Hi All,
This forum is new to me, yet, fascinating. My husband is BRAF V600e. He was originally stage 3b with 5/55 lymph nodes positive. Within 8 months it came back in his liver. He had 12 sub centimeter lesions scattered through out his right lobe. Once it returned, I knew we needed to up the ante. I enlisted the assistance of an integrated oncologist. I truly believed in chronomodulated chemotherapy and high dose Vit-C. We have been doing chronomodulated chemotherapy, with 6 vitamin infusions along with Folfoxiri+Avastin. My husband has had a great response. They can't even find the lesions on a PET. We were offered oral Xeloda and 5FU. My question is does anyone here do Xeloda and 5FU chronomodulated? Also, what IV infusions are essential to keep this beast away. Liquid biopsies show BRAF wild type cells. I am afraid to make this jump without a good plan to supplement with timed chemo that promotes immune function with a combo of vitamins.
Anyone out there who has had this experience with an aggressive mutation and had success? I have come across a few posts that encourage me. I love to connect with like minded people. I also think you all are amazing!!