My Current Protocol——-All Thoughts/Criticism Welcomed

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prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat Dec 25, 2021 12:34 pm

At 5am, I awaken to take liposomal artemisinin, vit c, sodium butyrate

Each morning, I do the Tippens Protocol (900mg fenbendazole dissolved in dmso, 35 mg cbd oil, 4000 mg of curcumin).

800 mg of cimetidine in split doses to enhance and maintain plasma levels of fenbendazole

Afternoon 1000mg each of quercetin, berberine, ip6 dissolved in dmso.

120,000 spu serrapeptase and 500mg Tudca at bedtime for clearance of dead cells/liver support.

Ivermectin is dissolved in vodka to enhance bioavailability and taken every four days corresponding with half life.

This is the sum of my research.

Scans in March.

I love you, Erin. I’m ok.
Last edited by prayingforccr on Sun Dec 26, 2021 12:31 am, edited 3 times in total.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

JJH
Posts: 394
Joined: Mon Apr 24, 2017 7:26 am

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby JJH » Sat Dec 25, 2021 3:13 pm

1. Your updated, expanded signature (subject to correction)
    11/2019: Colonoscopy at xx yrs
    12/2019: Dx Stage 3C, T4bN2bM0, rectal cancer with a 6.6cm tumor invading the external anal sphincter.
    12/2019: MSI status = MSI-H
    12/2019: Baseline CEA = ???
    01/2020 - Start of TNT (Total Neoadjuvant Therapy)
    03/2020 - 20 sessions of radiation, Mon-Fri capecitabine+clinical trial drug m3814 (Preposertib)
    03/2020 CEA = 1.5 ng/mL
    07/2020: 8 treatments FOLFOX
    11/2020 End of TNT standard of care (SOC)
    11/2020 Beginning of W&W passive surveillance period.
    11/2020: Primary tumor had complete response. However, possible tumor deposits on latest MRI. Biopsy negative for cancer.
    12/2020 to 05/2020: Five months of HBOT therapy for treatment of radiation damage
    05/2021: Multiple (nine) lung nodules (3-6mm) on CT scan, six months after completion of TNT.

    08/2021: CT scan update - the bi-lateral multiple lung nodules increased in size.

    10/2021: MD Anderson gives me 1 year without treatment/3 years with FOLFIRI/Avastin (refused)

    03/2022 Will begin 1st-line mCRC immunotherapy Opdivo (Nivolumab)  / Yervoy (Ipilimumab) at NYU/Langone, along with SBRT at Weill Cornell: March 2022 - May 2022, for 10 weeks. Meanwhile, will be doing daily customized CAM protocol for TP53 gene activation
    ===========
    Comorbidities: Weight: 225 lbs = Class 1 Obesity
    Smoker? Y/N?
    Diabetic? Y/N?
    ===========
    Family history - Mother, bone cancer
    ===========
2. Updated TP53 gene activation protocol -- a specialized 1st-line mCRC complementary/alternative medicine (CAM) approach.

    Thank you for your post and for giving the details of your current protocol.

    I have no experience with this kind of protocol, but my questions would be:

    1. What kind of research did you do in order to arrive at such a diverse collection of medications/supplements?
      Liposomal Artemisinin
      Vitamin C
      Sodium Butyrate
      Fenbendazole (Panacur)
      DMSO ( Dimethyl Sulfoxide )
      CBD oil (Cannabidiol)
      Curcumin
      Cimetidine (Tagamet)
      Quercetin
      Berberine (Berberine Hydrochloride)
      IP-6 (Inositol Hexaphosphate - Phytic Acid)
      Serrapeptase
      TUDCA ( Tauroursodeoxycholic Acid )
      Ivermectin
      Vodka
      Black seed oil
      Grapefruit juice
      Boswellia serrata
      Mullein tincture
    2. How do you know that all of these items will be mutually compatible with no significant or dangerous interactions?

    3. Does your oncologist know that you are taking all of these things?

    4. How did you determine the timing for taking the different items (i.e., before, during, or after meals; or morning vs. afternoon vs. evening, etc.)?

    5. How do you manage to buy confirmed high-quality products rather than poorly manufactured, contaminated, or falsely advertised products?

    Thank you.
Last edited by JJH on Thu Dec 30, 2021 8:53 am, edited 1 time in total.
"The darkest hour is just before the dawn" - Thomas Fuller (1650)
●●●

User avatar
beach sunrise
Posts: 660
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sat Dec 25, 2021 8:07 pm

Sounds like a pretty good plan. I take 3 different azoles plus xeloda.
No Bromelain or melatonin?
How much C per day?
Also, when using DMSO, you are taking it in distilled water?
I use DMSO, good stuff. Took a while to know all I could possibly find on it thru the internet and books.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat Dec 25, 2021 10:21 pm

beach sunrise wrote:Sounds like a pretty good plan. I take 3 different azoles plus xeloda.
No Bromelain or melatonin?
How much C per day?
Also, when using DMSO, you are taking it in distilled water?
I use DMSO, good stuff. Took a while to know all I could possibly find on it thru the internet and books.


I take the dmso dissolved supplements along with grapefruit juice to enhance bioavailability.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

User avatar
beach sunrise
Posts: 660
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sat Dec 25, 2021 10:41 pm

The grapefruit juice is an interesting concept.
DMSO is a great anti-inflammatory also so you are getting a bonus there.
Do you take it every day?
I have read it stays in the body for 3 days. So, thats my protocol as of now. I take it with all the lung stuff ND suggested. And use it topically for inflammation.
Do you take boswellia serrata? Good stuff also for lung health studies show.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat Dec 25, 2021 10:49 pm

JJH wrote:Thank you for your post and for giving the details of your current protocol.

I have no experience with this kind of protocol, but my questions would be:

1. What kind of research did you do in order to arrive at such a diverse collection of medications/supplements?
    Liposomal Artemisinin
    Vitamin C
    Sodium Butyrate
    Fenbendazole (Panacur)
    DMSO ( Dimethyl Sulfoxide )
    CBD oil (Cannabidiol)
    Curcumin
    Cimetidine (Tagamet)
    Quercetin
    Berberine (Berberine Hydrochloride)
    IP-6 (Inositol Hexaphosphate - Phytic Acid)
    Serrapeptase
    TUDCA ( Tauroursodeoxycholic Acid )
    Ivermectin
    Vodka
2. How do you know that all of these items will be mutually compatible with no significant or dangerous interactions?

3. Does your oncologist know that you are taking all of these things?

4. How did you determine the timing for taking the different items (i.e., before, during, or after meals; or morning vs. afternoon vs. evening, etc.)?

5. How do you manage to buy confirmed high-quality products rather than poorly manufactured, contaminated, or falsely advertised products?

Thank you.


I know what DOESN’T work.

1970s chemotherapy doesn’t work.

As far as interactions, I think because ip6 is an iron chelator, it should be taken separate from the artemisinin.

Other than that, my research indicates all clear.

My radiologist/oncologist is on board with what I am doing.

My selection of supplement brands are as researched as the supplements themselves.

I’m not going to shill for them here, but would be happy to remit via DM.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat Dec 25, 2021 10:57 pm

beach sunrise wrote:The grapefruit juice is an interesting concept.
DMSO is a great anti-inflammatory also so you are getting a bonus there.
Do you take it every day?
I have read it stays in the body for 3 days. So, thats my protocol as of now. I take it with all the lung stuff ND suggested. And use it topically for inflammation.
Do you take boswellia serrata? Good stuff also for lung health studies show.


Everyday. Just enough to dissolve the powders, then topped with grapefruit juice.

I am adding the boswellia serrata this week along with mullein tincture.

If I am stable or better in March, I will do RSO protocol and IV vitamin c.

Research is mixed on the use of cannabinoids for colorectal cancer as the receptors are often bound up.

Ideally, perhaps unrealistically, I am hoping to kill the nodules and avoid immunotherapy/sbrt.

More realistically, I am hoping to beat the living shit out of any cancer cells in my body so that the immunotherapy/sbrt abscopal effect can finish them off.

It’s the best plan Ive been able to come up with.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

User avatar
beach sunrise
Posts: 660
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Sat Dec 25, 2021 11:55 pm

Sounds like you are on it! Good for you.
Research high level D3+K2 and Niacin for cancer if you are not already taking these. I take high dose of both.
Orthomolecular.org is a great site if you haven't heard of it.
I absolutely love mullein tea with cinnamon. Great for lung heath mullein is.
IVC is proven for years to fight cancer. It's the top thing for me and what has kept me so stable for over 2 years.
I will looking for updates from you on your protocol.
I have until March on current protocol til next scan so hoping for good results still on 2 lung nodes showing up. Not growing or liting up or anything. Been there for over 2yrs but with cancer everything puts me on edge to pay attention and like you said "beat the living s*** out of it" every day.
One more thing, I only use coconut oil now as body lotion. Good stuff also. Read about it. Some people take it internally. I do put it in my coffee, the MCT version with the C8-C10 C12 in it.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

JJH
Posts: 394
Joined: Mon Apr 24, 2017 7:26 am

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby JJH » Mon Dec 27, 2021 12:43 am

Another comment. Your current protocol is different from the one you posted back in November 2020.

viewtopic.php?f=1&t=65089&p=506451#p506451

Is your new protocol actually a hybrid protocol designed to address COVID-19 in addition to cancer? I notice that you now have Ivermectin in your protocol. And what about COVID-19 vaccine? Are you fully vaccinated now?
"The darkest hour is just before the dawn" - Thomas Fuller (1650)
●●●

prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Mon Dec 27, 2021 6:00 am

JJH wrote:Another comment. Your current protocol is different from the one you posted back in November 2020.

viewtopic.php?f=1&t=65089&p=506451#p506451

Is your new protocol actually a hybrid protocol designed to address COVID-19 in addition to cancer? I notice that you now have Ivermectin in your protocol. And what about COVID-19 vaccine? Are you fully vaccinated now?


Nothing to do with the scamdemic.

Protocol continues to evolve with research.

Looking to add FECO and iv vitamin c.

https://www.sciencedirect.com/science/a ... 1820315152
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Tue Dec 28, 2021 8:43 pm

Adding black seed oil to daily protocol:

https://pubmed.ncbi.nlm.nih.gov/1537553 ... fExWNS7ND4

I think this will be the final add until March scans

All my supplements/herbs are trying to activate/upregulate tp53

See what we see.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

User avatar
beach sunrise
Posts: 660
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Wed Dec 29, 2021 2:42 am

You catching up with me :) I've been on black seed oil for a while.
Another one for TP53 is pomegranite extract (I take it in high dose) and another one I can't think of right now (might be mulberry). Will post when it comes to mind.
Ah, here it is
https://www.medsci.org/v19p0089.pdf
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Thu Dec 30, 2021 11:59 am

beach sunrise wrote:You catching up with me :) I've been on black seed oil for a while.
Another one for TP53 is pomegranite extract (I take it in high dose) and another one I can't think of right now (might be mulberry). Will post when it comes to mind.
Ah, here it is
https://www.medsci.org/v19p0089.pdf


Any thoughts on low dose aspirin?
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy

User avatar
beach sunrise
Posts: 660
Joined: Thu Mar 05, 2020 7:14 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby beach sunrise » Thu Dec 30, 2021 2:14 pm

With celebrex I am careful not to overdo it with aspirin.
I do take aspirin when bloodwork shows I need to.
Lately I have been taking one celebrex in the morning then half a 325mg aspirin at night diluted in water. Diluting it makes it easier on the liver I believe.
I have read on here someone took celebrex morning and night along with a low dose aspirin in the daytime. Can't remember who posted though.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 352
Joined: Sun Jun 28, 2020 4:44 pm

Re: My Current Protocol——-All Thoughts/Criticism Welcomed

Postby prayingforccr » Sat Jan 15, 2022 4:15 pm

beach sunrise wrote:With celebrex I am careful not to overdo it with aspirin.
I do take aspirin when bloodwork shows I need to.
Lately I have been taking one celebrex in the morning then half a 325mg aspirin at night diluted in water. Diluting it makes it easier on the liver I believe.
I have read on here someone took celebrex morning and night along with a low dose aspirin in the daytime. Can't remember who posted though.



I am going to do a 21 day artemisin protocol beginning feb 1 in advance of march scans, and will put a hold on all but the ivermectin and tudca during that time.

Is it/will it work?

I don’t know, but Ill know I have done my personal best

My weight is stable at 193 and lungs are clear when listened to with stethoscope.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
7/22 beginning sbrt and immunotherapy


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