12 years Stage IV

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Mattie
Posts: 76
Joined: Fri Mar 07, 2014 1:06 am

12 years Stage IV

Postby Mattie » Sat Jan 01, 2022 4:09 pm

Happy New Year Warriors,

Just wanted to let everyone know I'm still living a great life and I'm wrapping up year #12. Had a day surgery to remove a mass from by abdomen a few weeks ago. Back to NED while I take a break from chemo. Hope everyone has a great new year.
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only
10/21 Pausing Avastin Proteinuria/BP complications
12/21 Resect 4.4 x 3.6 cm lower abdominal met

MadMed
Posts: 79
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: 12 years Stage IV

Postby MadMed » Sat Jan 01, 2022 5:05 pm

Thanks Mattie, hope you have a great year.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
surgery postponed until after 2/23 sigmoidoscopy

roadrunner
Posts: 204
Joined: Sun Jan 12, 2020 8:46 pm

Re: 12 years Stage IV

Postby roadrunner » Sat Jan 01, 2022 7:55 pm

I haven’t seen your posts before, Mattie, so maybe I missed your story, but that is one Badass post and signature! Thanks for the example and inspiration. Happy New Year and good luck!
7/19: Rectal cancer: Staged as IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (side effects/reduced size est. 70-75%)
neoadjuvant chemorad 11/19
4 rounds of FOLFOX July-August 2020
ncCR found 10/20; biopsies negative
TAE 11/20, small amount of tumor removed, lung nodules orig id’d 6/20 stable Nov 2020
Chest CT 3/30/21 small growth in 2 nodules (3 and 5mm)
VATS 12/8/21 to remove sub-pleural met 7mm. Considering SBRT for remaining nodule.

User avatar
CRguy
Posts: 10365
Joined: Sun Feb 10, 2008 6:00 pm

Re: 12 years Stage IV

Postby CRguy » Sun Jan 02, 2022 5:23 pm

Cheers and best wishes Mattie
One step at a time
and keep on ... keepin' ON !!!

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

JulesW
Posts: 22
Joined: Thu Jun 21, 2018 1:48 pm

Re: 12 years Stage IV

Postby JulesW » Sun Jan 02, 2022 8:53 pm

Thanks for the post Mattie! Interesting!
46 rectal ca. 12/16
LAR 1/17, 0/30 nodes +
5fu x 6 mos
CT 6/18 - 4 nodules R lung + 3 spots in left lung (largest 1.2cm)
6/18 folfiri + Avastin
Laser assist pulm. metastectomy B Germany 10/18 and 11/18- 10 nodules removed, 6 cancer
12/18 blood in urine -> rectal ca met on bladder
3/19 partial cystectomy
4/19 MSK self referral
Avastin + 5fu x 6 mos
3/21 blood in urine ->bladder recurrence + R ext iliac node
3 months folfox
10/21 MSK partial cystectomy with B pelvic LN dissection
got margins!

JulesW
Posts: 22
Joined: Thu Jun 21, 2018 1:48 pm

Re: 12 years Stage IV

Postby JulesW » Mon Jan 03, 2022 11:19 am

Just curious you mentioned that you had an abdominal mass removed a few weeks ago, was it on the peritoneum?
46 rectal ca. 12/16
LAR 1/17, 0/30 nodes +
5fu x 6 mos
CT 6/18 - 4 nodules R lung + 3 spots in left lung (largest 1.2cm)
6/18 folfiri + Avastin
Laser assist pulm. metastectomy B Germany 10/18 and 11/18- 10 nodules removed, 6 cancer
12/18 blood in urine -> rectal ca met on bladder
3/19 partial cystectomy
4/19 MSK self referral
Avastin + 5fu x 6 mos
3/21 blood in urine ->bladder recurrence + R ext iliac node
3 months folfox
10/21 MSK partial cystectomy with B pelvic LN dissection
got margins!

Mattie
Posts: 76
Joined: Fri Mar 07, 2014 1:06 am

Re: 12 years Stage IV

Postby Mattie » Mon Jan 03, 2022 12:56 pm

JulesW wrote:Just curious you mentioned that you had an abdominal mass removed a few weeks ago, was it on the peritoneum?


No it was under the muscle of my lower abdominal wall. I think most of my peritoneum was removed in 2010
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only
10/21 Pausing Avastin Proteinuria/BP complications
12/21 Resect 4.4 x 3.6 cm lower abdominal met

stu
Posts: 1549
Joined: Sat Aug 17, 2013 5:46 pm

Re: 12 years Stage IV

Postby stu » Tue Jan 04, 2022 4:16 am

Great to see your name pop up !
Keep pressing on !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

boxhill
Posts: 767
Joined: Fri Apr 06, 2018 11:40 am

Re: 12 years Stage IV

Postby boxhill » Tue Jan 04, 2022 2:57 pm

Congratulations on keeping the beast at heel! I hope you have many more great years ahead.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
6/20 Stop Key
All MRIs NED

DarknessEmbraced
Posts: 3673
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 12 years Stage IV

Postby DarknessEmbraced » Sat Jan 08, 2022 10:29 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
Kick'nAssCancer'sAss
Posts: 234
Joined: Tue Feb 25, 2014 4:38 pm

Re: 12 years Stage IV

Postby Kick'nAssCancer'sAss » Sat Jan 08, 2022 1:52 pm

Great news Mattie

here's to a dozen more.

Mike
53M Dx RC Halloween 2013
easily the scariest day of my life
My Journey Journal
over 10,000 reads globally
https://kickingasscancersass.blogspot.com/

Nor Cal
Posts: 49
Joined: Sun Dec 06, 2020 8:18 pm

Re: 12 years Stage IV

Postby Nor Cal » Sat Jan 08, 2022 6:34 pm

Way to go! You've been through a lot
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. BRAF mutation. CEA 39.5
July 2020 - January 2022: 25 cycles chemo (FOLFOXIRI x9, FOLFIRI x12, 5-FU x4) + Avastin (discontinued Nov 2021)
January 2022 - Present: Xeloda
December 2020 - February 2021 Radioembolization, Chemoembolization x2


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