My Current Protocol——-All Thoughts/Criticism Welcomed

Please feel free to read, share your thoughts, your stories and connect with others!
prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Mar 31, 2022 5:32 pm

I know it’s working, but gotta suspend at these levels.

My local oncologist freaked.

Again, I think it’s the artusenate.

https://academic.oup.com/cid/article/51/12/e105/317760

Going to chill for two weeks
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Apr 05, 2022 4:25 pm

Ive restarted the fenbendazole (2000mgs dissolved in dmso), 2000 mgs liposomal curcumin, 1/2t black seed oil, 50 mgs full spectrum cbd oil, 5 clicks ivermectin dissolved in vodka, split doses of cimitadine, 10g claritin, and tudca.

I will do this each day until my next blood test and wbc.

If normal, Ill do the 21 day artemisinin protocol again, understanding it will wreak havoc with my wbc.

But I think it works, and really want improved scans in june.
Last edited by prayingforccr on Wed Apr 06, 2022 3:12 pm, edited 1 time in total.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Tue Apr 05, 2022 7:56 pm

I love you found a low toxic protocol that works for you!
Personalized immunotherapy. Rp has talked about this so much.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

jsbsf
Posts: 92
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby jsbsf » Tue Apr 05, 2022 8:07 pm

Hi Prayingforccr,

Have you taken Turkey tail (psk)? That, along with Modified citrus pectin, has been a big part of our daily routine for a long time. We also started back on Ip6 w/ Inositol. Now taking 2 6.9g scoops in water, daily.

We started back on the fenbendazole (1g daily 3 days on and 4 days off). I read somewhere that adding olive oil to it woul help it be absorbed.

I’m wondering if there is anything specific that might help prevent/delay high grade dysplasia from progressing to cancer.
DH 61
2019 4A t3 n2 m1a
8/23 C-scopy, 5+cm mass. CEA:4.1
8/26 CT ~1cm lvr met?
9/6 PET: lvr spot
9/16 MSS. MRI: 2 live mets: 2.7 & 7mm
9/23 Port
9/30 Start FOLFOX 1-6
10/4 Lg lvr met ~3.7cm (raised concern), pri tmr stable.
CEA: 10/13,12.5;10/27-12/8 btw 4.7 & 3.1
11/5 both lvr mets ~ 2/3 smaller.
12/17 PET: sm lvr met gone, remaining tmrs @10% of orig sz & actvty
Chemo break
2020
MWA 2/5, Lap resection 2/11
CEA: 3/1-5/31 btw 2.1&2.9
3/2 start FOLFOX 7-12
7/23-29 rad
10/2/2020 NED/W&W

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Wed Apr 06, 2022 5:32 pm

beach sunrise wrote:I love you found a low toxic protocol that works for you!
Personalized immunotherapy. Rp has talked about this so much.


Low, to no growth in nodules for 6 months with most having holes (cavitation).

I was pretty resigned to death in short order 6 months ago.

Now, I’m cautiously hopeful and grateful.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Thu Apr 07, 2022 1:40 am

jsbsf wrote:Hi Prayingforccr,

Have you taken Turkey tail (psk)? That, along with Modified citrus pectin, has been a big part of our daily routine for a long time. We also started back on Ip6 w/ Inositol. Now taking 2 6.9g scoops in water, daily.

We started back on the fenbendazole (1g daily 3 days on and 4 days off). I read somewhere that adding olive oil to it woul help it be absorbed.

I’m wondering if there is anything specific that might help prevent/delay high grade dysplasia from progressing to cancer.


Phenols definitely would help I think. Enhance oxygen while reducing free radicals in turn reduces oxidative stress. Grapeseed (Japanese knotwood) high dose, AMLA, Ginseng, Ashwaghanda, Cordyceps, Astragalus, Niacin. Many more.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Apr 07, 2022 2:49 am

beach sunrise wrote:I love you found a low toxic protocol that works for you!
Personalized immunotherapy. Rp has talked about this so much.


Hoping it’s working.

Only as good as my next scans.

The low wbc count was a huge setback as I had to suspend the artemisinin 21 day, which I believe to be the most effective.

Ive taken to adding both the cbd oil and the black seed oil to the dmso to increase bioavailability.

So my morning cocktail is now 2000 mgs fenben/50mgs cbd oil/.5t black seed oil dissolved in dmso and topped off with grapefruit juice. I also take 2k liposomal curcumin, 5000 d3, 800 mg vit e, split doses of cimetidine, 5 clicks ivermectin dissolved in vodka topped with grapefruit juice, 10mg claritin, tudca.

Waiting for the all clear to resume 21 day artemisinin protocol.

I want these cavitations to completely collapse some/most/all the nodules in my next scan (june).
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Thu Apr 07, 2022 9:49 am

I hope your findings encourage others to research personalized care for their benefit.
I might start doing your method of DMSO with what I take that equals yours.
I'll be waiting on your scan report posting.
What are your markers looking like besides WBC? Inflammation, tumor markers, ect?
Whey Protein Concentrate, grass fed might help with WBC. I take it twice a day, full scoop and believe it has helped mine. All the amino acids and probiotic gut helpers, fiber.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Apr 07, 2022 9:59 am

beach sunrise wrote:I hope your findings encourage others to research personalized care for their benefit.
I might start doing your method of DMSO with what I take that equals yours.
I'll be waiting on your scan report posting.
What are your markers looking like besides WBC? Inflammation, tumor markers, ect?
Whey Protein Concentrate, grass fed might help with WBC. I take it twice a day, full scoop and believe it has helped mine. All the amino acids and probiotic gut helpers, fiber.


Bloods were vg prior to the last one with the exception of a rise in cea to 5.3.

It fell back to 4.3 in latest bloods.

Set for new bloods in about 10 days.

I’m hopeful the increase in cea was due to die off shedding into the bloodstream from the artemisinin/artusenate protocol.

Bummer about the wbc, but I’m keepin’ on with my goal being remission/ned.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Thu Apr 07, 2022 6:12 pm

Black Seed is suppose to be good for WBC from what I read.
Also read cat's claw and astragalus are good for WBC.
Have your doc check your T&B Lymphs maybe?
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Apr 07, 2022 6:16 pm

beach sunrise wrote:Black Seed is suppose to be good for WBC from what I read.
Also read cat's claw and astragalus are good for WBC.
Have your doc check your T&B Lymphs maybe?



I’m all about the upregulation of tp53
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Fri Apr 08, 2022 3:00 pm

Yep, most common mutation.
Phytonutrients. A big one is pomegranite extract. Might be only phytonutrients studied by our official gov't NIH, go figure!
Also think about ATP as it relates. Mitochondria.
It is also found in "Independent studies" that radiation plays a role in mutations. Melatonin helps protect DNA from radiation damage.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

jsbsf
Posts: 92
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby jsbsf » Tue Apr 12, 2022 4:15 pm

I tried sending a PM to prayingforccr, but it seems stuck in the outbox.

We ordered black seed oil and have been taking it for a few days. Seems good no matter what. Only taking the recommended 500mg 2x/day for the time being. We will most likely know in a couple weeks if the High Grade Dysplasia is accompanied by cancer cells and/or if any cancer has spread. Just trying to get our ducks lined up…

An MRI is scheduled for next Monday 4/18. An Ultrasound with biopsies is scheduled for Wednesday 4/20.

I’m wondering if there is a particular brand of Ivermectin that has a good reputation. I didn’t understand what a “click” meant, as in 5 clicks. Is there some sort of clicker on the container that dispenses the supplement?

He hasn’t had chemo for coming up on 2 years.

Is Ivermectin meant to be an alternative to Fenbendazole? Or can those be used together? Don’t want to risk toxicity if it’s not necessary.
DH 61
2019 4A t3 n2 m1a
8/23 C-scopy, 5+cm mass. CEA:4.1
8/26 CT ~1cm lvr met?
9/6 PET: lvr spot
9/16 MSS. MRI: 2 live mets: 2.7 & 7mm
9/23 Port
9/30 Start FOLFOX 1-6
10/4 Lg lvr met ~3.7cm (raised concern), pri tmr stable.
CEA: 10/13,12.5;10/27-12/8 btw 4.7 & 3.1
11/5 both lvr mets ~ 2/3 smaller.
12/17 PET: sm lvr met gone, remaining tmrs @10% of orig sz & actvty
Chemo break
2020
MWA 2/5, Lap resection 2/11
CEA: 3/1-5/31 btw 2.1&2.9
3/2 start FOLFOX 7-12
7/23-29 rad
10/2/2020 NED/W&W

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Tue Apr 12, 2022 4:22 pm

Black seed oil is potent. I take 2 500mg 2x per day. A quote from a famous person before Christ I believe is quoted as saying "Black Seed Oil cures everything but death"
Someone correct me if I am wrong but tractor supply ivermectin is 1 click per 50 lbs.
No idea is you can take IVM and fenben together.
I do take IVM, mebendazole and Itraconazole all in the same day with time seperations.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Apr 12, 2022 4:47 pm

beachsunrise is correct on the dosage

I take 5 clicks every fourth day which corresponds with the half life of ivermectin

The ivermerctin should be dissolved in vodka, topped with grapefruit juice, and taken outside of two hours of food consumption (both before and after)

I take it in addition to the fenben/cbd/black seed oil cocktail dissolved in dmso each day in concert with the liposomal curcumin, split doses of cimetidine, and tudca.

I am investigating another line of attack……..

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6949083/

I will be pulsing a “senolytic stack” every 10 days

Luteolin 100 mg
Apigenin 50 mg
Lipo Fisetin 500 mg
Lipo Quercetin 100mg
Resveratol 300 mg
Grape Seed Extract 100 mg
Vitamin c 800 mg
Dhea 50 mg

Alcar 3-6 mgs a day

I think this is a reasonable line of attack to kill stem cells.

Which means my arsenal consists of the daily fenben regimin(listed above), the 21 day artemisinin protocol, ivermectin every fourth day, and now this senolytic stack.

I’m tired to be honest.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 6 guests