My Current Protocol——-All Thoughts/Criticism Welcomed

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prayingforccr
Posts: 350
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Mon Jun 20, 2022 3:55 pm

So………….

Yervoy infusion will be given monday july 11

SBRT starts tues july 12

5 sessions tues/fri and monday to one lung lesion looking to incite abscopal effect.

Opdivo/yervoy will then be given every 21 days until progression or unacceptable toxicity for a maximum of two years.

We should know if its working after two or three month scans.

My personal feeling is that there is probably more than twice the probability that it doesn’t work as opposed to the possibility that it does.

But it is my best shot.

I have to believe that it will work.

I love you, Erin.

Over and out until my first scans in september.
Last edited by prayingforccr on Tue Jun 21, 2022 3:21 pm, edited 1 time in total.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

Rock_Robster
Posts: 689
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Rock_Robster » Tue Jun 21, 2022 7:15 am

Isn’t vitamin E radioprotective? It was one of the few things my rad onc was very clear that I shouldn’t take.

Good luck for the treatment!
40M Australia
2018 Dx RC, 12cm high
G2, EMVI, LVI. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14; then <2. Jun-22: 5
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic IMRT radiation
7/19 ULAR & ileo (reversed)
8/19 Liver lesion
8/19 FOLFOX, FOLFOXIRI, FOLFIRI x7
12/19 Liver resection
NED
11/21 Liver met & celiac node; 2-3 tiny lung things
12/21 PVE
3/22 Nodal spread & 3 liver mets. Lymphadenectomy
4/22 Liver SBRT
6/22 Liver looks good. Still some small lung things

prayingforccr
Posts: 350
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Jun 21, 2022 7:38 am

Rock_Robster wrote:Isn’t vitamin E radioprotective? It was one of the few things my rad onc was very clear that I shouldn’t take.

Good luck for the treatment!


Holding off until after the week of sbrt

Thank you, Rock Robster
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy


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