12 years Stage IV

Please feel free to read, share your thoughts, your stories and connect with others!
Post Reply
Mattie
Posts: 76
Joined: Fri Mar 07, 2014 1:06 am

12 years Stage IV

Postby Mattie » Sat Jan 01, 2022 4:09 pm

Happy New Year Warriors,

Just wanted to let everyone know I'm still living a great life and I'm wrapping up year #12. Had a day surgery to remove a mass from by abdomen a few weeks ago. Back to NED while I take a break from chemo. Hope everyone has a great new year.
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only
10/21 Pausing Avastin Proteinuria/BP complications
12/21 Resect 4.4 x 3.6 cm lower abdominal met
Top
MadMed
Posts: 216
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: 12 years Stage IV

Postby MadMed » Sat Jan 01, 2022 5:05 pm

Thanks Mattie, hope you have a great year.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022
Top
roadrunner
Posts: 465
Joined: Sun Jan 12, 2020 8:46 pm

Re: 12 years Stage IV

Postby roadrunner » Sat Jan 01, 2022 7:55 pm

I haven’t seen your posts before, Mattie, so maybe I missed your story, but that is one Badass post and signature! Thanks for the example and inspiration. Happy New Year and good luck!
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp benign)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy for radio resistant met 7/7/23
Top
User avatar
CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: 12 years Stage IV

Postby CRguy » Sun Jan 02, 2022 5:23 pm

Cheers and best wishes Mattie
One step at a time
and keep on ... keepin' ON !!!

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Top
JulesW
Posts: 32
Joined: Thu Jun 21, 2018 1:48 pm

Re: 12 years Stage IV

Postby JulesW » Sun Jan 02, 2022 8:53 pm

Thanks for the post Mattie! Interesting!
46 rectal ca. 12/16
LAR 1/17, 0/30 nodes +
CT 6/18 - 4 nodules R lung + 3 spots in left lung (largest 1.7cm)
Laser pulm. metastectomy B Germany 10/18 and 11/18
12/18 blood in urine -> rectal ca met on bladder
3/19 partial cystectomy
4/19 MSK self referral
Avastin + 5fu x 6 mos
3/21 blood in urine ->bladder recurrence + R ext iliac node
10/21 MSK partial cystectomy node turned out to be peritoneal implant
12/22 UCSD CRS surgery PCI score 8, 1m small bowel resected
NED after 6 and 1/2 years
Top
JulesW
Posts: 32
Joined: Thu Jun 21, 2018 1:48 pm

Re: 12 years Stage IV

Postby JulesW » Mon Jan 03, 2022 11:19 am

Just curious you mentioned that you had an abdominal mass removed a few weeks ago, was it on the peritoneum?
46 rectal ca. 12/16
LAR 1/17, 0/30 nodes +
CT 6/18 - 4 nodules R lung + 3 spots in left lung (largest 1.7cm)
Laser pulm. metastectomy B Germany 10/18 and 11/18
12/18 blood in urine -> rectal ca met on bladder
3/19 partial cystectomy
4/19 MSK self referral
Avastin + 5fu x 6 mos
3/21 blood in urine ->bladder recurrence + R ext iliac node
10/21 MSK partial cystectomy node turned out to be peritoneal implant
12/22 UCSD CRS surgery PCI score 8, 1m small bowel resected
NED after 6 and 1/2 years
Top
Mattie
Posts: 76
Joined: Fri Mar 07, 2014 1:06 am

Re: 12 years Stage IV

Postby Mattie » Mon Jan 03, 2022 12:56 pm

JulesW wrote:Just curious you mentioned that you had an abdominal mass removed a few weeks ago, was it on the peritoneum?


No it was under the muscle of my lower abdominal wall. I think most of my peritoneum was removed in 2010
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only
10/21 Pausing Avastin Proteinuria/BP complications
12/21 Resect 4.4 x 3.6 cm lower abdominal met
Top
stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: 12 years Stage IV

Postby stu » Tue Jan 04, 2022 4:16 am

Great to see your name pop up !
Keep pressing on !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
Top
boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: 12 years Stage IV

Postby boxhill » Tue Jan 04, 2022 2:57 pm

Congratulations on keeping the beast at heel! I hope you have many more great years ahead.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED
Top
DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 12 years Stage IV

Postby DarknessEmbraced » Sat Jan 08, 2022 10:29 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
Top
User avatar
Kick'nAssCancer'sAss
Posts: 248
Joined: Tue Feb 25, 2014 4:38 pm

Re: 12 years Stage IV

Postby Kick'nAssCancer'sAss » Sat Jan 08, 2022 1:52 pm

Great news Mattie

here's to a dozen more.

Mike
53M Dx RC Halloween 2013
CT & BONE scan
MRI/T3N0M0 1 suspicious LN
5 wks chemo/rad
LAR open TME Feb 26/14
temp bag
0/24 nodes pCR/pathological
Folfox (8) Mar 28-Jul 4 /14
Aug/14 clear CT scan
Aug 27/14 reversal
Feb/15 clear scope
July/15 Feb/16 Feb/17 Feb/18 clear CT scans
Feb/18 clear scope
Sept 19 clear CT scan & DISCHARGED :P
Mar/23 clear scope
CEA 1.6 @ dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal
https://kickingasscancersass.blogspot.com/
Top
Nor Cal
Posts: 89
Joined: Sun Dec 06, 2020 8:18 pm

Re: 12 years Stage IV

Postby Nor Cal » Sat Jan 08, 2022 6:34 pm

Way to go! You've been through a lot
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. CEA 120.
BRAF+ TMB 5% MSS TDL1-1%
July 2020 - Present: 55 cycles chemo (All the various 5-FU regimens)
December 2020 - February 2021 Y90 Radioembolization, Chemoembolization x2
Top
Post Reply

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 73 guests

Powered by phpBB® Forum Software © phpBB Limited