Hi! I hope you are doing okay in these difficult times.
I am originally from Poland. My tumor had mucinous component. I got diagnosed in 2015 with stage 4 crc (mets to the liver) at 40. I got treatment in MSKCC in NY. I was stage 4 so I received FOLFIRINOX as first choice chemo. Yesterday I got my scans and they were again clear. 6 years NED. I got genetic testing. With mucinous component I would have done it early, to know your oponent. Good luck!
mucinous adenocarcenoma
Re: mucinous adenocarcenoma
mom of now 13 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016
I praise God for every day with my family!
Re: mucinous adenocarcenoma
Wow, Mariane, that is an intense course of treatment you have endured. Congratulations on 6 years NED, and may it continue for many decades!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED
Re: mucinous adenocarcenoma
JJH wrote:Julia123 wrote:good afternoon, i'm from Ukraine, i'm 29 years old, diagnosed on June 4, mucinous adenocarcenoma 3b, now completed the 7th course folfox / 12 tell me who faced this type of tumor? what am I missing in treatment? Maybe I need some other medications and DNA tests? sorry for bad english
Hi Julia,
How are things going now? I saw that you logged in briefly just a couple days ago but you didn't leave any message.
I hope you and your family are OK.
Take care, and keep safe !
Hey! I had my last chemo on February 17th, a week before the start of the war! it was scary! I didn’t sleep well, and woke up from rocket explosions ... I went to Moldova for a planned colonoscopy at the end of April, and on May 7 I had an MRI and a CT scan, everything is clear. There are a couple of cysts in the liver, I hope it's just cysts. The images were reviewed by several radiologists. my oncologist said to do a colonoscopy in three months. Thank you for writing
04.06 (June) 2021 Mucinous adenocarcinoma of sigmoid carcinoma (ICD-O-3: 8480/3) pT3 pN1a (1/36) M0 TD1 L0 V0 Pn0 CEA 2, CA19-9 0.69 MMEp/MSS: MLH1+, PMS2+, MSH2+, MSH6+
09.06 extended resection (with abdominal wall)
28.07 Folfox6 - start
24.09 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05/08/2022 - mri,ct -clean
09.06 extended resection (with abdominal wall)
28.07 Folfox6 - start
24.09 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05/08/2022 - mri,ct -clean
Re: mucinous adenocarcenoma
mariane wrote:Hi! I hope you are doing okay in these difficult times.
I am originally from Poland. My tumor had mucinous component. I got diagnosed in 2015 with stage 4 crc (mets to the liver) at 40. I got treatment in MSKCC in NY. I was stage 4 so I received FOLFIRINOX as first choice chemo. Yesterday I got my scans and they were again clear. 6 years NED. I got genetic testing. With mucinous component I would have done it early, to know your oponent. Good luck!
Hi what did you do constantly -mrt / kt, pet kt ?. I have MSS tumor, said immunotherapy is not needed. What genetic research are you talking about? Thanks, I'm holding on. Now I have to win two wars
04.06 (June) 2021 Mucinous adenocarcinoma of sigmoid carcinoma (ICD-O-3: 8480/3) pT3 pN1a (1/36) M0 TD1 L0 V0 Pn0 CEA 2, CA19-9 0.69 MMEp/MSS: MLH1+, PMS2+, MSH2+, MSH6+
09.06 extended resection (with abdominal wall)
28.07 Folfox6 - start
24.09 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05/08/2022 - mri,ct -clean
09.06 extended resection (with abdominal wall)
28.07 Folfox6 - start
24.09 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05/08/2022 - mri,ct -clean
Re: mucinous adenocarcenoma
Julia we've been thinking about you! Glad to hear you are doing well. Stay strong, we are all rooting for you, at least everyone west of you!
52M DX: RC lower rectum, guessing now 2cm from AV 4/27/2021
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022
T3N0M0 adenocarcinoma with signet ring cell features
Tumor size 30mm
Tumor grade: G3
Baseline CEA 1.0
MSI status: MSS pMMR
Started Folfox 5/12/2021
Switched to FOLFIRINOX from session 2. 8 rounds total.
CT+MRI tumor contained shrunk 80%, no spread to other organs.
CRT started xeloda + 28 days Radiation 9/27-11/04
NED as of 4/06 CT/MRI/sigmoidoscopy
On W&W 04/06/2022
Re: mucinous adenocarcenoma
boxhill wrote:I'm sure we are all thinking of you at this terrible time. Who knows whether you can get or send messages, or more importantly get treatment, but you are in my thoughts and those of many others I am sure.
Thank you!! I try not to get depressed.
04.06 (June) 2021 Mucinous adenocarcinoma of sigmoid carcinoma (ICD-O-3: 8480/3) pT3 pN1a (1/36) M0 TD1 L0 V0 Pn0 CEA 2, CA19-9 0.69 MMEp/MSS: MLH1+, PMS2+, MSH2+, MSH6+
09.06 extended resection (with abdominal wall)
28.07 Folfox6 - start
24.09 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05/08/2022 - mri,ct -clean
09.06 extended resection (with abdominal wall)
28.07 Folfox6 - start
24.09 Magnetic resonance imaging - clear Cea 2.2
02/17/2022- 12 cycles Folfox done
04/25/2022- colonoscopy clean
05/08/2022 - mri,ct -clean
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