Bugger - recurrence

Please feel free to read, share your thoughts, your stories and connect with others!
Rock_Robster
Posts: 608
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Bugger - recurrence

Postby Rock_Robster » Mon Nov 08, 2021 6:51 pm

Ugh. 2 year surveillance scan wasn’t the news I was hoping for. Looks like a 20x30mm recurrence in the liver, and 4 “very small” (<2mm) lung things, indeterminate origin. Getting more imaging done now to check if the liver is operable (oncologist was initially optimistic however). Lungs are too small to do anything so we’ll check again in a couple of months (hopefully just something random). If the lungs are mets and nothing new pops up, then should be good targets for SABR.

Onc is still positive about all being treatable, but again the uncertainty kicks off again. Sigh. Always knew this was possible, but sucks to hear. Thanks for listening as always guys.

Rob
Last edited by Rock_Robster on Mon Nov 08, 2021 6:55 pm, edited 1 time in total.
39M Australia
2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14; then 2.0 - 3.1. Nov-21: 5.4
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation
07/19 ULAR w ileo, 1/27 LN+
08/19 Liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (since Dec-19)
11/21 New liver lesion (celiac node?), 4 v. small (<2mm) indeterminate lung things

Koreysue
Posts: 229
Joined: Mon Apr 30, 2018 2:36 pm

Re: Bugger - recurrence

Postby Koreysue » Mon Nov 08, 2021 6:53 pm

Sorry to hear. I like the sound of still treatable. I’ll be pulling for you.
Keep us posted,
Ksue
Dx: 6/2017 stage 3 colon cancer
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5 (happy to see a lower number)
CEA 5/17/21 4.2
CEA 10/18/21 3.4
colonoscopy 10/2021 10mm polyp

Rikimaroo
Posts: 368
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Bugger - recurrence

Postby Rikimaroo » Mon Nov 08, 2021 10:01 pm

Rock - Sorry to hear this man. I am glad you got a much needed break from it all, but hate to hear you have to jump back into the fray of things. Hopefully things go smoothly and something they can take care of without all the chemo/surgery stuff. I am hoping its not much a little radiation can take care of. Keep us posted my friend!!
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

Markdale
Posts: 26
Joined: Wed Dec 02, 2020 4:45 pm

Re: Bugger - recurrence

Postby Markdale » Tue Nov 09, 2021 1:30 am

Hope it’s operable rob. I’ve been following your journey, you have the knowledge to push your case forward. Sabr is the way to go for lung Mets, I pushed for mine to be cut out but they could only find one and they went thoracotomy rather than vats. I have an appointment with a radiation oncologist for sabr, hope it’s an option for you.

Mark
09/20:Diagnosed after colonoscopy for bleeding.
MRI and ct scan confirmed tumor at rectosigmoid junction aswell as lung nodules in right lower lobe (1X1.2cm) and right upper lobe (3X.5cm)
10/20: low anterior resection tumour t3n2m1 4 lymph nodes positive of 24. No ileostomy.
11/20: pet scan showed low to moderate uptake of glucose.
11/20: folfoxiri - 10/6/21. 12 rounds in total
12/20: ct lung biopsy of lung nodule to confirm metastasis. Biopsy unsuccessful
1/1/21 thoracotomy for removal of lung nodules

roadrunner
Posts: 179
Joined: Sun Jan 12, 2020 8:46 pm

Re: Bugger - recurrence

Postby roadrunner » Tue Nov 09, 2021 10:40 am

I have followed your story as well, and have often been cheered and inspired by your perspective and strength. This was very disappointing to see. I hope you overcome it, as you have done with previous challenges. It sounds like you’re got good footing to do so. Good luck!
7/19: Rectal cancer: Initially staged as IIIA, T2N1M0
Initially approx 4.25 cm, low/mid rectum, mod. well diff. adenocarcinoma
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (lots of side effects/reduced size est. 70-75%)
neoadjuvant chemorad 11/19
4 rounds of FOLFOX July-August 2020
ncCR found 10/20; multiple biopsies negative
TAE 11/20, small amount of tumor removed, lung nodules orig id’d 6/20 stable Nov 2020
Chest CT 3/30/21 small growth in 2 nodules (3 and 5mm)
Stable in 6/28 scan.

stu
Posts: 1531
Joined: Sat Aug 17, 2013 5:46 pm

Re: Bugger - recurrence

Postby stu » Tue Nov 09, 2021 11:28 am

Sorry you have a bit more to contend with! A few more steps back to NED ! But you will get this back in control !
However I wish you did not have to !

My mum had a few bumps to navigate to but good scanning and quick intervention turned out to be a good response ! My mum had three lung nodules ! Only one turned out to be cancer ! They watched them for two years until they were big enough to remove !
After the second liver resection and lung resection there was no further issues !
Now she is part of long term survival research to see if her original tumour has a protein that identifies the cancer as a virus /infection and her immune system responds ( or something like that!) .
Hold onto that and hopefully your team will get a good plan pulled together !
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Claudine
Posts: 569
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Bugger - recurrence

Postby Claudine » Tue Nov 09, 2021 11:28 am

When my husband was first diagnosed and we didn't know anything about this damn disease, we were glad that he didn't have any liver mets, only the one in his L4. Now I wish it had been a liver met instead - since those are resectable. There are several here who've had liver recurrences, and are now cured (look at Stu's mom!). Hopefully just a bump in the course of being completely cured for you as well!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 81.1, low 3.2, now 66.1
Scan 03/19: Multiple small lung nodules, now gone/calcified
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 09/17/2021: stable

utahgal7
Posts: 63
Joined: Fri Sep 11, 2020 12:04 pm

Re: Bugger - recurrence

Postby utahgal7 » Tue Nov 09, 2021 3:55 pm

Rob,

Wow, I am really sorry to hear this news. I, too, have been following your journey here on this forum. You are remarkably strong and have an incredibly positive attitude. I hope that radiation will be an option and I hope you will not need more chemo.

Hugs!

Paige
02/20 Rectal Cancer dx - 3 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy
04/20 ypT3N1bM0; MSS; moderately differentiated adenocarcinoma
05/20 CAPEOX
08/20 Ileostomy reversal
09/20 CT scan; suspicious areas in liver; 10/20 MRI liver; dx hemangioma
12/20 CT scan; lung nodules (watch and wait); 03/21 CT scan; stable lung nodules (2)
07/21 & 10/21 CT scan; stable lung nodules

Siti
Posts: 236
Joined: Thu Aug 01, 2019 10:58 am

Re: Bugger - recurrence

Postby Siti » Tue Nov 09, 2021 6:13 pm

You’ve been a great source of inspiration to many of us. I am so sorry to hear the news. Let’s hope the lung things are nothing and that your liver mets will be taken care of soon.
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

User avatar
beach sunrise
Posts: 557
Joined: Thu Mar 05, 2020 7:14 pm

Re: Bugger - recurrence

Postby beach sunrise » Wed Nov 10, 2021 1:50 am

Goodness goodness Rock_Robster, what a gut punch. From what you have said it is great you would be in position to qualify for curative treatment.
I wish you the very best and will wait for updates on how its going. Keep the great attitude always, it helps more than you think. One of my surgeons told me "Strong body, strong mind is what helps the most."
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Vana3
Posts: 54
Joined: Tue Aug 13, 2019 11:40 am
Facebook Username: ma

Re: Bugger - recurrence

Postby Vana3 » Wed Nov 10, 2021 11:04 pm

Rob,

It was heartbreaking to hear your news. Cancer isn’t fair.
I appreciate your voice on this forum and want you to know that we are cheering you on.

Kind regards

Liz
Dx 36 yr, F, 7/19
T4aN2M1 Cea 5
5 cm tumor in cecum removed, 17 + out of 45 LN
Cea 4.2
MSS, KRAS g12d, Braf WT
MT: 10.9
8/20/19 MRI & PET liver spots
9/19 - 3/20 FOLFOX
1/20 CEA 3.6,4.4, 4.6, 4.6
Liver resect 4/15/20
6/20 Ct scan clear
7/20 Cea 8.6
8/20 Cea 12.4, suspicious ovarian cyst
9/20 Hysterectomy SOB CRC
post surgery cea 2.6
11/20 clear scans
2/21 clear scans
4/21 spleen met
5/21 pet scan picks up subtle concerns in liver as well as confirms spleen
Cea 4.6
5/21 to current folfiri
Cea 10

User avatar
Atoq
Posts: 401
Joined: Wed Oct 25, 2017 9:31 am

Re: Bugger - recurrence

Postby Atoq » Thu Nov 11, 2021 2:04 am

Sorry to read this news! But it is very positive that the are small and operable, we all know occurrence can happen but it is a bit if a shock. Hope to hear soon positive updates!

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

boxhill
Posts: 756
Joined: Fri Apr 06, 2018 11:40 am

Re: Bugger - recurrence

Postby boxhill » Fri Nov 12, 2021 2:58 am

Rob,

Well that stinks.

Here's hoping that you can be successfully treated in the mode of Stu's indomitable mum.

No one needs to tell you to keep your chin up, but I'm sending big virtual hugs.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
6/20 Stop Key
All MRIs NED

Rock_Robster
Posts: 608
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Bugger - recurrence

Postby Rock_Robster » Fri Nov 12, 2021 4:34 am

Thanks guys for the all the wise words and support! PET was today (I forgot how slow they are…), then liver surgical consult Tuesday. All fingers crossed for some good news.

Plan is to leave the lungs for 2-3 months and see what they do (if anything), before planning any intervention.

Thanks,
Rob
39M Australia
2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14; then 2.0 - 3.1. Nov-21: 5.4
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation
07/19 ULAR w ileo, 1/27 LN+
08/19 Liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (since Dec-19)
11/21 New liver lesion (celiac node?), 4 v. small (<2mm) indeterminate lung things

DarknessEmbraced
Posts: 3663
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Bugger - recurrence

Postby DarknessEmbraced » Fri Nov 12, 2021 9:26 am

I'm sorry your cancer came back. *hugs* I hope it's operable.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Rock_Robster and 39 guests