skb wrote:Thank you Denny and Sevilla for your kind messages. I am yet to hear from my oncologist on a treatment plan.
I am hoping for a curative plan rather than a palliative plan. I have heard that these pelvic lymph nodes are hard to operate upon. I hope my team finds some surgeon who is willing to perform the surgery.
I am spending a lot of time googling my survival chances. I get upset by seeing the statistics.
I truly appreciate the occasional replies in this thread. It gives me hope. Thank you.
skb
Sorry to hear that. I don't know much info about lymph node mets, seems like it's a rare case. So what statistics says?
I wouldn’t put too much stock in survival rates for this situation as it is so rare there isn’t great data. The isolated case studies show a good survival rate with surgery and chemo. Stay positive and good luck!
skb wrote:I wouldn’t put too much stock in survival rates for this situation as it is so rare there isn’t great data. The isolated case studies show a good survival rate with surgery and chemo. Stay positive and good luck!
Thank you DennyP
Would you remember how big was your lymph node when it was surgically removed? Was only one node removed?
skb wrote:Sorry to hear that. I don't know much info about lymph node mets, seems like it's a rare case. So what statistics says?
Hi Sevilla,
Good to know that your mother is getting care from some of the best doctors in your country. She is very fortunate in that regard.
I wanted to point out that in some very rare situations, rising CEA is difficult to explain. The paper listed below was published this year from the Netherlands. A patient's CEA has been rising for a year and the doctors dont know the cause yet.
https://www.sciencerepository.org/a-rem ... 2020-1-104
There is another forum https://csn.cancer.org/ where I have found couple of people whose CEA has risen for a long time with no evidence of disease.
One such person has the id, zx10guy
Regarding my specific situation (metachronous isolated retroperitoneal lymph node metastasis), there is not a lot of data available. This is because such metastasis is very rare and studies regarding that are probably not helpful for a lot of people and are therefore not funded.
The following paper provided some poor statistics that has been bothering me.
https://www.annalsofoncology.org/article/S0923-7534(19)30783-5/fulltext#relatedArticles
This paper also did not have a great survival story-
https://onlinelibrary.wiley.com/doi/10. ... 09.01821.x
There are some anecdotal stories. Some are good, some bad.
In this story from Japan, a man has survived for long after the metastatic lymph node surgery.
https://surgicalcasereports.springerope ... 016-0177-y
In this other story, lung metastasis developed at the same time and the patient's disease became systemic.
https://www.sciencedirect.com/science/a ... 1221007057
I have heard that cancer is personal and different for everyone and we should not be discouraged by poor statistics.
Dennyp wrote:...The link for the study with poor statistics didn’t work.
The following paper provided some poor statistics that has been bothering me.
https://www.annalsofoncology.org/article/S0923-7534(19)30783-5/fulltext#relatedArticles
It was 2.3 x 1.5 cm at diagnosis 1.7 x 1.2 after chemo, before surgery, I had3 lymph nodes removed, the other 2 were negative. Both my surgeon and oncologist are optimistic about survival, so I’m going with that!
skb wrote:Hi Sevilla,
Good to know that your mother is getting care from some of the best doctors in your country. She is very fortunate in that regard.
I wanted to point out that in some very rare situations, rising CEA is difficult to explain. The paper listed below was published this year from the Netherlands. A patient's CEA has been rising for a year and the doctors dont know the cause yet.
https://www.sciencerepository.org/a-rem ... 2020-1-104
There is another forum https://csn.cancer.org/ where I have found couple of people whose CEA has risen for a long time with no evidence of disease.
One such person has the id, zx10guy
Regarding my specific situation (metachronous isolated retroperitoneal lymph node metastasis), there is not a lot of data available. This is because such metastasis is very rare and studies regarding that are probably not helpful for a lot of people and are therefore not funded.
The following paper provided some poor statistics that has been bothering me.
https://www.annalsofoncology.org/article/S0923-7534(19)30783-5/fulltext#relatedArticles
This paper also did not have a great survival story-
https://onlinelibrary.wiley.com/doi/10. ... 09.01821.x
There are some anecdotal stories. Some are good, some bad.
In this story from Japan, a man has survived for long after the metastatic lymph node surgery.
https://surgicalcasereports.springerope ... 016-0177-y
In this other story, lung metastasis developed at the same time and the patient's disease became systemic.
https://www.sciencedirect.com/science/a ... 1221007057
I have heard that cancer is personal and different for everyone and we should not be discouraged by poor statistics.
skb wrote:I met with my oncologist yesterday and he asked about my openness to strong chemo (FOLFOXIRI) for about three months and follow up with maintenance chemo. I responded that I am open to everything.
He believes that the chemo can kill cancer cells in the lymph node and will provide systemic therapy. He was not an advocate for surgery. He said that removing the lymph node is an extensive surgery with potential complications, you might feel better if you remove it but it does not guarantee that cancer does not come back. If we go for surgery, he would like me to do surgery first , recover from it and then do the chemo. He also talked about potentially adding few doses of radiation to the area but was not sure of someone would be willing to do that for me.
I am being referred to a surgeon to see what options I have. And also a radiologist.
I would like the treatment to start as soon as possible but the oncologist says I have time and I should meet with surgeon and come up with treatment plan. Overall I am uneasy and anxious
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