Hi Catstaff - Yes I have updates. I met with Surgeon and he wants to go with a pharmacological therapies which is Reglan and Protonix which honestly I been doing for 2 weeks now and it has not help. I know this is a surgical issue. They said they see the problem its small bowel kink in the deep pelvis. I guess because I had 2 surgeries in Deep Pelvis already with radiation it's a more difficult surgery. Bypass was mentioned and I would do that 100%, but that discussion was made with the fellow dr, when my surgeon came into the room he mentioned that not sure how much small bowel would be ignored. The bottom line my main surgeon didn't seem to be very understanding of the situation I feel like he just comes in like a hurricane doesn't read my chart, review scans, etc...prior to talking to me.
He is a great surgeon but somehow I think he let's the residents/fellows review then have them fill him in, but then he brushes them off LOL....I am still having the pain, and just suffering through it. I have a call out to my surgeon in Ohio Cleveland Clinic who did the surgery that caused this problem, not on purpose of course. He wants to talk to me and go over my symptoms and scans. There both Cleveland Clinic so he has all the records.
I am so frustrated with this. I am at my wit's end. I have lost over 30 LBs within 1 month, which is not good. I am on a total liquid diet, but sometimes I will slip in some solids when I feel better only to go through the motions of pain, throw up and just uncomfortable. Can't sleep most nights because of the peristalsis movements causes slight pain, sometimes severe. I am kind of shocked my world renowned surgeon was so hesitant to say let's do surgery. I am not rushing to surgery, trust me prefer to not have the knife, but I think that is the only solution. If they can bypass I would do that. I miss eating
How did you husband surgery work out? How is he feeling? Did it help? Does he feel relief? Was it deep pelvis, that is where my issue is?