TWELVE YEARS NED AFTER STAGE 4

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ranger
Posts: 351
Joined: Sat Nov 14, 2009 2:02 pm
Facebook Username: cancerIsSOfunny
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TWELVE YEARS NED AFTER STAGE 4

Postby ranger » Thu Sep 02, 2021 2:50 pm

Hi friends, just dropping in to say this month will mark 12 years since my liver resection at Johns Hopkins. That day I went from Stage 4 cc patient to NEDville. If you're in the mood, celebrate with me!
Amy (strange ranger)
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
https://m.facebook.com/Cancer-is-SO-fun ... 100303900/
@cancerissofunny
age 70, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

Blakeacw
Posts: 11
Joined: Thu Nov 05, 2020 12:24 pm
Location: Atlanta

Re: TWELVE YEARS NED AFTER STAGE 4

Postby Blakeacw » Thu Sep 02, 2021 3:19 pm

Congratulations and Thanks for Sharing ! - very inspiring

Hope to be able to keep sharing similar news as well
Colonoscopy 8/2020 - cancer diag. 9cm mass
Colectomy 8/2020 - successful -margins cleared
2 /16 lymph nodes -m1 tumor deposit
Pt3 n1b

Port installed 9/20
Folfox - 10/12 rounds complete

CEA
8.6.20 - 8.70 Prior Surgery
9.4.20 - 3.00 Post Surgery
4.14.21 - 2.70

CT Scan 3/18/21 - NED
Signatera 3/16/21 & 6/16 - NEGATIVE

Koreysue
Posts: 218
Joined: Mon Apr 30, 2018 2:36 pm

Re: TWELVE YEARS NED AFTER STAGE 4

Postby Koreysue » Thu Sep 02, 2021 3:34 pm

This is awesome to here! :D :D
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6.1
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5 (happy to see a lower number)
CEA 5/17/21 4.2

stu
Posts: 1518
Joined: Sat Aug 17, 2013 5:46 pm

Re: TWELVE YEARS NED AFTER STAGE 4

Postby stu » Thu Sep 02, 2021 3:40 pm

Fab . Celebrating with you !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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ginabeewell
Posts: 511
Joined: Wed Oct 24, 2018 10:30 am

Re: TWELVE YEARS NED AFTER STAGE 4

Postby ginabeewell » Thu Sep 02, 2021 8:37 pm

One more person for my “proof” list! Yay for NED!! Thanks for sharing!
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

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CRguy
Posts: 10327
Joined: Sun Feb 10, 2008 6:00 pm

Re: TWELVE YEARS NED AFTER STAGE 4

Postby CRguy » Fri Sep 03, 2021 12:06 pm

Happy Dancing for you Amy
Thanks for dropping by !

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3629
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: TWELVE YEARS NED AFTER STAGE 4

Postby DarknessEmbraced » Sat Sep 04, 2021 8:00 am

That's amazing! Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Sunnycd
Posts: 61
Joined: Fri Feb 26, 2021 10:36 am

Re: TWELVE YEARS NED AFTER STAGE 4

Postby Sunnycd » Sat Sep 04, 2021 8:16 pm

Thanks for taking the time to share this great news! Congratulations!
DX Feb. ‘21 CC IIB @ 51
Jan. ‘21 ER surgery, temp. colostomy
Sigmoid, adernocarcinoma
T4aN0MX, G2
0/24 lymph nodes
LVI: indefinite
PNI: not identified
Margins: clear
March ‘21 started 4 rounds of CAPOX
06/17/21 last day of CAPOX
06/25/21 CT scan clear
CEA: @ dx 4, post surgery 1.9, post chemo: 2.9
07/14/21 colostomy reversal

Punky44
Posts: 486
Joined: Mon Oct 01, 2018 4:29 pm

Re: TWELVE YEARS NED AFTER STAGE 4

Postby Punky44 » Mon Sep 06, 2021 11:34 pm

So fantastic! Congratulations!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1
Latest update: 6/28/21: Clear CT with CEA 3.1 (attributed to emphysema)

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Siti
Posts: 230
Joined: Thu Aug 01, 2019 10:58 am

Re: TWELVE YEARS NED AFTER STAGE 4

Postby Siti » Fri Sep 10, 2021 3:49 am

Congratulations! Definitely celebrating with you!
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

Claudine
Posts: 544
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: TWELVE YEARS NED AFTER STAGE 4

Postby Claudine » Fri Sep 17, 2021 5:28 pm

Moderators - we need a champagne emoji!!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: low 3.2, now 81.1
Scan 03/19: Multiple small lung nodules, now gone/calcified
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 09/17/2021: stable

teacher2017
Posts: 274
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: TWELVE YEARS NED AFTER STAGE 4

Postby teacher2017 » Sun Sep 19, 2021 7:25 pm

Wonderful!!!! I’ll be 3 yes if this scan is clear… thanks for the hope!
Lydia
50 yo mom of 2 (15, 18)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/17-4/18
CEA -1.4 11/8/17
Colonoscopy- 5/18-CLEAR!
Cea -1.8 6/18
Cea -2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection-9/18
Cea -1.5/1.2
Port removal-9/19
Cea -1.2 10/19
Cea -1.1 02/2020
Cea - 1.2 5/20
Cea-1.1 9/20
Cea- 1.3 2/21
Cea.1.3 5/21


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