Looking for hope

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ANDRETEXAS
Posts: 659
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Looking for hope

Postby ANDRETEXAS » Fri Feb 18, 2022 10:35 am

Keep staying positive. It's the only way to get through it all. Wishing you and your wife the best.
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !

Husbandworried
Posts: 19
Joined: Fri Nov 12, 2021 9:54 am

Re: Looking for hope

Postby Husbandworried » Mon May 09, 2022 10:50 am

Wife had blood work, looked good, I of course noticed slight increase in CEA but no one is worried. May 2022 CEA 0.6, January 2022 CEA <0.5, November 2021 CEA 0.5, August 2021 <0.5, July 2021 CEA <0.5, June 2021 CEA 0.7.

Next CT scan August 2022. Just trying to stay positive and pray.

aquarian_asian
Posts: 28
Joined: Wed Jul 07, 2021 7:07 am

Re: Looking for hope

Postby aquarian_asian » Mon May 09, 2022 1:02 pm

Staying positive helps to fight against this disease. I just had CT scan today and confident that I stay alive :-)
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal

Husbandworried
Posts: 19
Joined: Fri Nov 12, 2021 9:54 am

Re: Looking for hope

Postby Husbandworried » Sat Jul 16, 2022 5:07 am

So latest CEA yesterday was 0.8 which makes the last 4 CEA levels 11/8/21-0.5, 1/24/22 <0.5, 5/6/22-O.6 and 7/15/22now 0.8. CEA was never this high except one time when on treatment when it was 1.1. I am now officially freaking out, I just know in my heart it is back again. She has a CT scan 7/22/22 so I will not sleep until then and even then I will not be satisfied. I am trying to keep it together but I honestly don’t know how anymore.

Claudine
Posts: 699
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Looking for hope

Postby Claudine » Wed Jul 20, 2022 1:58 am

Dear Husbandworried, I understand your feelings, but remember that CEA, like any blood measurement, varies, and 0.8 is still very much within the normal range which is < 3! Hopefully the upcoming scan puts all worries at rest and you get good news from it :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Lytic met L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox ; Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
Multiple small lung nodules (03/19) now gone/calcified
L3-L4-L5 fusion surgery and partial corpectomy 05/20
CEA since 03/19: high 81.1, low 3.2, now 66
MRI 2/11/22: rectal adenocarcinoma pT3 pN0 stage 2A
LAR surgery April 11

Husbandworried
Posts: 19
Joined: Fri Nov 12, 2021 9:54 am

Re: Looking for hope

Postby Husbandworried » Fri Jul 29, 2022 9:16 pm

Wife had her appointment to go over her chest CT and abdominal CT, oncologist said they both were good NED, so that was a big relief, said blood tests were good. Will get a colonoscopy in a month or so which is 3 years after her last one and then get another scan in 6 months and if that one remains NED will move to scans every 12 months. Prayers answered…lots of prayers. Will keep up exercise diet and supplements. Thanks to everyone here it is always comforting to know this site is here. I hope one day to give others hope like many of you are currently doing.


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