Xeloda med concerns and timing

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Kiter
Posts: 17
Joined: Tue Oct 06, 2020 7:59 pm

Re: Xeloda med concerns and timing

Postby Kiter » Thu Oct 07, 2021 5:43 pm

Kiter wrote: I had my CT Scan today and the tech kinda screwed up by actually commenting on it to me a bit. Surprisingly she said I only had a cyst on my liver and not a cancer tumor... hummmmmm. But, until I hear that from the official reviewing doctor I'm going to assume she was wrong and there is still a tumor there.


Ya, tech was wrong. Multiple tumors on liver all significantly bigger than last time. Same with the lungs. Oh well, back to Chemo for me, doh!
Diagnosed Aug 2020, age 56, male
Aug 2020 Sigmoid Colon Stage IV; Met liver & lungs
9/3,8/2020 CEA 1389; 1166
Started FolFox (with Avastin) 10/5/20 w/CEA at 1721
Stopped Oxaliplatin after round 9 due to Neuropathy
Ended 12th round 4/6/21 with CEA at 8 and CT Scan showing 85-90% reduction in tumors
Monitored through (current) Oct 2021 CEA now in 600's
Later this (Oct '21) month, starting Avastin IV (in office) followed by Xeloda tablets taken daily for 14 days out of 21

Brearmstrong
Posts: 111
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: Xeloda med concerns and timing

Postby Brearmstrong » Sat Oct 09, 2021 7:10 pm

Sorry to hear this and that tech had no business saying anything. That is frustrating. Hopefully your onc puts you on Folfiri and it knocks it back. Keep on moving forward.

-Brenda
48 F Jan 17 2 sons
tumor appendix/colon
Muc Adeno 4cm
mod diff G2 T4aN2
nodes 8/50
CEA 4.6 after surgery <.05
KRAS G12D MSS
FOLFOX Apr-sep 17
Clean CT Jul 2017, oct 17, CEA 3.4, 8.1. May 18 2.3,1.0,1.3, 1.3, 1.0, 2.3, 2.2, 2.1,2.2,1.6,1.4,1.5,2.8,2.2,2.5
Oct 17 NED
Nov 17 PET para aortic nodes Stage IV
Folfori w/avastin Dec 17
May 18- surgery on nodes xeloda 2years
Aug 18-CT NED Clear CT's Nov 18-May 20
July 20 hysterectomy CEA 1.7 chemo break
July 21 vats right lung
Clinical trial?

User avatar
WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Xeloda med concerns and timing

Postby WriterGirl1969 » Wed Oct 13, 2021 8:02 pm

Kiter wrote:
Kiter wrote:Question 1: how critical is food with Xeloda and how much food is really needed?
Question 2: What's with the "don't exercise after taking" instructions... and is 30 min enough time after taking to address this?

Additional Question 3: Has anyone seen an increase in their Nueropathy with Xeloda? It's listed as an 'uncommon' side-effect, but since I already have it...???


I had Xeloda (oral) 2 weeks on 1 week off as monotherapy (was not every 12 hours). I had pre-existing neuropathy also (both feet). My oncologist opted to not give me Oxaliplatin due to that, as the Oxa tends to cause neuropathy and they didn't want to make it worse. Due to my height and weight, I had a high dose / amount of Xeloda. I did not experience any increased neuropathy due to the Xeloda, at least that I could tell.

I cut back on some of the "fortified" cereals, but otherwise did not change my diet or exercise very much other than to drink as much water as I could. I'd heard this was an easy but very good way to help minimize side effects. I was very fortunate, and my body reacted without many side effects to the Xeloda until round 7, at which time I started to notice the hand/foot syndrome popping up. I did some research and found that most studies indicated Xeloda reached maximum effectiveness at 7 days, and that 1 week on 1 week off regimens were just as effective with less side-effects. My oncologist didn't seem to think the studies I referenced were good enough to change his regimen, so I changed it myself and my side-effects got much better. for my last 2 rounds.

Everyone has their own reactions and journeys, but I hope this info is helpful! :)
Smiles, hugs and prayers,
Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

Kiter
Posts: 17
Joined: Tue Oct 06, 2020 7:59 pm

Re: Xeloda med concerns and timing

Postby Kiter » Thu Oct 14, 2021 12:05 am

WriterGirl1969 wrote:Everyone has their own reactions and journeys, but I hope this info is helpful! :)
Smiles, hugs and prayers,
Tracy


Thx Tracy, very good to know. Sounds a lot like my starting point too.
Diagnosed Aug 2020, age 56, male
Aug 2020 Sigmoid Colon Stage IV; Met liver & lungs
9/3,8/2020 CEA 1389; 1166
Started FolFox (with Avastin) 10/5/20 w/CEA at 1721
Stopped Oxaliplatin after round 9 due to Neuropathy
Ended 12th round 4/6/21 with CEA at 8 and CT Scan showing 85-90% reduction in tumors
Monitored through (current) Oct 2021 CEA now in 600's
Later this (Oct '21) month, starting Avastin IV (in office) followed by Xeloda tablets taken daily for 14 days out of 21

Kiter
Posts: 17
Joined: Tue Oct 06, 2020 7:59 pm

Re: Xeloda med concerns and timing

Postby Kiter » Thu Oct 14, 2021 12:12 am

Brearmstrong wrote:Sorry to hear this and that tech had no business saying anything. That is frustrating. Hopefully your onc puts you on Folfiri and it knocks it back. Keep on moving forward.

-Brenda


Ehh, at least I’ve learned to not trust such sources so I never took it seriously. Got my CEA number back too, more bad news as it’s over 1700 (again). Doctors office also dropped the ball on getting me started on the new chemo and we have another week delay before that can happen. In the meantime I’ve been able to take care of more things on the home front so it’s not a complete loss.
Diagnosed Aug 2020, age 56, male
Aug 2020 Sigmoid Colon Stage IV; Met liver & lungs
9/3,8/2020 CEA 1389; 1166
Started FolFox (with Avastin) 10/5/20 w/CEA at 1721
Stopped Oxaliplatin after round 9 due to Neuropathy
Ended 12th round 4/6/21 with CEA at 8 and CT Scan showing 85-90% reduction in tumors
Monitored through (current) Oct 2021 CEA now in 600's
Later this (Oct '21) month, starting Avastin IV (in office) followed by Xeloda tablets taken daily for 14 days out of 21

User avatar
WriterGirl1969
Posts: 524
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Xeloda med concerns and timing

Postby WriterGirl1969 » Tue Oct 19, 2021 10:43 pm

Kiter wrote:Thx Tracy, very good to know. Sounds a lot like my starting point too.


That's what I thought, too. Please feel free to ask me any questions I might be able to give input on. The people here are just wonderful, and provide such good information. They truly turned my life around.
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”


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