Bugger - recurrence

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CRguy
Posts: 10346
Joined: Sun Feb 10, 2008 6:00 pm

Re: Bugger - recurrence

Postby CRguy » Sun Nov 14, 2021 12:16 am

Huge sucknitude that you are back into the waiting game Rob.

Sending Cheers and MEGA POSI VIBES for good news on Tuesday
and for keepin' on ... keepin' ON

Harmony my friend
We are here with you and for you
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Rock_Robster
Posts: 607
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Bugger - recurrence

Postby Rock_Robster » Tue Nov 16, 2021 1:48 am

Hi all, thanks very much for all the supportive responses and advise. I spoke with my liver surgeon today.

In short it’s generally a “good” update. The PET showed nothing avid beyond the liver lesion.

Bad news is it’s too close to the hepatic vein for him to operate safely and still get a margin. But good news is he’s referred me to a transplant surgeon to see if he’s willing to do it, along with a resection/reconstruction of the vein (which apparently they do all the time, of course).

Backup plan is SABR, which he reckons could be curative, or at least decent control for a good time.

Lung stuff is way too small/indeterminate to worry about now - whilst of course concerning, we’ll wait a couple of months to rescan and see if it’s done anything (or preferably, resolved!).

So now we wait again! But I feel a lot better having a couple of solid (potentially curative) options on the table.

Cheers,
Rob
39M Australia
2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14; then 2.0 - 3.1. Nov-21: 5.4
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation
07/19 ULAR w ileo, 1/27 LN+
08/19 Liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (since Dec-19)
11/21 New liver lesion (2 lymph nodes?), maybe 4 very small (<2mm) lung things

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horizon
Posts: 1642
Joined: Tue Apr 12, 2011 10:10 pm

Re: Bugger - recurrence

Postby horizon » Tue Nov 16, 2021 12:13 pm

I hate hearing this. Wishing for nothing for the best for you. You got this!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 10 years NED). Is this real life?


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