Hope - Thirteen Year Survival

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Surroundedbylove
Posts: 3125
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Hope - Thirteen Year Survival

Postby Surroundedbylove » Wed Nov 17, 2021 11:37 pm

Thirteen years ago I was diagnosed and was a frequent poster to this forum. I loved to see the posts when people returned many years later. Today that is me - Stage 3 survivor - rectal cancer - chemo radiation (oxaliplatin and xeloda simultaneously), surgery, more xeloda, reversal surgery. Alive and well in spite of some longterm side effects. Four lymph nodes at clinical diagnosis - two local and two regional.
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

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horizon
Posts: 1642
Joined: Tue Apr 12, 2011 10:10 pm

Re: Hope - Thirteen Year Survival

Postby horizon » Thu Nov 18, 2021 11:50 am

Congrats on another year!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 10 years NED). Is this real life?

MadMed
Posts: 53
Joined: Sun May 02, 2021 5:52 pm

Re: Hope - Thirteen Year Survival

Postby MadMed » Thu Nov 18, 2021 12:14 pm

Congratulations! and thank you :D
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
Break before surgery scheduled 1/27/22

Nycomomohead
Posts: 18
Joined: Sat Oct 30, 2021 7:34 pm

Re: Hope - Thirteen Year Survival

Postby Nycomomohead » Thu Nov 18, 2021 3:50 pm

Surroundedbylove wrote:Thirteen years ago I was diagnosed and was a frequent poster to this forum. I loved to see the posts when people returned many years later. Today that is me - Stage 3 survivor - rectal cancer - chemo radiation (oxaliplatin and xeloda simultaneously), surgery, more xeloda, reversal surgery. Alive and well in spite of some longterm side effects. Four lymph nodes at clinical diagnosis - two local and two regional.


Thank you. Hope and inspiration for everyone in this fight.
Spouse, DX, 49F - Rectal Stage 1 - T2NOMO - 2CM - 7.8 from AV.
10.29.21 Rectal tumor 2cm, 10cm from AV | colonoscopy
11.01.21 Biospy - Malignant - adenocarcinoma
11.03.21 First consultation with Surgeon & Onc
11.04.21 CBC blood work looked good. CEA at 1.1
11.05.21 CT Scan. Good, no sign of spread. Precautionary Liver MRI scheduled.
11.09.21 MRI Pelvis. MRI Liver.
11.09.21 Staged as Stage 1. T2NOMO - 2CM - 7.8 from AV.

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CRguy
Posts: 10346
Joined: Sun Feb 10, 2008 6:00 pm

Re: Hope - Thirteen Year Survival

Postby CRguy » Thu Nov 18, 2021 4:09 pm

SBL !!!!!

Welcome back and thank you for posting.
Here's to many more years surviving and thriving .

Love Peace and Harmony my friend
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3663
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hope - Thirteen Year Survival

Postby DarknessEmbraced » Sun Nov 21, 2021 11:06 am

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Basil
Posts: 274
Joined: Thu Mar 16, 2017 12:33 pm

Re: Hope - Thirteen Year Survival

Postby Basil » Sun Nov 21, 2021 9:51 pm

Congrats!

Per the below, I was dx’d stage 3 rectal early 2017. It’s scared the shit out of me but nothing but all clears since NED 7/31/17. One more to go and I’m outta here, will be discharged from a surveillance at MDA.
40 y/o male (now 44), kids 10 & 13.
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear
3 year scans - clear
4 year scans - clear


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