10 years NED and released by my oncologist today.

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teacher49
Posts: 186
Joined: Sun Aug 14, 2011 10:34 am

10 years NED and released by my oncologist today.

Postby teacher49 » Wed Dec 22, 2021 11:22 pm

Had my last follow up with my oncologist. All labs good. CEA < 1. feel good and still teaching online. Thankful! Merry Christmas to all!
F, 62,CRC, Adenoca, mod diff
cT3N0M0 Stage IIA May 2011
chemorad
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 8/11/2021

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Kick'nAssCancer'sAss
Posts: 242
Joined: Tue Feb 25, 2014 4:38 pm

Re: 10 years NED and released by my oncologist today.

Postby Kick'nAssCancer'sAss » Thu Dec 23, 2021 8:31 am

Amazing news
Congrats

Mike
53M Dx RC Halloween 2013
easily the scariest day of my life
My Journey Journal
over 12,000 reads globally
https://kickingasscancersass.blogspot.com/

prayingforccr
Posts: 368
Joined: Sun Jun 28, 2020 4:44 pm

Re: 10 years NED and released by my oncologist today.

Postby prayingforccr » Thu Dec 23, 2021 9:12 am

Best Christmas gift of all.

Congratulations!
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

stu
Posts: 1573
Joined: Sat Aug 17, 2013 5:46 pm

Re: 10 years NED and released by my oncologist today.

Postby stu » Thu Dec 23, 2021 5:42 pm

The best of news . Enjoy !
Court
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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CRguy
Posts: 10390
Joined: Sun Feb 10, 2008 6:00 pm

Re: 10 years NED and released by my oncologist today.

Postby CRguy » Sat Dec 25, 2021 3:10 pm

Celebration !

Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
15 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

I_will_fight
Posts: 103
Joined: Mon Jun 29, 2020 3:38 pm

Re: 10 years NED and released by my oncologist today.

Postby I_will_fight » Mon Dec 27, 2021 12:14 am

Kick'nAssCancer'sAss wrote:Amazing news
Congrats

Mike


Mike, I have just started reading your blog. Very interesting and kind of humorous. Thanks for taking the time of writing it.

BR
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

I_will_fight
Posts: 103
Joined: Mon Jun 29, 2020 3:38 pm

Re: 10 years NED and released by my oncologist today.

Postby I_will_fight » Mon Dec 27, 2021 12:16 am

teacher49 wrote:Had my last follow up with my oncologist. All labs good. CEA < 1. feel good and still teaching online. Thankful! Merry Christmas to all!


Super big congrats on your ten years mark.

Javi
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

DarknessEmbraced
Posts: 3701
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 10 years NED and released by my oncologist today.

Postby DarknessEmbraced » Mon Dec 27, 2021 8:13 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Punky44
Posts: 492
Joined: Mon Oct 01, 2018 4:29 pm

Re: 10 years NED and released by my oncologist today.

Postby Punky44 » Mon Dec 27, 2021 6:36 pm

Congratulations!!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0
Latest update: 6/29/22 - Clear CT with CEA 3.0

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

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horizon
Posts: 1654
Joined: Tue Apr 12, 2011 10:10 pm

Re: 10 years NED and released by my oncologist today.

Postby horizon » Mon Jan 10, 2022 2:15 pm

Big congrats! Wow, my onc released me way before 10 years. :shock:
I'm just a dude who still can't believe he had a resection and went through chemo (currently 11 years NED). Is this real life?

prayingforccr
Posts: 368
Joined: Sun Jun 28, 2020 4:44 pm

Re: 10 years NED and released by my oncologist today.

Postby prayingforccr » Tue Jan 11, 2022 4:54 pm

Fantastic news!

On a personal note, were you ever able to resolve the neuropathy in the feet?

Mine’s pretty bad.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 No growth in nodules 6 months
8/22 beginning sbrt and immunotherapy
10/22 TIL Therapy

Jolene
Posts: 176
Joined: Wed Jan 23, 2019 10:17 am

Re: 10 years NED and released by my oncologist today.

Postby Jolene » Fri Jan 14, 2022 9:58 pm

Huge huge congrats and lotsa of hugs !!

Were you seeing your onc for blood work monitoring ?

What was the agreement for a 10 years track?

Most patients would have been released at the 5 years mark !
Dx @ 39 F on WW managmeent
Nov 18 - Dx of a mid-rectal tumour at T3N1M0 (2cm) 7cm from AV
Dec 18 - CRT, 28 sessions + Capecitabine at 3000mg daily
Jan - Mar - Wait and watch in place (12 weeks)
Mar 19 - MRI, PET, sig flex and biopsy ordered to determine being a WW candidate.
Apr 19 - CCR success. Surgery on hold. 6 cycles of Xelox.
Aug 19 - 6 cycles of Xelox completed
Oct 19 - Flex sig, biopsy, PET/MRI
2020 - 2021 - Every 6 months - Full scope, Flex sig, biopsy, PET / MRI / CT
Jan 22 - 3rd year NED on WW

User avatar
teacher49
Posts: 186
Joined: Sun Aug 14, 2011 10:34 am

Re: 10 years NED and released by my oncologist today.

Postby teacher49 » Fri Jan 21, 2022 3:55 pm

I was told by ONC that for rectal ca, they followed for 10 years. That was OK with me.

To all who asked about neuropathy in my feet: Still take gabapentin...don't really know if it works or not. Still have problem toes. Worst is at night when my toes feel like they are buzzing.

I found that using Aspercreme w/4% lidocaine spray works at night. Hard to explain to anyone who has never experienced neuropathy in feet, how numbing your numb toes helps but it does. The numbing spray seems to quiet the firing nerve ends.

Best to everyone!
F, 62,CRC, Adenoca, mod diff
cT3N0M0 Stage IIA May 2011
chemorad
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 8/11/2021

User avatar
Atoq
Posts: 406
Joined: Wed Oct 25, 2017 9:31 am

Re: 10 years NED and released by my oncologist today.

Postby Atoq » Mon Feb 14, 2022 6:19 am

Congratulations! :D

Best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

Claudine
Posts: 699
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: 10 years NED and released by my oncologist today.

Postby Claudine » Mon Feb 14, 2022 9:26 am

I found that using Aspercreme w/4% lidocaine spray works at night. Hard to explain to anyone who has never experienced neuropathy in feet, how numbing your numb toes helps but it does. The numbing spray seems to quiet the firing nerve ends.


Interesting. My husband also has permanent neuropathy in his feet, he found that if I massage them before going to bed (I use a CBD oil cream), it helps a lot. He’s also on daily Gabapentin (which also helps for his back).

Congrats on the big 10 year mark :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11


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