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Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Mon Dec 06, 2021 11:32 pm
by boxhill
When does your treatment begin?

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Tue Dec 07, 2021 7:00 pm
by MadMed
Good news, no progression is excellent. enjoy the holidays too.

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Tue Dec 07, 2021 7:31 pm
by MadMed
I agree, but it seems you have a good doc, i always question the rationale for a treatment or procedure, you seem to have a good path forward. Take the break for the holidays and come back even more determined to kick this things butt :lol:

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Thu Dec 23, 2021 5:14 pm
by MadMed
The holidays are rough in our situation. I was just saying yesterday, i wonder if i'll be around next christmas.

Naive or not, i think it's important to have hope. If a doctor is willing to do the work, then there's possibility. I respect your no chemo decision, as rough as FOLFIRINOX was, i am not sure i would turn down chemo. We all know what we want and is better for us.

My thinking, is one step at a time. You are here and alive, you're still in this fight and have tools. There's vaccines being trialed. I know there's been hope in treatment in the past, but it seems that we are close to an inflection point in cancer treatment. It would be a shame to give in now.

Sorry about the rambling. Emotionally, i'm also in that place. This is the best way I rationalize it for me. Hope it gives you something to think about.

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Thu Dec 23, 2021 5:42 pm
by stu
It’s a tough time of year when you are in treatment .
But hope is powerful .
I will be thinking of you and holding out for good results in 2022 .
Stu

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Thu Dec 23, 2021 7:14 pm
by MadMed
There’s a bit of “what’s the point” from my perspective other than the fact that you have to run out the grounder to second base.

That’s how I’m wired.

The fact that I am here and doing as well as I appear is a miracle.

My love left me.

I’m all alone.

Outwardly, I look fine.

Cant meet anyone in good faith with an unknown shelf life, not that I want to.

Sucks, man.

Agent Smith:
You hear that Mr. Anderson?... That is the sound of inevitability... It is the sound of your death... Goodbye, Mr. Anderson...


I think we're wired much of the same way. I get it, but looking at it that way, there was never a point. It's a zero sum game.
Like you said, gotta run it down. When I was diagnosed I had a long call with someone i never met, she's stage 4, been through numerous cycles of chemo etc..
She told me to lean towards "yes", accept every opportunity, make plans, go out and be daring. Well, i got married last May, we made plans to go to Hawaii next fall. I got a new job during chemo. It was agony interviewing and got in a highly competitive company. We plan on moving and buying a house. It is kind of funny in a weird way, i may not be around for any of that but why not. Lean towards yes.

I keep thinking, the difference between me and someone healthy is they don't think of the end, i do.

Morpheus:
“I don't know what he can do to save us. But I do know that as long as there is a single breath left in his body, he will not give up and neither can we.”

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Thu Dec 23, 2021 7:21 pm
by MadMed
prayingforccr wrote:God bless, madmen.

Thank you.

Merry Christmas.


Merry Christmas and a very successful and NED 2022 for everyone.

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Tue Mar 15, 2022 2:14 pm
by boxhill
Congratulations!

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Tue Mar 15, 2022 4:02 pm
by stu
Enjoy the beaches ! You have had a tough time so enjoy this good news .
Stu

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Tue Mar 15, 2022 6:13 pm
by MadMed
prayingforccr wrote:Update:

Minimal to no growth in lung nodules.

Many are cavitated (apoptosis?)

Decrease in mural bowel thickening.

Hepatic nodule resolved.

No treatment at this time.

Rescan in 3 months.

Happy, happy, happy



Outstanding! Congratulations, this is great news.

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Tue Mar 15, 2022 6:29 pm
by roadrunner
That is great news!

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Sat Mar 19, 2022 7:04 pm
by boxhill
Seems like you should keep doing whatever you are doing.

What is cavitation in the context of tumors?

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Sun Mar 20, 2022 6:02 pm
by boxhill
Excellent!

Re: Beginning Radiation/Immunotherapy Combination For Lung Mets

Posted: Thu Mar 24, 2022 9:20 am
by Bpaint
Such good news!