Post Treatment Monitering

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CancerBum21
Posts: 28
Joined: Fri Feb 26, 2021 6:27 am

Post Treatment Monitering

Postby CancerBum21 » Fri Oct 15, 2021 3:14 pm

Hey yall! So I’ve finished treatment - FOLFOX x6 and xelota & radation for rectal cancer. Yay. But now I’m wondering what I should track now that I’m finished. I’m guessing I’m now at higher risk for some stuff now.

My fertility doctor had mentioned that I should track testosterone annually as I could be at risk for low t maybe in 5 years.

I’m guessing my oncologist will want to track CEA (which never changed during treatment) and the other battery of blood tests that we did during chemo we also spoke about ctDNA.

Anything else? Like bone health related or vitamins or minerals?
34/M
DX:(Rectal Cancer) 2/15/21
Stage: T1N0M0
TAMIS Surgery 3/10/21
Pathology: T1NxM0 - LIV positive, 1/1 lymph positive Stage IIIA
FOLFOX 6 rounds
Radation & Xelota 5 weeks

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beach sunrise
Posts: 557
Joined: Thu Mar 05, 2020 7:14 pm

Re: Post Treatment Monitering

Postby beach sunrise » Fri Oct 15, 2021 10:55 pm

The rad onc I had told me anyone who has had radiation needs a bone density within 6 months after. So, I did and due another one but we are in deep cv19 spread right now so putting it off.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

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O Stoma Mia
Posts: 1691
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: Post Treatment Monitering

Postby O Stoma Mia » Sat Oct 16, 2021 1:47 am

Please note that chemotherapy can have both short-term effects, and long-term side effects that need to be monitored over the long term, and that every patient is different.

http://www.healthline.com/health/cancer/effects-on-body
.
http://www.cancer.net/survivorship/long-term-side-effects-cancer-treatment

CancerBum21
Posts: 28
Joined: Fri Feb 26, 2021 6:27 am

Re: Post Treatment Monitering

Postby CancerBum21 » Thu Nov 11, 2021 9:24 pm

Thanks! I just finished my first scans post surgery/chemo/radation treatment. They were clear but it looks like I developed diverticulitis. I haven’t really noticed any huge change other than I have to poop way more often and with grater urgency. So far it has been getting better. Radation was especially tough. It’s been 9 weeks now since I finished and I’m feeling way better.

I’ll have to ask about bone density. I have an appointment with my radation oncologist tomorrow.

I still have neuropathy in my hands and feet but it’s not too bad. One of my doctor friends told me nerves grow a centimeter a year so at some point that should go away. I have a hypothyroid condition as well and when that medication gets messed up the neuropathy really goes crazy.

I just finished open enrollment too for my insurance. I’m just guessing I’m going to max out my health plan again next year. I’m assuming the watch and wait protocol is not considered preventative care.
34/M
DX:(Rectal Cancer) 2/15/21
Stage: T1N0M0
TAMIS Surgery 3/10/21
Pathology: T1NxM0 - LIV positive, 1/1 lymph positive Stage IIIA
FOLFOX 6 rounds
Radation & Xelota 5 weeks


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