10 years NED and released by my oncologist today.

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teacher49
Posts: 185
Joined: Sun Aug 14, 2011 10:34 am

10 years NED and released by my oncologist today.

Postby teacher49 » Wed Dec 22, 2021 11:22 pm

Had my last follow up with my oncologist. All labs good. CEA < 1. feel good and still teaching online. Thankful! Merry Christmas to all!
F, 62,CRC, Adenoca, mod diff
cT3N0M0 Stage IIA May 2011
chemorad
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 8/11/2021

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Kick'nAssCancer'sAss
Posts: 234
Joined: Tue Feb 25, 2014 4:38 pm

Re: 10 years NED and released by my oncologist today.

Postby Kick'nAssCancer'sAss » Thu Dec 23, 2021 8:31 am

Amazing news
Congrats

Mike
53M Dx RC Halloween 2013
easily the scariest day of my life
My Journey Journal
over 10,000 reads globally
https://kickingasscancersass.blogspot.com/

prayingforccr
Posts: 213
Joined: Sun Jun 28, 2020 4:44 pm

Re: 10 years NED and released by my oncologist today.

Postby prayingforccr » Thu Dec 23, 2021 9:12 am

Best Christmas gift of all.

Congratulations!
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 Will begin immunotherapy/sbrt at weill cornell and nyu/langone in march

stu
Posts: 1549
Joined: Sat Aug 17, 2013 5:46 pm

Re: 10 years NED and released by my oncologist today.

Postby stu » Thu Dec 23, 2021 5:42 pm

The best of news . Enjoy !
Court
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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CRguy
Posts: 10365
Joined: Sun Feb 10, 2008 6:00 pm

Re: 10 years NED and released by my oncologist today.

Postby CRguy » Sat Dec 25, 2021 3:10 pm

Celebration !

Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

I_will_fight
Posts: 89
Joined: Mon Jun 29, 2020 3:38 pm

Re: 10 years NED and released by my oncologist today.

Postby I_will_fight » Mon Dec 27, 2021 12:14 am

Kick'nAssCancer'sAss wrote:Amazing news
Congrats

Mike


Mike, I have just started reading your blog. Very interesting and kind of humorous. Thanks for taking the time of writing it.

BR
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

I_will_fight
Posts: 89
Joined: Mon Jun 29, 2020 3:38 pm

Re: 10 years NED and released by my oncologist today.

Postby I_will_fight » Mon Dec 27, 2021 12:16 am

teacher49 wrote:Had my last follow up with my oncologist. All labs good. CEA < 1. feel good and still teaching online. Thankful! Merry Christmas to all!


Super big congrats on your ten years mark.

Javi
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

DarknessEmbraced
Posts: 3673
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 10 years NED and released by my oncologist today.

Postby DarknessEmbraced » Mon Dec 27, 2021 8:13 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Punky44
Posts: 491
Joined: Mon Oct 01, 2018 4:29 pm

Re: 10 years NED and released by my oncologist today.

Postby Punky44 » Mon Dec 27, 2021 6:36 pm

Congratulations!!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4
Latest update: 12/27/21: Clear CT with CEA 3.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
horizon
Posts: 1647
Joined: Tue Apr 12, 2011 10:10 pm

Re: 10 years NED and released by my oncologist today.

Postby horizon » Mon Jan 10, 2022 2:15 pm

Big congrats! Wow, my onc released me way before 10 years. :shock:
I'm just a dude who still can't believe he had a resection and went through chemo (currently 10 years NED). Is this real life?

prayingforccr
Posts: 213
Joined: Sun Jun 28, 2020 4:44 pm

Re: 10 years NED and released by my oncologist today.

Postby prayingforccr » Tue Jan 11, 2022 4:54 pm

Fantastic news!

On a personal note, were you ever able to resolve the neuropathy in the feet?

Mine’s pretty bad.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 Will begin immunotherapy/sbrt at weill cornell and nyu/langone in march

Jolene
Posts: 175
Joined: Wed Jan 23, 2019 10:17 am

Re: 10 years NED and released by my oncologist today.

Postby Jolene » Fri Jan 14, 2022 9:58 pm

Huge huge congrats and lotsa of hugs !!

Were you seeing your onc for blood work monitoring ?

What was the agreement for a 10 years track?

Most patients would have been released at the 5 years mark !
Dx @ 39 F on WW managmeent
Nov 18 - Dx of a mid-rectal tumour at T3N1M0 (2cm) 7cm from AV
Dec 18 - CRT, 28 sessions + Capecitabine at 3000mg daily
Jan - Mar - Wait and watch in place (12 weeks)
Mar 19 - MRI, PET, sig flex and biopsy ordered to determine being a WW candidate.
Apr 19 - CCR success. Surgery on hold. 6 cycles of Xelox.
Aug 19 - 6 cycles of Xelox completed
Oct 19 - Flex sig, biopsy, PET/MRI
2020 - 2021 - Every 6 months - Full scope, Flex sig, biopsy, PET / MRI / CT
Jan 22 - 3rd year NED on WW


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