Mets to pelvis for brother

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JLD13
Posts: 11
Joined: Sun Feb 05, 2017 12:20 am

Mets to pelvis for brother

Postby JLD13 » Tue Dec 21, 2021 2:17 pm

Hello All,
Posting for my brother. Just found out there is Mets to his pelvis and lymph nodes. He’s been fighting this since 2017. Been through part of colon and rectal removal (perm colostomy) with chemo and radiation and then a reoccurrence found June 2020 in his bladder so more chemo and radiation done and had his bladder removed June 21. The surgeon was pretty confident he got all the cancer. He had his 6 month scan and followed up with the surgeon who basically said “I’m not going to sugarcoat this, it’s not good”. He’s scheduled for a pet scan this Thursday and plans to start chemo again. My brother is only 41 years old, recently married and currently trying to start a family using the sperm he froze prior to treatment. Just looking for some hope, prayers, positive vibes, similar experiences, advice, anything I guess. My family is very close and we’re just heartbroken once again and right before Christmas. Prayers and positive vibes to all of you and your loved ones fighting this awful disease.

stu
Posts: 1549
Joined: Sat Aug 17, 2013 5:46 pm

Re: Mets to pelvis for brother

Postby stu » Wed Dec 22, 2021 9:31 am

Hi ,
So sorry to hear your brother and your family are having to face more difficult news and face further treatment .
Hopefully a good treatment plan will assist in pulling this back under control . Getting a second opinion can also be very helpful in seeking out the best possible approach for him .
As you will see in my signature my mum hit a few bumps on the road before catching a break .
Chemo did a powerful job at pulling things back and opened up further options .
So here’s to successful treatment despite a difficult setback .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Claudine
Posts: 582
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Mets to pelvis for brother

Postby Claudine » Wed Dec 22, 2021 10:31 pm

A colleague of mine has been living with cancer for maybe 12 years now? She has an inoperable met in her pelvis area. Keeps it in check via chemo. Enjoys great quality of life :)
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 81.1, low 3.2, now 51
Scan 03/19: Multiple small lung nodules, now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
PET 12/17/2021: uptake in upper rectum, colonoscopy next

JLD13
Posts: 11
Joined: Sun Feb 05, 2017 12:20 am

Re: Mets to pelvis for brother

Postby JLD13 » Thu Dec 23, 2021 8:25 pm

Thank you so much for your replies! Coming on this forum usually always makes me feel better. He had his pet scan today but decided he doesn’t want to look at his results which will
Most likely be posted on his portal til after Christmas so he can just try and enjoy Christmas. Once I know more I’m sure I’ll post again. But thanks again and happy holidays to everyone!

prayingforccr
Posts: 213
Joined: Sun Jun 28, 2020 4:44 pm

Re: Mets to pelvis for brother

Postby prayingforccr » Fri Dec 24, 2021 10:36 am

Claudine wrote:A colleague of mine has been living with cancer for maybe 12 years now? She has an inoperable met in her pelvis area. Keeps it in check via chemo. Enjoys great quality of life :)


I’m hoping to get things to a point where I treat it as more of a chronic condition, ablating nodules as they grow.
11/19: colonoscopy
12/19: diagnosed with stage 3 rectal cancer 6+cm tumor
1-3/20: 20 sessions of radiation, mon-fri capecetibine+clinical trial drug m3814
7/20: 8 treatmentsFOLFOX
11/20: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
5/21: Multiple lung nodules (3-6mm) on ct scan
10/21: md anderson gives me 1 year without treatment/3 years with folfiri/avastin (refused)
3/22 Will begin immunotherapy/sbrt at weill cornell and nyu/langone in march


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