Postby mariane » Mon Mar 20, 2023 8:10 pm
Julia, where are you right now? Where are you getting your treatment?
I am based in US since 2015 but I am originally from Poland. I am doing good and kicking in spite of the mucinous component. I have scanxiety before each set of scans but it's only once a year now. Try to stay active. Physical exercise helps to prevent recurrence. It helped me a lot with anxiety. I am not free of it. Life after cancer is never the same. However, they are days, maybe weeks without thinking of it much.
If I understand correctly, you are asking about CT scans and PET scans. I have never had PET since my NY oncologist did not recommend it. I did CARIS genetic testing. I was MSS in spite of mucinous component. However, my tumors was infiltrated with lymphocytes so there was some level of immune response. If you have any questions, pls reach to me.
You can survive it There are many of us who are still here and living as normal life as possible in spite of Covid and other adversities. I was stage 4 with liver full of big fat mets and I am still here.
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!