Feb 07, 2022 8:02 pm

35 days from now I'll have scans, bloodwork and a visit with the oncologist. SO MUCH has happened since the last time I was there in September. Let's see...

Lost 30 lbs.
Gained a son in law.
Gained a granddaughter. (two different kids blessed me with those additions)
We now have goats, a cow and a big flock of chickens. It's everything I've ever wanted!!

It's been a whirlwind the last several months but I'm so thankful I'm here for it. Nicholas turns *3* in 36 days. Where has the time gone?? I am so busy (in the best ways) that I really don't even feel anxious about this upcoming appointment. Cancer and everything that goes with it is currently in my rear view mirror. I really hope it stays that way.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Just checking in..Hi yall!

Postby Claudine » Mon Feb 07, 2022 8:55 pm

So good to hear from you, especially such great news :D
Thanks for dropping by!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

DarknessEmbraced
Posts: 3686
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Just checking in..Hi yall!

Postby DarknessEmbraced » Sat Feb 12, 2022 9:17 am

I'm glad you're doing so well! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

AmyG
Posts: 369
Joined: Tue Dec 25, 2018 8:08 pm

Re: Just checking in..Hi yall!

Postby AmyG » Sun Mar 20, 2022 2:51 pm

So last monday was my appointment, however 10min before I got to the hospital (it's a 2hr drive) they called and rescheduled my labs and doctor visit. Still had the CT. Everything is all clear, no signs of any reoccurrence. I go tomorrow afternoon for labs and to see what the oncologist wants to do from here! I assume I'll stay on the six month visits for a bit longer. Probably 3 more? Then move to yearly. Idk. Just so excited that as of right now, nothing looks like it's returned!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

stu
Posts: 1561
Joined: Sat Aug 17, 2013 5:46 pm

Re: Just checking in..Hi yall!

Postby stu » Mon Mar 21, 2022 3:15 am

Yippee, such great news and so pleased to see your update !

What age is your wee boy now ?

Mum becomes a teenager this year ! 13 years post stage 4 diagnosis.

Keep having fun .

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AmyG
Posts: 369
Joined: Tue Dec 25, 2018 8:08 pm

Re: Just checking in..Hi yall!

Postby AmyG » Mon Mar 21, 2022 7:20 pm

Stu, Nicholas just turned *3*, he's so grown! :lol:

So in an interesting turn of events, I am now a YEARLY patient! :shock: All my labs are fine, CEA is 1.7 and I'm pretty much just rolling around like stage iv cancer happened to someone else. There are no plans to ever release me, not at a 5 or 10 year mark but we'll see how things go.

For now, I have one ct/labs/visit a year and I'm on every 3 years for a colonoscopy. That just happens to be next year, luck me!

So I'd call today pretty decent.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Jannine
Posts: 203
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Just checking in..Hi yall!

Postby Jannine » Tue Mar 29, 2022 8:19 pm

NICE. I'm so pleased for you!!

My recent bloodwork was clear, CEA was I think 1.8 or so. I have a CT scan and 3-year colonoscopy coming up in August. Things are good!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear


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