My Current Protocol——-All Thoughts/Criticism Welcomed

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Rikimaroo
Posts: 394
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Rikimaroo » Tue Mar 15, 2022 2:21 pm

wow PCCR, great news man. Very happy for you, where did you get all the stuff that you are using amazon?
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

Claudine
Posts: 680
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Claudine » Tue Mar 15, 2022 2:24 pm

That's fantastic!! So happy for you. Enjoy Spring :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Mar 15, 2022 2:27 pm

Rikimaroo wrote:wow PCCR, great news man. Very happy for you, where did you get all the stuff that you are using amazon?


Ill DM you
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

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beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Tue Mar 15, 2022 2:49 pm

Hey, I am not stunned. I was so impressed with the regime you put together. Very powerful anti-cancer protocol. It worked in synergy!
Keep up with bloodwork along the way say every 7 to 14 days looking for trends.
Yes, IVC would def help also. How many grams per infusion you thinking?
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Mar 15, 2022 3:21 pm

beach sunrise wrote:Hey, I am not stunned. I was so impressed with the regime you put together. Very powerful anti-cancer protocol. It worked in synergy!
Keep up with bloodwork along the way say every 7 to 14 days looking for trends.
Yes, IVC would def help also. How many grams per infusion you thinking?



Thank you for your continued support and kind words, beachsunrise.

Everything is geared to upregulating that p53 mutation.

I’m hoping the bump in the cea to 5 was a result of shedding as a result of apoptosis during the artemisinin protocol, although admittedly, this is grasping at straws, but Dr Formenti is with me.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

Tomaz26
Posts: 13
Joined: Fri Feb 04, 2022 12:10 pm
Facebook Username: tomaz.korosec1

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Wed Mar 16, 2022 6:51 pm

Wooohooo, congrats man!

I think artemisinin made the biggest difference.. ! Fenben could be a factor too as both have a loot of promising stories and research behind it. So does ivermectin which as they say can turn the cold tumor hot! I think Curt really made
an awesome anticancer protocol with adition of MSM, Coq10, some mushroom extracts, garlic + lemon etc.. IV Vit C as Mark and Jane say has also lots of good research behind it. So does high dose THC + CBD.. Curcumin for sure as it works
on so many pathways simultanuously like no other supplement. Some do one, some do other, but curcumin I think does 6+.

I sent you a PM about protocol, but maybe you can also share your protocol here if others find it interesting. I am trying to do someting similar, but I paused artemisinin for a bit now as I am dealing with tinnitus which I never had
before and I saw that artemisinin can cause it, but so can capecitabine, which I also take, but very very small dose, which should not cause it. I am being presribed 2 x 2150mg daily, but I took like 2 x 500mg and not even all the time.
So for now I suspect either high reishi extract (8:1 from nootropics depot which I took together with turkey tail extr) or artemisinin which I read can also cause when tested on patients who took it for malaria.. Ototoxicity from both.. But ok
if it stops with tinnitus I can manage that, I am afraid it could progress to something worse..

Anyway would be nice to see your protocol in detail exactly what you took in what dosage and when, before/after meal, artemisinin which derivatives, it you took ti together with heme iron? There are just so many options here and
a lot of them matter at the end :)

hope not asking too much as I think it can also help others which will read thise thread for months or even years to come :)

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Mar 17, 2022 3:40 am

Artemisinin Protocol Version One:

Version one uses liposomal artemisinin from Healthy Drops and artesunate from Hepalin:

Each morning for 21 straight days swallow two tablespoons of liposomal artemisinin (1,200 mg) from Healthy Drops.

Chase the liposomal artemisinin with 200 mg of grapefruit juice, 2 capsules of sodium butyrate and 1-2 capsules of piperine.

As well, take 500 mg of artesunate on a pulse basis along with the liposomal artemisinin meaning that you take the artesunate for 3 days with the lipsomal artemisinin and then take four days off of the artesunate (but keep taking the liposomal artemisinin).

Note that on this version you should take 20-30 mg of a heme based iron with 500 mg of vitamin C every other night with your evening meals before taking the liposomal artemisinin.

https://www.healthydrops.net/product/li ... inin-annua

https://www.hepalin.com/hepasunate50.htm

I also take 5 clicks of ivermectine dissolved in vodka topped with grapefruit every fourth day.

When not doing the artemisinin protocol, I do 2000mg fenben pure dissolved in dmso from happy healing store, 1000mg curcumin, 40mg cbd oil. The fenben is with a meal, the cbd and curcumin must be taken after eating and not on an empty stomach. I add 1 teaspoon black seed oil to the fenben.

I take split doses of 800mg cimetidine (enhances plasma level time) 2 hours apart from everything else, and 10mgs of claritin (clearance)

I take tudca before bedtime for the liver.

I’m thinking off adding in vitro vitamin c.

Does this work?

I don’t know. Will update as results come in.

Been stable for 6 months, and many nodules (10+) show cavitation.

Dr Chachoua and I discussed that cavitation means one of two things 1) the tumor is growing so quickly that it outgrows its blood supply and the center collapses leaving a viable ring of tumor 2) treatment effect (apoptosis)

We ruled out number 1
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Fri Mar 18, 2022 8:46 am

Will be starting the Breuss Diet in addition to other protocols on Monday.

The Breuss diet is based on a 42 -day fast, but the definition of "fast" used in the Breuss diet actually includes certain types of foods, such as raw fruits and vegetable juices, all taken in liquid form. The theory is that cancer cells can only live on the protein of solid food. Therefore, if you drink nothing but vegetable juice and teas for 42 days the cancerous cells die while the normal cells continue to thrive.
"Breuss juice vegetable juice that consists of 55% red beet root, 20% carrots, 20% celery root, 3% raw potato, 2% radishes ... The potato is optional except for liver cancer where it plays an important part." His book actually talks about multiple diseases.
The diet contains virtually zero glucose and other sugars. Researchers also believe it works because cancer cells are very inefficient at processing glucose and other sugars and that the formula literally starves the cancer cells to death by depriving them of glucose and other sugars.
Normal cells can survive on much less glucose and other sugars because they are much more efficient at processing these items.
Filtered green tea and filtered Essiac tea have been natural enhancements to the Breuss diet.

Upon completion, I will be doing iv vitamin c 3x a week until June scans.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

Tomaz26
Posts: 13
Joined: Fri Feb 04, 2022 12:10 pm
Facebook Username: tomaz.korosec1

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby Tomaz26 » Fri Mar 18, 2022 4:09 pm

Thank you very much for reply and detailed explanation of protocol! I do something similar now altough currently with much lower doses of artemisinin. I am afraid to pop 10 pills of artesunate and 1.200mg of artemisinin, ugh. Studies I saw used much lower doses and I hope I do not destroy liver in the process :D Ok Tudca and MSM should help a bit, if I locate tudca here anywhere..

Did you have any side effects from that high dose or art?

I suppose you do not use any CBD or T H C?

The things that should work for CRC and have many studies and user stories are high dose curcumin, artemisinin, ivermectin, fenben, cbd&thc, DCA, 2DG.. Lately some colloidal silver and methylene blue stories emerging, high dose milk thistle and quercetin. Also muhsrooms! A lot of very positive stories for reishi, turkey tail, lions mane,.. And of course many natural treatments and diets like you described in last post. Gerson, Breuss, raw vegan.. I saw most survivers in raw vegan column..
I guess pick your posion and do it thoroughly. For now I am just mixing it up too much and not taking large enough doses of anything to really make a difference. I will need to up the game and hope it works. Still better and I guess less side effects than from Oxaliplatin or similar agents...

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Fri Mar 18, 2022 5:01 pm

cbd oil everyday after meals, as indicated in protocol above.

I follow curt michael graydon’s protocol to the letter

No room for improv
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

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beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Fri Mar 18, 2022 6:55 pm

From what ND said, most supplements can be taken in high dose up the 3x the suggested amount. Reason being is the body only processes what it can absorb in a timely manner. Most of my supplements such as milk thistle (silophos) I take 6 caps T.I.D, genistein 7caps T.I.D, ect.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Mar 24, 2022 4:26 pm

Threw in the towel on the breuss diet

No way I can see to survive on one little bottle of beet juice a day for 42 days.

Made it 4.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

User avatar
beach sunrise
Posts: 647
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Thu Mar 24, 2022 9:58 pm

Hey pccr, question for you.
Is your protocol just for CRC?
My daughter in laws dad has liver cancer that has spread to pancreas and spine, so just asking.

AND ya, food is important :)
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 317
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Mar 31, 2022 4:24 pm

Blood tests today……….wbc collapsed from 5.0 to 1.4 within 3 weeks

Suspending artemisinin protocol until new tests in two weeks.

My reading leads me to believe the artusenate may be the culprit, but I expect things to rebound in the next two weeks.

Bummed, but unbowed.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months…..most showing cavitation.

MadMed
Posts: 123
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby MadMed » Thu Mar 31, 2022 4:41 pm

Wow, well it is doing something for sure. That’s a big drop, neulasta shot can boost it if you want to go that route.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022


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