New here, my spouse colonscopy likely. Scared.

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Nycomomohead
Posts: 18
Joined: Sat Oct 30, 2021 7:34 pm

Re: New here, my spouse colonscopy likely. Scared.

Postby Nycomomohead » Sun Nov 21, 2021 9:32 am

Thank you.
Spouse, DX, 49F - Rectal Stage 1 - T2NOMO - 2CM - 7.8 from AV.
10.29.21 Rectal tumor 2cm, 10cm from AV | colonoscopy
11.01.21 Biospy - Malignant - adenocarcinoma
11.03.21 First consultation with Surgeon & Onc
11.04.21 CBC blood work looked good. CEA at 1.1
11.05.21 CT Scan. Good, no sign of spread. Precautionary Liver MRI scheduled.
11.09.21 MRI Pelvis. MRI Liver.
11.09.21 Staged as Stage 1. T2NOMO - 2CM - 7.8 from AV.

DarknessEmbraced
Posts: 3663
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: New here, my spouse colonscopy likely. Scared.

Postby DarknessEmbraced » Sun Nov 21, 2021 11:03 am

I hope her surgery goes well. *hugs* I had an epidural put in whole in the OR which helped with pain while it was in. After that it was a dilaudid. I also was sent home with dilaudid. Hugging a pillow while coughing or sneezing helps it not pull as much on the incision. I had an open surgery in 2014 and had 23 staples.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

JJH
Posts: 323
Joined: Mon Apr 24, 2017 7:26 am

Re: New here, my spouse colonscopy likely. Scared.

Postby JJH » Mon Nov 22, 2021 12:20 am

Nycomomohead wrote:My wife and I have decided on to go with the original surgeon...

My wife's surgery is about 1 week out.

Any tips for me to help my wife for what is ahead is always appreciated.

Do you have a confirmed date for the surgery?
"The darkest hour is just before the dawn" - Thomas Fuller (1650)

Nycomomohead
Posts: 18
Joined: Sat Oct 30, 2021 7:34 pm

Re: New here, my spouse colonscopy likely. Scared.

Postby Nycomomohead » Mon Nov 22, 2021 1:06 pm

Yes, 11.30.2021
Spouse, DX, 49F - Rectal Stage 1 - T2NOMO - 2CM - 7.8 from AV.
10.29.21 Rectal tumor 2cm, 10cm from AV | colonoscopy
11.01.21 Biospy - Malignant - adenocarcinoma
11.03.21 First consultation with Surgeon & Onc
11.04.21 CBC blood work looked good. CEA at 1.1
11.05.21 CT Scan. Good, no sign of spread. Precautionary Liver MRI scheduled.
11.09.21 MRI Pelvis. MRI Liver.
11.09.21 Staged as Stage 1. T2NOMO - 2CM - 7.8 from AV.

JJH
Posts: 323
Joined: Mon Apr 24, 2017 7:26 am

Hospital tips

Postby JJH » Tue Nov 23, 2021 1:10 am

Nycomomohead wrote:... Any tips for me to help my wife for what is ahead is always appreciated...

1~~ Private room - Request a private room, with a private toilet/shower. This is much better than being assigned to a general ward with shared facilities.
2~~ Amenity kit - Prepare a personal effects "amenity kit" containing basic necessities that the hospital doesn't provide. Ask your wife what she will need, make a checklist of these things, and put all of these things in a separate bag so that everything is ready to be packed, and nothing on the list is missing when she leaves for the hospital. For example, toothpaste, toothbrush, comb, brush, shampoo, shower gel, washcloth/wet-wipes, packet of Kleenex, shower clogs, slippers, etc. You may need to check with the hospital first to see what they do and do not allow to be taken into the rooms. (My hospital did not allow any medications or food to be brought in, for example. All required meds and food had to be provided by the hospital under doctor supervision.)
3~~ Convenience tray - Get a small tray or basket to be kept on the rolling bedside table so that all of the essential items that your wife will need while in bed can be kept in this tray and will be within easy reach without requiring her to make painful movements to access these items. The items to be kept in the tray would be things that she is likely to want to access, day or night, without having to call the nurse to fetch the items from elsewhere in the room. The things to be kept in the tray would depend on your wife's preference, but some possibilities might be: a pencil, a notepad, a cell-phone, a small flashlight or penlight (to see things after the lights have been turned off for the night), a small clock, eyeglasses case, eye mask, ear plugs, hand gel, small bottle of water, remote control for the TV, etc). The purpose of the tray is to have something with low sides that will keep the articles all in one place close at hand and keep the items from rolling off the table or falling on the floor. She might also want a small pillow/cushion to supplement the big pillow provided in the room.
4~~ Call button - The call button for calling the nurse should be placed close at hand and easy for her to reach without straining. It could be taped at eye level on the bed railing or in some other easy-to-reach place. This is so that the call button stays in the same place and she always knows where to find it when she needs it.
5~~ Messenger status - If you are allowed to visit her room during visiting hours, you could take this as an opportunity to go to the nurses station and talk to the head nurse to ask for whatever special assistance your wife may need (e.g., to request a wheelchair or walker for the room, or to negotiate a better meal menu, to make a request, or make a complaint, to ask when the drain tubes are going to be removed, or to ask when the doctor is going to arrive, etc.). Also, you could bring a box of chocolates to the nurse's station for all of the nurses to share.
6~~Tips for Being a Successful Caregiver - https://www.cancer.net/coping-with-cancer/caring-loved-one/tips-being-successful-caregiver
Last edited by JJH on Wed Nov 24, 2021 2:29 pm, edited 1 time in total.
"The darkest hour is just before the dawn" - Thomas Fuller (1650)

Rock_Robster
Posts: 605
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: New here, my spouse colonscopy likely. Scared.

Postby Rock_Robster » Tue Nov 23, 2021 1:45 am

And a 10 foot phone charging cable :D
39M Australia
2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14; ranging 2.0 - 3.1 since
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation
07/19 ULAR w ileo, 1/27 LN+
08/19 Liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (since Dec-19)
11/21 New liver lesion on CT, maybe 4 very small (~2mm) lung things

Nycomomohead
Posts: 18
Joined: Sat Oct 30, 2021 7:34 pm

Re: New here, my spouse colonscopy likely. Scared.

Postby Nycomomohead » Tue Nov 23, 2021 11:27 am

Thank you so much, everyone. All your suggestions and guidance are appreciated.

I am following up on some of these, being mindful of not overstepping to "annoying".
Spouse, DX, 49F - Rectal Stage 1 - T2NOMO - 2CM - 7.8 from AV.
10.29.21 Rectal tumor 2cm, 10cm from AV | colonoscopy
11.01.21 Biospy - Malignant - adenocarcinoma
11.03.21 First consultation with Surgeon & Onc
11.04.21 CBC blood work looked good. CEA at 1.1
11.05.21 CT Scan. Good, no sign of spread. Precautionary Liver MRI scheduled.
11.09.21 MRI Pelvis. MRI Liver.
11.09.21 Staged as Stage 1. T2NOMO - 2CM - 7.8 from AV.


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