Looking for hope
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ANDRETEXAS
- Posts: 664
- Joined: Fri Feb 14, 2014 11:01 am
- Location: Austin, Texas (University of Tennessee alumnus)
Re: Looking for hope
Keep staying positive. It's the only way to get through it all. Wishing you and your wife the best.
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT
3/23/16 - clean CT
2/22/17- clean CT
3/21/18 - clean CT
4/1 - clean colonoscopy
3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !
4/13/23 - clean colonoscopy
ONE DAY AT A TIME !
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT
3/23/16 - clean CT
2/22/17- clean CT
3/21/18 - clean CT
4/1 - clean colonoscopy
3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !
4/13/23 - clean colonoscopy
ONE DAY AT A TIME !
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
Wife had blood work, looked good, I of course noticed slight increase in CEA but no one is worried. May 2022 CEA 0.6, January 2022 CEA <0.5, November 2021 CEA 0.5, August 2021 <0.5, July 2021 CEA <0.5, June 2021 CEA 0.7.
Next CT scan August 2022. Just trying to stay positive and pray.
Next CT scan August 2022. Just trying to stay positive and pray.
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aquarian_asian
- Posts: 52
- Joined: Wed Jul 07, 2021 7:07 am
Re: Looking for hope
Staying positive helps to fight against this disease. I just had CT scan today and confident that I stay alive 
Feb 2021 - Dx Stage3B - rectal cancer (Age is 48, Male)
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal
April 2021 - Radiation - for a week (5 mins x 5 days)
May 2021 - LAR surgery
Pathology: G2, LN+ PVI+, Lymph Nodes 5 out of 22
Temporary Ileostomy
Jun-Aug 2021 - Chemo 4 cycles 3 months (CAPOX)
Feb 2022 - Ileostomy reversal
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
So latest CEA yesterday was 0.8 which makes the last 4 CEA levels 11/8/21-0.5, 1/24/22 <0.5, 5/6/22-O.6 and 7/15/22now 0.8. CEA was never this high except one time when on treatment when it was 1.1. I am now officially freaking out, I just know in my heart it is back again. She has a CT scan 7/22/22 so I will not sleep until then and even then I will not be satisfied. I am trying to keep it together but I honestly don’t know how anymore.
Re: Looking for hope
Dear Husbandworried, I understand your feelings, but remember that CEA, like any blood measurement, varies, and 0.8 is still very much within the normal range which is < 3! Hopefully the upcoming scan puts all worries at rest and you get good news from it 
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
Wife had her appointment to go over her chest CT and abdominal CT, oncologist said they both were good NED, so that was a big relief, said blood tests were good. Will get a colonoscopy in a month or so which is 3 years after her last one and then get another scan in 6 months and if that one remains NED will move to scans every 12 months. Prayers answered…lots of prayers. Will keep up exercise diet and supplements. Thanks to everyone here it is always comforting to know this site is here. I hope one day to give others hope like many of you are currently doing.
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
So my wife had her visit today, her CEA was <0.5 all lab work normal, chest and abdominal CT scans Were normal. This puts her 4 years out from original cancer surgery and 27 months out of her second surgery. Switching to scans yearly so there is mixed feelings. Keep up prayers and exercise. Thankful for this place to help.
Re: Looking for hope
Outstanding news, we needed some good news, thank you for sharing.
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022
Re: Looking for hope
That is great news!
DH age 47
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H, TMB-H 38, KRAS G13V, ERBB2 neg, BRCA2, Lynch Syndrome
Grade 1 well differentiated
12/1/22 Yervoy and Opdivo CEA 5.4
12/19/22 Yervoy & Opdivo CEA 4.6
01/12/22 Yervoy & Opdivo CEA 3.9
2/13/23 Yervoy& Opdivo CEA 3.4
3/7/23 ct scans no change
3/9/23 Opdivo CEA 3.4
4/4/23 Opdivo CEA 2.3
6/1/23 Opdivo CEA 2.6
DX 10/22 stage 4
2 tumors in sigmoid colon 2 Mets liver
adenocarcinoma
MSI-H, TMB-H 38, KRAS G13V, ERBB2 neg, BRCA2, Lynch Syndrome
Grade 1 well differentiated
12/1/22 Yervoy and Opdivo CEA 5.4
12/19/22 Yervoy & Opdivo CEA 4.6
01/12/22 Yervoy & Opdivo CEA 3.9
2/13/23 Yervoy& Opdivo CEA 3.4
3/7/23 ct scans no change
3/9/23 Opdivo CEA 3.4
4/4/23 Opdivo CEA 2.3
6/1/23 Opdivo CEA 2.6
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
Wife just had her yearly appointment, CEA <2.0 chest and abdominal CT scans negative for any cancer, blood work normal, she is now 39 months out from recurrence and 5 years from original diagnosis. I thank god for his help and I thank this site for helping me with this process. We will keep up with prayer, exercise and supplements.
Re: Looking for hope
Husbandworried wrote:Wife just had her yearly appointment, CEA <2.0 chest and abdominal CT scans negative for any cancer, blood work normal, she is now 39 months out from recurrence and 5 years from original diagnosis. I thank god for his help and I thank this site for helping me with this process. We will keep up with prayer, exercise and supplements.
Great news!
Curious what kind of supplements is she taking?
29m Male.
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
DX: CC, Right Hepatic Flexure, 4cm, T3, G2, M0
Stage III3B , Positive lymph nodes: (2/20)
Baseline CEA value: 1.98
LVI and PNI: absent
Surgical margins: clear
No lynch Syndrome or MSI
Primary surgery type: Laparascopic
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
Vitamin D
Vitamin C
low dose aspirin
Quercetin
Turmeric
Moringa
Vitamin C
low dose aspirin
Quercetin
Turmeric
Moringa
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
So 4 years out from surgery for recurrence now chest CT states
9 mm nodular focus in the anterior mediastinum was not discretely
seen on prior study and may represent a small thymic lesion. Recommend
follow-up CT in 3-6 months to assess for change.
Not sure what this means very scared.
Above in the report it was described this way
Heart and mediastinum: No thoracic lymph nodes are enlarged by size
criteria. Aberrant course of the right subclavian artery. Scant amount
of tissue in the anterior mediastinum is likely residual thymic tissue.
9 mm nodular focus in the region of the thyroid was not discretely seen
on prior study
Why in one place in thyroid and in the impression it is in thymus?
9 mm nodular focus in the anterior mediastinum was not discretely
seen on prior study and may represent a small thymic lesion. Recommend
follow-up CT in 3-6 months to assess for change.
Not sure what this means very scared.
Above in the report it was described this way
Heart and mediastinum: No thoracic lymph nodes are enlarged by size
criteria. Aberrant course of the right subclavian artery. Scant amount
of tissue in the anterior mediastinum is likely residual thymic tissue.
9 mm nodular focus in the region of the thyroid was not discretely seen
on prior study
Why in one place in thyroid and in the impression it is in thymus?
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beach sunrise
- Posts: 1164
- Joined: Thu Mar 05, 2020 7:14 pm
Re: Looking for hope
Maybe second read from a surgical endocrinologist and board certified. Also a thoracic surgeon.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
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Husbandworried
- Posts: 27
- Joined: Fri Nov 12, 2021 9:54 am
Re: Looking for hope
Oncologist had it reread it was 9mm nodule on thymus so not sure what that means now. Have to wait to see oncologist.
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