Tomaz26 wrote:RikiMaroo:
what kind of chemo are you on now?
I am in the same position as you two guys.. After SOC rectal tumor gone, placed on W&W instead of surgery and it was a wrong decisio. 9 months later a recurrence in rectum plus 6 lung mets scattered across lungs.. Placed on CAPIRI and Cetuximab but canceled both after only 1 round as I had nasty side effects. I had dysarthria which also happened on last rounds CAPOX during 2020 and ugh, its worrisome. You feel like having a stroke. Cannot pronounce words..
Now I also question my way of trying to "cure" it with diet tweaks, 50+ supplements etc and no chemo. I am only on capecitabine now and lowered it to 50% of the dose prescribed which I dont think will do anything.. Capecitabine alone anyway
even in high dose would probable not do much, and is quite toxic too. No option of SBRT or any surgery for me as those lung mets are all across in all lobes.. The only hope for me is laser surgery in Germany which treats many people coming from Canada and US too who were told no surgery option.. That or back to CAPIRI + Cetuxi which would probably work for sometime, but I just hate hate hate being nausseated and in bed all the time while on chemo. This is no life for me.. What good is it to problong life for 6 months if those 6 months are spent in bed.. But on the other hand a lot of people were in the same boat as me and got to surgery with SOC so even if chemo does not cure you if it gets you to resection it is worth while so I must start thinking this way, if not too late alredy (last scan in dec showed some progression on lung mets but also something happening in peritoneum with some large lymph nodes increase)..
Hi Tomaz26,
I am on 5FU (which is the IV form of the pill your taking) and Avastin/Leucovorin maintenance chemo, I get it all via IV. I chose not to do the pills anymore because it is way to toxic, taste nasty and I find myself skipping because I am in control. I think all the natural stuff is a croc of shit and waste of time (no offense to anyone taken it). I use to drink tree leaves from a guanabana tree thinking I would get to cure, everyone without cancer thinks they know how to cure cancer with natural.
Rich people like Black Panther Actor died, Steve Jobs, etc...from Cancer and they had all the money in the world to try all the natural stuff because that stuff is expensive and not covered by insurance, that is why most people are hesitant to do natural, although there is no statical evidence that is really cured people.
I don't want to have people lose hope that is on natural stuff, bottom line stage 4 cancer is hard to beat, but beatable with conventional medicine or you die from it. It's what I have to face and understand at this point in my life, I just want to enjoy my time with my loved ones, work hard to make more money so there comfortable when I am gone, or pray something comes out to cure cancer.
Rikimaroo