mucinous adenocarcenoma

Please feel free to read, share your thoughts, your stories and connect with others!
mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: mucinous adenocarcenoma

Postby mariane » Thu Mar 10, 2022 8:28 am

Hi! I hope you are doing okay in these difficult times.
I am originally from Poland. My tumor had mucinous component. I got diagnosed in 2015 with stage 4 crc (mets to the liver) at 40. I got treatment in MSKCC in NY. I was stage 4 so I received FOLFIRINOX as first choice chemo. Yesterday I got my scans and they were again clear. 6 years NED. I got genetic testing. With mucinous component I would have done it early, to know your oponent. Good luck!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: mucinous adenocarcenoma

Postby boxhill » Sat Mar 12, 2022 5:15 pm

Wow, Mariane, that is an intense course of treatment you have endured. Congratulations on 6 years NED, and may it continue for many decades!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED

Julia123
Posts: 14
Joined: Sun Nov 07, 2021 4:00 pm

Re: mucinous adenocarcenoma

Postby Julia123 » Sat Jun 11, 2022 5:24 pm

JJH wrote:
Julia123 wrote:good afternoon, i'm from Ukraine, i'm 29 years old, diagnosed on June 4, mucinous adenocarcenoma 3b, now completed the 7th course folfox / 12 tell me who faced this type of tumor? what am I missing in treatment? Maybe I need some other medications and DNA tests? sorry for bad english

Hi Julia,

How are things going now? I saw that you logged in briefly just a couple days ago but you didn't leave any message.

I hope you and your family are OK.

Take care, and keep safe !


Hey! I had my last chemo on February 17th, a week before the start of the war! it was scary! I didn’t sleep well, and woke up from rocket explosions ... I went to Moldova for a planned colonoscopy at the end of April, and on May 7 I had an MRI and a CT scan, everything is clear. There are a couple of cysts in the liver, I hope it's just cysts. The images were reviewed by several radiologists. my oncologist said to do a colonoscopy in three months. Thank you for writing
04.06 (June) 2021 Mucinous adenocarcinoma of sigmoid carcinoma (ICD-O-3: 8480/3) pT3 pN1a (1/36) M0 TD1 L0 V0 Pn0 CEA 2, CA19-9 0.69 MMEp/MSS: MLH1+, PMS2+, MSH2+, MSH6+
09/06/2021 extended resection (with abdominal wall)
28.07/2021 Folfox6 - start
24/09/2021 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05May/08/2022 - mri,ct -clean
07Jul/25/2022 colonoscopy clean
04-05may/2023 - ct,mri,colon- ned

Julia123
Posts: 14
Joined: Sun Nov 07, 2021 4:00 pm

Re: mucinous adenocarcenoma

Postby Julia123 » Sat Jun 11, 2022 5:44 pm

mariane wrote:Hi! I hope you are doing okay in these difficult times.
I am originally from Poland. My tumor had mucinous component. I got diagnosed in 2015 with stage 4 crc (mets to the liver) at 40. I got treatment in MSKCC in NY. I was stage 4 so I received FOLFIRINOX as first choice chemo. Yesterday I got my scans and they were again clear. 6 years NED. I got genetic testing. With mucinous component I would have done it early, to know your oponent. Good luck!



Hi what did you do constantly -mrt / kt, pet kt ?. I have MSS tumor, said immunotherapy is not needed. What genetic research are you talking about? Thanks, I'm holding on. Now I have to win two wars :? :?
04.06 (June) 2021 Mucinous adenocarcinoma of sigmoid carcinoma (ICD-O-3: 8480/3) pT3 pN1a (1/36) M0 TD1 L0 V0 Pn0 CEA 2, CA19-9 0.69 MMEp/MSS: MLH1+, PMS2+, MSH2+, MSH6+
09/06/2021 extended resection (with abdominal wall)
28.07/2021 Folfox6 - start
24/09/2021 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05May/08/2022 - mri,ct -clean
07Jul/25/2022 colonoscopy clean
04-05may/2023 - ct,mri,colon- ned

MadMed
Posts: 216
Joined: Sun May 02, 2021 5:52 pm
Location: Massachusetts

Re: mucinous adenocarcenoma

Postby MadMed » Sat Jun 11, 2022 6:24 pm

Julia we've been thinking about you! Glad to hear you are doing well. Stay strong, we are all rooting for you, at least everyone west of you!
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022

Julia123
Posts: 14
Joined: Sun Nov 07, 2021 4:00 pm

Re: mucinous adenocarcenoma

Postby Julia123 » Sun Jun 12, 2022 5:23 am

boxhill wrote:I'm sure we are all thinking of you at this terrible time. Who knows whether you can get or send messages, or more importantly get treatment, but you are in my thoughts and those of many others I am sure.



Thank you!! I try not to get depressed. :roll:
04.06 (June) 2021 Mucinous adenocarcinoma of sigmoid carcinoma (ICD-O-3: 8480/3) pT3 pN1a (1/36) M0 TD1 L0 V0 Pn0 CEA 2, CA19-9 0.69 MMEp/MSS: MLH1+, PMS2+, MSH2+, MSH6+
09/06/2021 extended resection (with abdominal wall)
28.07/2021 Folfox6 - start
24/09/2021 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05May/08/2022 - mri,ct -clean
07Jul/25/2022 colonoscopy clean
04-05may/2023 - ct,mri,colon- ned

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: mucinous adenocarcenoma

Postby mariane » Mon Mar 20, 2023 11:02 am

I am sorry I hardly ever come here now. I did all the genetic tests available 8 years ago. MSKCC tested the samples as well. Much changed from that time. Good luck!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: mucinous adenocarcenoma

Postby mariane » Mon Mar 20, 2023 8:10 pm

Julia, where are you right now? Where are you getting your treatment?
I am based in US since 2015 but I am originally from Poland. I am doing good and kicking in spite of the mucinous component. I have scanxiety before each set of scans but it's only once a year now. Try to stay active. Physical exercise helps to prevent recurrence. It helped me a lot with anxiety. I am not free of it. Life after cancer is never the same. However, they are days, maybe weeks without thinking of it much.
If I understand correctly, you are asking about CT scans and PET scans. I have never had PET since my NY oncologist did not recommend it. I did CARIS genetic testing. I was MSS in spite of mucinous component. However, my tumors was infiltrated with lymphocytes so there was some level of immune response. If you have any questions, pls reach to me.
You can survive it There are many of us who are still here and living as normal life as possible in spite of Covid and other adversities. I was stage 4 with liver full of big fat mets and I am still here.
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 119 guests